Living with Neuropathy - Welcome to the group

Thank you for responding and sharing.
Pursuing counseling and bought a gym membership solely for winter and treadmill. It’s a beginning. I like the protein powder idea.

Thank you. I look forward to learning more what others may be doing to relieve their Neuropathy symptoms. I generally have no pain as yet, but do experience numbness in both feet and some in my hands/finger tips. I have type 2 diabetes which is responsible for my neuropathy. I would love to get some level of relief in my feet.

Kevin

What brand Creatine are you using? I work out daily and seems I have reached a plateau in weight and if I skip a few days seems I lose muscle mass. Being 68 I assume age has something to do with it, but looking for options to enhance my workouts and building muscle.

Thanks

Have you checked with loma linda University? Or any other neuropathy clinic? I have not for my neuropathy I am on intermediate dose gabapentin.

I just joined this conversation. I have been diagnosed with peripheral sensory neuropathy, small fiber neuropathy, and pudendal neuralgia. I have pain every day. I am interested in learning how others are dealing with the chronic pain.

My name is Michael and I agree. I've had idiopathic peripheral neuropathy for around 15 years (I'm 73 now). It's mostly in my right foot. I'm pretty sure mine was caused by decreased blood flow to my lower legs. I also have atherosclerosis which has forced me to have stents and finally a quadruple bypass in 2018. A vascular surgeon has performed a couple of operations trying to open up some of the blockages in my arteries in my right leg with poor results. And I have Inflammatory Bowel Disease. Nice combination, huh?

Exercise helps. I try to do a mile every other day on my treadmill and some Pilates work other days. My Dr. has given me an Rx for a topical cream that my compounding pharmacy makes that helps. It has this long name: Gaba/Keta/Clon/Amit/Lido 10/10/0.2/2/5% Active. I usually rub it on in the morning and it lasts for a few hours. I also find a TENS machine helps a little - I use it almost every evening. And some devices that squeeze and release both my calves (I'm hoping that increases the blood flow).

Other than that, I feel fine!

Have had gabapentin? I have feet and leg nerve pain. At first a hot bath would let me get to sleep,now I have had to have gabapentin to sleep.

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I saw your email today and decided to join the group immediately. I have extensive experience in self help groups and know as time passes this group will be very important to me. Briefly, I am 80 years of age and diagnosed, like John, with bilateral idiopathic neuropathy with symptoms extending well beyond medical treatment. I am not diabetic. While I think I should live in the moment each day I cannot stop worrying about what the future holds in store for me. Thank you all for being here for me and more from me later