Long COVID exists for 5+ years: Share what has or not worked for you

Posted by chuckstran @chuckstran, Oct 6, 2025

It is out of my skepticism and disillusioment that I have pro-actively sought the truth, and found much of it elsewhere than in conventional medicine's approach to dealing with my own long COVID.

That's what led me to this board, where I have learned much and have contributed what I can.

The medical community has been dealing with long COVID for five long years.

Isn't that long enough for treating brain fog and post-exertion fatigue with amped-up doses of creatine and L-glutamie to become widespread?

Isn't that long enough for using NAC, guiafeninsen, and/or mullien to combat the respiratory effects of long COVID to become widespread?

Are we left to trust our altruistic philathropic benefactors, such as Bill Gates, to back away from his moneychanging tables at Moderna and let us in on what is readily at hand that works? Or do big pharma, in league with power politics, have too big a grip on our healthcare?

My personal care physician is a good man, a good doc, and is doing the best he can. But even he and those like him have a big patch of tall weeds to find their way through, in searching for the truth which they in turn attempt to deliver to us. And he and others like him, along with some of us, have reason for our skepticism.

But in our skepticism we must press on, encourage one another, share what works and what doesn't, verify what is successful - and then trust.

Be strong, and of good courage. God has not forgotten us. Trust Him, hope in Him, and press on.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for pattig09 @pattig09

@greenshade I might suggest one more supplement. Years ago I had used glutathione patches after knee surgery to assist with muscle healing with great success but these get expensive over time. Glutathione worked as an option to reduce pain my lower body joints and muscles, so I understood when my doctor said I should try the patches because the fat cells in my body were likely storage containers for the fragments of spike proteins (diagnosed with first ever 'fatty liver' without the normal causations of liquor use and blood lipids). My T-Cells (CD-8) had been nearly depleted by the spike protein and this stopped the normal purging process for dead cell fragment elimination by the liver. When the liver could not handle removal, fragments were then being stored throughout my body. It's been 6 months, one capsule first thing in the morning prior to eating anything with 12 ounces of distilled water. I have improved to the point where I no longer feel like my lower body had been run over by a truck on a daily basis.

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@pattig09 Interesting but I'm confused. You speak of using the patches but then of taking capsules. So are you taking the capsules now and, if so, could you share the brand and dosage? Thanks.

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Profile picture for vostie @vostie

DIDN'T WORK - I unsuccessfully tried an antiviral for three weeks. Did nothing at all for me. I tried the nicotine patch and it made me full of anxiety which did not help...even in a low dose. In people who can take it, it can block the ACE receptor which prevents any remaining spike particles from attaching.

DID WORK - Extreme pacing and low dose naltrexone has worked miracles. The keto/low carb diet really improves by joint pain and inflammation as it keeps me off all of the foods I am now allergic to - THANKS COVID! And I can now lose weight again which is a blessing.

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@vostie I was on low dose naltrexone for a time but the prescribing physician would not renew, saying it was not intended for extended use. I do think it helped me somewhat. I've tried the keto low carb diet in the past but didn't work well for me. I'm not vegetarian but have never been heavy on animal proteins which is the key to this diet. We're all different!

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Profile picture for shashig @shashig

@greenshade The AIDS comparison is apt...maybe it will likewise take radical action by folks like us to move the bus on LC. With thousands of doctors and a couple of big-name celebrities joining the movement! LC Act Up!! As I said, rant away. This is the place and the audience. Have a very good day....

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@shashig At 77 and with LC fatigue, my proactive protesting days are past! We could certainly use some big name celebrity to step up to the plate like Elizabeth Taylor did for the AIDS cause.

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Profile picture for greenshade @greenshade

@pattig09 Interesting but I'm confused. You speak of using the patches but then of taking capsules. So are you taking the capsules now and, if so, could you share the brand and dosage? Thanks.

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@greenshade Glutathione Patches are expensive but when applied at the location of injury or damage can help healing. I used them during my healing from knee surgery about 10 years ago. They really worked. I now use the capsules of Glutathione made from the amino acids glycine, cysteine, and glutamic acid. Normally it is produced by the liver, but mine stopped when damaged by the spike protein. Dose would come from your medical professional based on testing of liver functions and/or T-Cell functions. Some doctors put patients on IV dosing but stop after 2 months. I am in the period of monitoring at this 6 month point, still on it and improvements in liver support of my systems has improved. Not perfect but improved.

