Mobility Issues

Posted by cmdw2600 @cmdw2600, Feb 21, 2023

My husband (age 72) was diagnosed with Parkinson’s about 6 years ago. I feel his progression is slow even though he would say otherwise. He is still driving and playing golf-although poorly. He does go to the gym, but he is weak and feels that he cannot improve in this area. He is of a healthy weight, maybe a bit too thin, and we have a healthy diet. He currently takes Sinemet, and a drug that is not as well known called Gocoveri. This drug seems to control what he referred to as “bobble head”. His hand tremors are pretty well controlled with the Sinemet.

My question is this: does anyone have tips for getting out of bed, getting off the sofa, getting out of the car? I’d like him to get some kind of physical therapy for these situations but am not certain how to proceed. He does not use a walker, cane or Nordic sticks.

Anything that has worked for anyone out there?

Thank you! Cindy

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Not sure where you live but I live in Australia and I have a Dawson bed stick to help me getting in and out of bed.

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Is there any meds that help with the stiffness of Parkinson’s?

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Is there anything that helps with the stiffness of Parkinson’s?

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Adding to my question above regarding mobility, what about general weakness? My husband used to love playing golf, but now he is frustrated because his weakness prevents him from ever having a good game. This may seem like a small issue as he is still able to drive and get out of the house, however, he also struggles with basic tasks like opening a package or water battle-no strength. He does go to a gym and do some weight machines, but he claims nothing will ever help him regain his strength due to Parkinson’s.

Can anyone offer advice or opinions? Is he correct?

Cindy

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I too have experienced a dramatic loss of strength since my PD diagnosis almost a year ago now. I had worked out regularly before that on a weight machine circuit at a local gym for about an hour, three times a week. Post diagnosis my trainer suggested switching to daily resistance band workouts, most are 30-45 minutes every day but I do them at home on YouTube and vary them day to day, but mostly whole body strength training routines. Nothing seems to be abating the loss of muscle and strength. (Sarcopenia?) I am 76 and formerly had a mid single digit golf handicap which has more than doubled between the loss of power and my hand tremors, taking much of the fun out of the game for me, but I haven't given up completely. I have just started on a couple of protein supplements to see if that helps, but I am curious if others have found a way to maintain their strength against ageing and PD? Thanks,

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@cmdw2600

Adding to my question above regarding mobility, what about general weakness? My husband used to love playing golf, but now he is frustrated because his weakness prevents him from ever having a good game. This may seem like a small issue as he is still able to drive and get out of the house, however, he also struggles with basic tasks like opening a package or water battle-no strength. He does go to a gym and do some weight machines, but he claims nothing will ever help him regain his strength due to Parkinson’s.

Can anyone offer advice or opinions? Is he correct?

Cindy

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Hi Cindy,

My husband is experiencing all the same issues and we would certainly be thankful for any information that would be helpful for these issues. My husband was doing Rock Steady Boxing and a Theracycle daily which was very helpful until he had Botox on his bladder and ended up with a catheter for 6 weeks and is just now starting back up with the Theracycle and hopefully RSB soon. ANY helpful suggestions would be appreciated for both of us I am sure.
Barb

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@bjleffelman

Hi Cindy,

My husband is experiencing all the same issues and we would certainly be thankful for any information that would be helpful for these issues. My husband was doing Rock Steady Boxing and a Theracycle daily which was very helpful until he had Botox on his bladder and ended up with a catheter for 6 weeks and is just now starting back up with the Theracycle and hopefully RSB soon. ANY helpful suggestions would be appreciated for both of us I am sure.
Barb

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Cindy,
Does your husband have allot of "OFF" times with his drugs? That is another very issue my husband deals with and it is very difficult to deal with that.
Thank you,
Barb

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@tedalmon

I too have experienced a dramatic loss of strength since my PD diagnosis almost a year ago now. I had worked out regularly before that on a weight machine circuit at a local gym for about an hour, three times a week. Post diagnosis my trainer suggested switching to daily resistance band workouts, most are 30-45 minutes every day but I do them at home on YouTube and vary them day to day, but mostly whole body strength training routines. Nothing seems to be abating the loss of muscle and strength. (Sarcopenia?) I am 76 and formerly had a mid single digit golf handicap which has more than doubled between the loss of power and my hand tremors, taking much of the fun out of the game for me, but I haven't given up completely. I have just started on a couple of protein supplements to see if that helps, but I am curious if others have found a way to maintain their strength against ageing and PD? Thanks,

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I am 92 and still pretty active although I do limit my "outings" with my son. When I was your age, I did Aqua Areobics 5 times a week. I loved being in the water, and that is how I started my day. The water increases the resistance to about equal to lifting a 5 lb weight and it is up to you how hard you want to work. You come out of the water feeling very refreshed and ready for the day. You might give this a try.
Gind5009

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@cmdw2600

Adding to my question above regarding mobility, what about general weakness? My husband used to love playing golf, but now he is frustrated because his weakness prevents him from ever having a good game. This may seem like a small issue as he is still able to drive and get out of the house, however, he also struggles with basic tasks like opening a package or water battle-no strength. He does go to a gym and do some weight machines, but he claims nothing will ever help him regain his strength due to Parkinson’s.

Can anyone offer advice or opinions? Is he correct?

Cindy

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I know the frustrations. I can't open a water bottle so my wife does. I can't do lots of things. I try to concentrate on what I CAN do and quit looking at who I was and concentrate on who I am. I am 78 years old and I can walk so I do. I watch my diet. I study things that interest me and I walk again. Getting old is not fun. Getting old with PD is less fun. NOT DEAD YET. Be greatful to be alive. Its tough being old with PD - do you have another choice? Watch the movies you never had a chance to watch when busy. Do it while walking on a treadmill. I know I am mean and unsympathetic. Just enjoy what you have because you will still have it happy or sad. Be happy.

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@bjleffelman

Cindy,
Does your husband have allot of "OFF" times with his drugs? That is another very issue my husband deals with and it is very difficult to deal with that.
Thank you,
Barb

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My husband feels that he can’t identify “off” time, but I am thinking it’s when he has active tremor (hand). It seems this symptom is fairly well managed with Sinemet and he is also taking Gocoveri which has help with head motion.

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