Apical Hypertrophic Cardiomyopathy, Tachy & Myocardial Bridging

Posted by ch665296f @ch665296f, Thu, May 2 6:27am

I have been through the gamut of tests and studies. I am scheduled for an electrophysiology study the end of this month. I understand that this study does nothing for the other conditions I have. I am curious as to what happens next? I’m on a boat load of meds, and not that interested in adding to that menu. Does anyone else have similar combinations of heart conditions, and how are they being treated. Thanks for any advice.

Except for the vtach im not sure what the other conditions are. But i dod have pretty severe Vtach for many uears prior to my transplant. For me ablations worked for the first few years but as i progressed towards the end they couldn't find anyway to keep my old heart going. At the end they tried a series of 5 ablations (over the 10 years i had about 10 ablations) and i was on Solitol, Mexilitine, and amiodarone. But i became toxic to the Amio and thats was the finial straw i needed a new heart. So ill try to answer any questions i can on VT .

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The electrophysiology study attempts to locate what's causing the tachycardia. Many times it can lead to ablation to correct the problem. And in many cases, after ablation, one can eliminate or reduce dosage of medicines.

Liked by danab

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It would be great if I could eliminate a few of the meds I currently take. My next concern, if this study works, is what to do about the apical hypertrophic cardiomyopathy and myocardial bridging that I also have. I'm definitely in a wait and see time line.

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In a previous thread, I mentioned that I have several things wrong with my heart…Ventricular Tachycardia, Apical Hypertrophic Cardiomyopathy, and Myocardial Bridging. I have had a years worth of tests, procedures, and medications revolving around the arterial, pulmonary, and electrical phases of the heart with no definite diagnosis. So, I am wondering what's next???

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@ch665296f

In a previous thread, I mentioned that I have several things wrong with my heart…Ventricular Tachycardia, Apical Hypertrophic Cardiomyopathy, and Myocardial Bridging. I have had a years worth of tests, procedures, and medications revolving around the arterial, pulmonary, and electrical phases of the heart with no definite diagnosis. So, I am wondering what's next???

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Hi @ch665296f, I moved your message to your earlier discussion so that people could read more of your story to help with your question "What next?"
Have you seen a cardiologist who specializes in Hypertrophic Cardiomyopathy (HCM)? Members of the HCM group without exception recommend seeing someone who specializes in this condition. Please see the discussions in this group:
– Hypertrophic Cardiomyopathy (HCM) https://connect.mayoclinic.org/group/hypertrophic-cardiomyopathy-hcm/

PS: I also added your discussion the HCM group. I'm hoping members like @cynaburst @timdines and @Sensation might have thoughts to add.

In the meantime, you might also be interested in this discussion and video presentation:
– Apical Cardiomyopathy https://connect.mayoclinic.org/discussion/apical-cardiomyopathy/
– Video Q&A about Hypertrophic Cardiomyopathy & Surgical Treatment Apical Myectomy https://connect.mayoclinic.org/webinar/hypertrophic-cardiomyopathy-and-the-surgical-treatment-apical-myectomy/

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Hi @ch665296f,

I was wondering if you’d be interested in reading about the Hypertrophic Cardiomyopathy Clinic at Mayo Clinic – https://www.mayoclinic.org/departments-centers/hypertrophic-cardiomyopathy-clinic/overview/ovc-20442502

Mayo Clinic Cardiologists trained in diagnosis and treatment of hypertrophic cardiomyopathy will provide you with a comprehensive assessment and conduct diagnostic tests to determine the most appropriate therapy for you.
A multidisciplinary team of specialists in cardiovascular diseases, heart surgery (cardiovascular surgery), hereditary conditions (genetics) and other areas collaborate to provide you with coordinated care. If you need a consultation for a related medical condition, doctors from many areas can be brought together to examine your condition.

Dennis, I think most of us would do without meds if given the option, but sometimes they are necessary – have you considered getting a second opinion?

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