1. < Autoimmune Diseases

lnterstital diagnosis can this be a part of autoimmune diseases?

Posted by peach414144 @peach414144, Jul 21, 2017

seems like this (interstitial) could be a way of transmitting to the entire body. (i am a layman making a guess.) with all my other diseases i had been diagnosed with interstitial many years age. who can remember with everything else! at the time of the diagnosis i was being diagnosed with copd, sleep apnea , cpap, oxygen and restless leg syndrome. then came the rheumatoid and psa diagnosis (even though i have had the symptoms most of my life). and of course diabetes, high blood pressure, heart beat irregularities, stage 3 kidney, macular degeneration, glaucoma, sjogrens and if i look at my medications i am sure i can find other diagnosis. (i am a walking pill) and after all this, if a have a small mental issue do you think i will reveal it? i don't know how i handle all of this. perhaps personality comes into play? yes, i do suffer with pain, have depression anxieties and all the rest.
i am waiting for the day the doctors will take the word practice out of their title.

when i look at all this in another way: IT COULD BE WORSE. we all know that their are many other debilitating conditions . and after all this, i am still in pain, but ALIVE. and I do love you ALL. from one of us suffering souls.

it would be interesting to hear from you about this subject.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Jul 22, 2017
In reply to @johnbishop "Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through..." + (show)
@johnbishop

Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through so much. It can sometimes be tough handling what life throws at you. and I do like your positive attitude. I really think that it makes a big difference how we react to what happens in life which is not always easy. Just sharing your story here is helping others with similar health struggles know you are not alone. I had to look up interstitial and still not sure what it is other than I think that health wise it's related to tissues of organs.

Me, I just take it one day at a time for my struggles with PMR, carpal tunnel, high blood pressure, small fiber peripheral neuropathy and a wife that makes it all worth while. When I started my research for something to help with the numbness in my legs and feet for the PN, I found Connect and through Connect I found other things that have helped on my journey. One big one that I've always struggled with is eating healthy and after many years with Weight Watchers I decided I'm the one that has to change and started down the road of changing my lifestyle when it comes to food - going from living to eat to eating to live. It has helped with my blood pressure and my pre-diabetes - if there is such a thing - I always have that argument with my primary care docs.

Hoping others jump in and offer some interesting conversation that helps!

John

Jump to this post

Hi Roland - yes the humidity seems to play a big role for me and others. I notice it more after we've had some rain and it gets hot and humid. I have a little more aches and pains in my shoulders, arms and hands. Also a little stiffer walking around.

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Jul 22, 2017
In reply to @peach414144 "at the age of 80 you must remember that this was about 25 years age so..." + (show)
@peach414144

at the age of 80 you must remember that this was about 25 years age so memory can be hazy. the doctor was referring to my lungs at this period of time. i am not a doctor nor an expert but i was told that in-between everything there is something. hence the interstitial. i must look this up again on google or wherever. i could be so wrong. must look this up again. my proposition is that if the interstitial is everywhere, then it can affect everything within the body especially i if there is an infection in the interstitial. this is just an old age mind reflecting on life. should have gone further in school studying in this field. just a dream of another generation.

Jump to this post

@peach414144, at 74 I'm not too far behind you ☺. I have to admit I was confused by the term interstitial. Our friend Merriam-Webster gave me a better understanding along with your explanation.

https://www.merriam-webster.com/dictionary/interstitial

I'm most definitely not a medical expert either. I resemble that old saying - "If I knew I was going to live this long, I would have taken better care of myself." No turning back now. Just have to learn as much as you can, make better lifestyle choices and take one day at a time.

Psst...you can still learn by keeping your mind active and doing your own research. It's not as hard as it seems.

REPLY
rolandhp | @rolandhp | Jul 22, 2017
In reply to @johnbishop "Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through..." + (show)
@johnbishop

Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through so much. It can sometimes be tough handling what life throws at you. and I do like your positive attitude. I really think that it makes a big difference how we react to what happens in life which is not always easy. Just sharing your story here is helping others with similar health struggles know you are not alone. I had to look up interstitial and still not sure what it is other than I think that health wise it's related to tissues of organs.

