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Posted by @carefullycaregiving in Brain & Nervous System, Feb 9, 2012

I am an in home provider for a woman with this rare disease. My knowledge is extremely limited. Any useful information would be helpful.

Tags: Other, sleep problems, womens health


Posted by @lisalinderman, Nov 7, 2012

I realize this is out of date now, but this disease runs in my father's side of the family. Thankfully, my branch has been bypassed. If you still need or desire information about it, please let me know!


Posted by @carefullycaregiving, Nov 9, 2012

Lisa, unfortunately, it is out of date for her.
She does have two daughters that I still connect with though. I'm sure they would love any info that you have. I'm happy to pass it along.

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