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Profile picture for pattig09 @pattig09

@greenshade Glutathione Patches are expensive but when applied at the location of injury or damage can help healing. I used them during my healing from knee surgery about 10 years ago. They really worked. I now use the capsules of Glutathione made from the amino acids glycine, cysteine, and glutamic acid. Normally it is produced by the liver, but mine stopped when damaged by the spike protein. Dose would come from your medical professional based on testing of liver functions and/or T-Cell functions. Some doctors put patients on IV dosing but stop after 2 months. I am in the period of monitoring at this 6 month point, still on it and improvements in liver support of my systems has improved. Not perfect but improved.

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@pattig09 Thank you. I just ordered capsules and will give them a try.

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Profile picture for greenshade @greenshade

@vostie I was on low dose naltrexone for a time but the prescribing physician would not renew, saying it was not intended for extended use. I do think it helped me somewhat. I've tried the keto low carb diet in the past but didn't work well for me. I'm not vegetarian but have never been heavy on animal proteins which is the key to this diet. We're all different!

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@greenshade I would try another doctor if they would not let you continue low dose naltrexone. Lots of long covid folk have been on it for over 1 year and I am approaching two. There are tons of studies showing its safety and its good effects on long covid symptoms.

I also could not do keto/low carb initially with the long covid symptoms. After 6 months on naltrexone, I am much more successful and only have a cheat day every few weeks. And boy does the next day hurt!!!

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Profile picture for shashig @shashig

@greenshade The AIDS comparison is apt...maybe it will likewise take radical action by folks like us to move the bus on LC. With thousands of doctors and a couple of big-name celebrities joining the movement! LC Act Up!! As I said, rant away. This is the place and the audience. Have a very good day....

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@shashig A member was good enough to suggest The Sick Times...an excellent, informative site. Here's some of what we're up against -- ignorance, disbelief, egotism, lack of scientific rigor... https://thesicktimes.org/2026/05/05/long-covid-advocates-demand-biological-research-at-a-conference-in-paris/

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Profile picture for vostie @vostie

@greenshade I would try another doctor if they would not let you continue low dose naltrexone. Lots of long covid folk have been on it for over 1 year and I am approaching two. There are tons of studies showing its safety and its good effects on long covid symptoms.

I also could not do keto/low carb initially with the long covid symptoms. After 6 months on naltrexone, I am much more successful and only have a cheat day every few weeks. And boy does the next day hurt!!!

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@vostie Thank you. I need to do some research into naltrexone.

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Profile picture for vostie @vostie

@greenshade I would try another doctor if they would not let you continue low dose naltrexone. Lots of long covid folk have been on it for over 1 year and I am approaching two. There are tons of studies showing its safety and its good effects on long covid symptoms.

I also could not do keto/low carb initially with the long covid symptoms. After 6 months on naltrexone, I am much more successful and only have a cheat day every few weeks. And boy does the next day hurt!!!

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@vostie You encouraged me to ask my primary for the low dose naltrexone prescription and he has, in fact, ordered it. Thanks for giving me a little push in the right direction!

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Profile picture for truwomandi @truwomandi

I find it very disheartening that the medical profession seems so clueless and we keep going on and on with all these symptoms. I have been complaining for a few years about weakness, loss of balance, loss of stamina. I feel like they think I am too old (83) to worry about it, but before covid I was very active. Now I am using a walker. Should I be depressed? Hell yes! I can't even walk to the mailbox.

Like others, I keep getting sent from one specialist to another and the copays are adding up and my hope is going down.

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@truwomandi Hang in there.I'm 72.
5 years long covid.Went the supplement route with mine.I'm virtually well.At least NOTHING like before.No clinics.Thankfully.I was 170 something lbs before covid.Now at 135 to 140.Been this way for 4+ years.Appetite not like before.Been getting on the treadmill here at home...for my legs and lungs.
Stay hopeful.

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