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Long COVID exists for 5+ years: Share what has or not worked for you
It is out of my skepticism and disillusioment that I have pro-actively sought the truth, and found much of it elsewhere than in conventional medicine's approach to dealing with my own long COVID.
That's what led me to this board, where I have learned much and have contributed what I can.
The medical community has been dealing with long COVID for five long years.
Isn't that long enough for treating brain fog and post-exertion fatigue with amped-up doses of creatine and L-glutamie to become widespread?
Isn't that long enough for using NAC, guiafeninsen, and/or mullien to combat the respiratory effects of long COVID to become widespread?
Are we left to trust our altruistic philathropic benefactors, such as Bill Gates, to back away from his moneychanging tables at Moderna and let us in on what is readily at hand that works? Or do big pharma, in league with power politics, have too big a grip on our healthcare?
My personal care physician is a good man, a good doc, and is doing the best he can. But even he and those like him have a big patch of tall weeds to find their way through, in searching for the truth which they in turn attempt to deliver to us. And he and others like him, along with some of us, have reason for our skepticism.
But in our skepticism we must press on, encourage one another, share what works and what doesn't, verify what is successful - and then trust.
Be strong, and of good courage. God has not forgotten us. Trust Him, hope in Him, and press on.
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@h2998sc Please tell me about your supplements. Also, where did you get the picture of my cat Ben? LOL It's not my sneaker though.
You sure Ben's in the house?This isn't my cat....(LOL).
Supplements.Moderate list...I watched Dr. Paul Anderson on yt for the last 3 something years...mainly when I was at my worst.Not putting you off...I watched ALL the videos of his concerning Covid,and long covid.I really don't think most people realize just what's going wrong,and what's been damaged.It isn't simple.It isn't 'one size fits all'.I'd say check out a few of his Videos.Listen to his credentials.He's no quack...tell ya that.If I hadn't found him to open up options IDK where I'd be right now.Seriously.God Bless you ...
Nothing has worked for me. I have extreme fatigue for a week or two then it abates. Then one day it returns with no advance notice.
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1 Reaction@jack1724 Oh, I'm so sorry. I have fatigue also, comes and goes. Usually it comes if I have overexerted myself. It's such a delicate balance. My primary has just ordered Low Dose Naltrexone for me. I was on it four or more years ago after I first was diagnosed with LC. It helped with the fatigue. Not a complete fix, but it did help. But it was discontinued because, at the time, it was considered experimental and its efficacy was based on anecdotal evidence. Now there are several published studies (double blind with placebos) showing that it does help around 75% of LC patients to rein in their fatigue. I will begin taking it as soon as it arrives, probably by next Monday.
Thank you Greenshade. A large part of my problem is low calcium. I have been taking
Urea, but they want me to try Tolvaptan (unfortunataly this med has a $1000 co-pay from the pharmacy). I am tgrying to get this med thru the VA Health System and they are hesitating on providing it. I will talk with my physician on the 14th of May and mention this to her.
Hoping your Naltrexone arrives today and provides a more fun weekend for you.
Jack
@jack1724 Ask your doctor about hydrochlorothiazide. It is a hypertensive medication but in low doses (I'm on 12.5 mg tablets x 1 daily) it helps the body to assimilate calcium (I had bone density loss). Taking calcium supplements carries a risk of heart damage (ask your doctor about it in your situation, if it is a danger). It's best to get calcium in your diet, if possible. Finally, if you can't get the VA to provide Tolvaptan, look into Canadian pharmacies. They often have drugs at far lower pricing than in the US. You simply provide them with the prescriptiion and they mail them to you. Here is a link to one such company with a generic Tolvaptan at a much lower price: https://www.canadianpharmacyworld.com/drug/Samsca
@greenshade Yes, I hear you. My last booster set me back months. In fact, I don't think I have ever fully recovered from it. I'm not as well as I had been prior to the booster. And, yes, up and down with the fatigue. My primary just ordered low dose naltrexone. I had taken it years ago when first diagnosed with LC and it did help with the fatigue. But at the end of that trial, they would not renew it. Now there are several published studies showing it helps some LC patients with their fatigue so they are willing to prescribe it on an ongoing basis. I will start it soon and hope to see positive results. Best to you!
@jack1724 My bad I wrote low calcium I meant low sodium. My appologies,
A lot of good ideas here but I experience fatigue just thinking of the logistics to make it practical...!
Has anyone taken either Acetazolamide, Methazolamide or Cellebrex for post covid vaccine adverse effects? If yes, has it helped or resolve your symptoms?
Thanks