Me, I just take it one day at a time for my struggles with PMR, carpal tunnel, high blood pressure, small fiber peripheral neuropathy and a wife that makes it all worth while. When I started my research for something to help with the numbness in my legs and feet for the PN, I found Connect and through Connect I found other things that have helped on my journey. One big one that I've always struggled with is eating healthy and after many years with Weight Watchers I decided I'm the one that has to change and started down the road of changing my lifestyle when it comes to food - going from living to eat to eating to live. It has helped with my blood pressure and my pre-diabetes - if there is such a thing - I always have that argument with my primary care docs.

Hoping others jump in and offer some interesting conversation that helps!

John

Jump to this post

Thanks John I thought it was just me I also am experiencing a little stiffness walking. For the last couple of week I have had a difficult time riding my bike because of the aching joints in my wrist rode vibration really makes them hurt more I cannot decrease the air pressure in my tires I run 100 lbs so I suffer or don't ride. Thanks for the info.

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 22, 2017
In reply to @johnbishop "Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through..." + (show)
@johnbishop

Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through so much. It can sometimes be tough handling what life throws at you. and I do like your positive attitude. I really think that it makes a big difference how we react to what happens in life which is not always easy. Just sharing your story here is helping others with similar health struggles know you are not alone. I had to look up interstitial and still not sure what it is other than I think that health wise it's related to tissues of organs.

Me, I just take it one day at a time for my struggles with PMR, carpal tunnel, high blood pressure, small fiber peripheral neuropathy and a wife that makes it all worth while. When I started my research for something to help with the numbness in my legs and feet for the PN, I found Connect and through Connect I found other things that have helped on my journey. One big one that I've always struggled with is eating healthy and after many years with Weight Watchers I decided I'm the one that has to change and started down the road of changing my lifestyle when it comes to food - going from living to eat to eating to live. It has helped with my blood pressure and my pre-diabetes - if there is such a thing - I always have that argument with my primary care docs.

Hoping others jump in and offer some interesting conversation that helps!

John

Jump to this post

@peach414144 What a great sounding soup - and so easy. Thanks for sharing that with us! Teresa

REPLY
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Jul 22, 2017

Hi @peach414144,

I'm tagging @oldkarl @brie87144 @dogmamat @soitis4590 @lisabeans @cmtg @larsona10 @blindeyepug @techi, as I bet they can relate with this conversation.

REPLY
peach414144 | @peach414144 | Jul 22, 2017
In reply to @johnbishop "Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through..." + (show)
@johnbishop

Hello @peach414144, thank you for opening a new discussion. Sorry you have had to go through so much. It can sometimes be tough handling what life throws at you. and I do like your positive attitude. I really think that it makes a big difference how we react to what happens in life which is not always easy. Just sharing your story here is helping others with similar health struggles know you are not alone. I had to look up interstitial and still not sure what it is other than I think that health wise it's related to tissues of organs.

Me, I just take it one day at a time for my struggles with PMR, carpal tunnel, high blood pressure, small fiber peripheral neuropathy and a wife that makes it all worth while. When I started my research for something to help with the numbness in my legs and feet for the PN, I found Connect and through Connect I found other things that have helped on my journey. One big one that I've always struggled with is eating healthy and after many years with Weight Watchers I decided I'm the one that has to change and started down the road of changing my lifestyle when it comes to food - going from living to eat to eating to live. It has helped with my blood pressure and my pre-diabetes - if there is such a thing - I always have that argument with my primary care docs.

Hoping others jump in and offer some interesting conversation that helps!

John

Jump to this post

i have not thought of the humidity factor. now i will watch and gauge it for results. thanks for that. maybe turning the thermostat to a degree that will take more of the humidity out. i have been keeping the house warmer to save on electric but now not to suffer any more than is necessary.

REPLY
View MoreView Less
Please sign in or register to post a reply.