Long COVID exists for 5+ years: Share what has or not worked for you

Posted by chuckstran @chuckstran, Oct 6, 2025

It is out of my skepticism and disillusioment that I have pro-actively sought the truth, and found much of it elsewhere than in conventional medicine's approach to dealing with my own long COVID.

That's what led me to this board, where I have learned much and have contributed what I can.

The medical community has been dealing with long COVID for five long years.

Isn't that long enough for treating brain fog and post-exertion fatigue with amped-up doses of creatine and L-glutamie to become widespread?

Isn't that long enough for using NAC, guiafeninsen, and/or mullien to combat the respiratory effects of long COVID to become widespread?

Are we left to trust our altruistic philathropic benefactors, such as Bill Gates, to back away from his moneychanging tables at Moderna and let us in on what is readily at hand that works? Or do big pharma, in league with power politics, have too big a grip on our healthcare?

My personal care physician is a good man, a good doc, and is doing the best he can. But even he and those like him have a big patch of tall weeds to find their way through, in searching for the truth which they in turn attempt to deliver to us. And he and others like him, along with some of us, have reason for our skepticism.

But in our skepticism we must press on, encourage one another, share what works and what doesn't, verify what is successful - and then trust.

Be strong, and of good courage. God has not forgotten us. Trust Him, hope in Him, and press on.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

pattig09 | @pattig09 | May 5 2:13pm

In reply to @greenshade "@pattig09 Interesting but I'm confused. You speak of using the patches but then of taking capsules...." + (show)

@greenshade Glutathione Patches are expensive but when applied at the location of injury or damage can help healing. I used them during my healing from knee surgery about 10 years ago. They really worked. I now use the capsules of Glutathione made from the amino acids glycine, cysteine, and glutamic acid. Normally it is produced by the liver, but mine stopped when damaged by the spike protein. Dose would come from your medical professional based on testing of liver functions and/or T-Cell functions. Some doctors put patients on IV dosing but stop after 2 months. I am in the period of monitoring at this 6 month point, still on it and improvements in liver support of my systems has improved. Not perfect but improved.

greenshade | @greenshade | May 5 3:14pm

In reply to @pattig09 "@greenshade Glutathione Patches are expensive but when applied at the location of injury or damage can..." + (show)

@pattig09 Thank you. I just ordered capsules and will give them a try.

vostie | @vostie | May 5 3:24pm

In reply to @greenshade "@vostie I was on low dose naltrexone for a time but the prescribing physician would not..." + (show)

@greenshade I would try another doctor if they would not let you continue low dose naltrexone. Lots of long covid folk have been on it for over 1 year and I am approaching two. There are tons of studies showing its safety and its good effects on long covid symptoms.

I also could not do keto/low carb initially with the long covid symptoms. After 6 months on naltrexone, I am much more successful and only have a cheat day every few weeks. And boy does the next day hurt!!!

greenshade | @greenshade | May 5 4:22pm

In reply to @vostie "@greenshade I would try another doctor if they would not let you continue low dose naltrexone...." + (show)

@vostie Thank you. I need to do some research into naltrexone.

greenshade | @greenshade | May 5 9:12pm

In reply to @vostie "@greenshade I would try another doctor if they would not let you continue low dose naltrexone...." + (show)

@vostie You encouraged me to ask my primary for the low dose naltrexone prescription and he has, in fact, ordered it. Thanks for giving me a little push in the right direction!

h2998sc | @h2998sc | May 6 8:25am

In reply to @truwomandi "I find it very disheartening that the medical profession seems so clueless and we keep going..." + (show)

@truwomandi Hang in there.I'm 72.
5 years long covid.Went the supplement route with mine.I'm virtually well.At least NOTHING like before.No clinics.Thankfully.I was 170 something lbs before covid.Now at 135 to 140.Been this way for 4+ years.Appetite not like before.Been getting on the treadmill here at home...for my legs and lungs.
Stay hopeful.

truwomandi | @truwomandi | May 6 11:37am

In reply to @h2998sc "@truwomandi Hang in there.I'm 72. 5 years long covid.Went the supplement route with mine.I'm virtually well.At..." + (show)

@h2998sc Please tell me about your supplements. Also, where did you get the picture of my cat Ben? LOL It's not my sneaker though.

h2998sc | @h2998sc | May 6 12:40pm

You sure Ben's in the house?This isn't my cat....(LOL).
Supplements.Moderate list...I watched Dr. Paul Anderson on yt for the last 3 something years...mainly when I was at my worst.Not putting you off...I watched ALL the videos of his concerning Covid,and long covid.I really don't think most people realize just what's going wrong,and what's been damaged.It isn't simple.It isn't 'one size fits all'.I'd say check out a few of his Videos.Listen to his credentials.He's no quack...tell ya that.If I hadn't found him to open up options IDK where I'd be right now.Seriously.God Bless you ...

jack1724 | @jack1724 | May 7 5:50pm

Nothing has worked for me. I have extreme fatigue for a week or two then it abates. Then one day it returns with no advance notice.

greenshade | @greenshade | May 7 6:28pm

In reply to @jack1724 "Nothing has worked for me. I have extreme fatigue for a week or two then it..." + (show)

@jack1724 Oh, I'm so sorry. I have fatigue also, comes and goes. Usually it comes if I have overexerted myself. It's such a delicate balance. My primary has just ordered Low Dose Naltrexone for me. I was on it four or more years ago after I first was diagnosed with LC. It helped with the fatigue. Not a complete fix, but it did help. But it was discontinued because, at the time, it was considered experimental and its efficacy was based on anecdotal evidence. Now there are several published studies (double blind with placebos) showing that it does help around 75% of LC patients to rein in their fatigue. I will begin taking it as soon as it arrives, probably by next Monday.

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