Numbness from head to toe, brain fog, vision problems, tinnitus, etc..

Posted by hopetoheal @hopetoheal, Dec 18, 2021

Hi all,

I am male and 54 years old.

For more than 6 months (permanently): 24/7 numbness from head to toe, brain fog, vision problems and eye floaters, severe tinnitus, intermittent poor concentration, burns in the head, electric shocks, pinching, migrating pain, feeling as if you're wearing socks when you're not, feeling cold/hot feet, fasciculations (twitching), all these acute symptoms appeared at the same time, currently I have no quality of life, I still feel in survival mode and no slacking off.

My diagnoses for years : Ankylosing spondylitis, Reiter's syndrome and Herniated disc.

All the tests I have done in the last 6 month:

Scan : Negative
MRI (Head) : Negative
EMG + 2 neurologists : Negative and they did not find anything abnormal
ENT : Negative
Blood tests : Negative
Lyme disease and co-infections (ArminLabs) : Positive (Borrelia, Bartonella, Ehrlichia and Chlamydia pneumonia)

My radiologist mentioned to me that according to my symptoms it could be connected with the peripheral nervous system namely the nerves leaving the brain to other areas of the body. Any abnormal functioning of the nerves has no effect on MRI scans. She also mentioned to me that my doctor must therefore continue to investigate, potentially with the help of a neurologist.

Unfortunately they have not found anything to date except my Lyme disease test that I took outside the country and that they do not seem to recognize.

Could it be that this could be a form of neuropathy caused by Lyme disease and co-infections or my autoimmune disease?

If anyone has any ideas or advice I would really appreciate it.

Thanks for reading!

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Thank you!!

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@kobe4thewin

First, my compassion for your physiological condition.

Second, I’ve experienced the same — for s year now. I was previously very athletic.

I too have Lyme (4 borrelia species…2 of which are called ‘exotic’ and little is known about them).

What is working for me:
Alpha Lipoic Acid (ALA): 1200mg
Berberine 500 mg at each meal (Thorne)
High Vit C

Recently…
Coconut suppositories…seem to be working really well.

Small fiber neuropathy is usually started in the GI Tract. And suppositories work well.

I used this product (note: they have a Lyme essential oil blend)
https://www.optimalhealthnetwork.com/How-To-Make-a-Coconut-Oil-Suppository-s/1194.htm
I’m now on the path of deeper GI cleanse in order to get to the other side of this.

Blessings & Comfort to you!!

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Hello ~ I'm interested in where you got the information that small fiber neuropathy is usually starts in the GI Tract. I'd like to read up on that. Thank you.

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Dear God how do you function?

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@retired123

Hello ~ I'm interested in where you got the information that small fiber neuropathy is usually starts in the GI Tract. I'd like to read up on that. Thank you.

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Apologies for the delay. I wrote a correction above.

I mis-wrote that SFN can start in the stomach. It’s typically spinal.

In my case, however, I also have a lot of stomach nerve issues (unknown cause after a year of deep testing). My issues also affect cranial sensations.

One of my practitioners is looking for a neuro-nutritionist. This speciality seems to focus on kids, but my doctor sees it as a worthy step for me.

I may need to go to a researcher vs practitioner.

I find that when it comes to nerves that the medical profession is very stumped if one does not ‘fit’ a box like MS, Parkinson’s, ALS etc.

Here is an article (general web content)…in case it may be helpful to you:
https://www.epainassist.com/abdominal-pain/stomach/can-you-have-neuropathy-in-your-stomach
Best return to 100% health!

Please reach back with any questions. I’ll do my best to be more responsive.

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