Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Connect

Hi, i also can't walk without walker, every doctor says it can't be reversed,.
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3 ReactionsYes Creatine works well esp prevents lactic acid buildup & I used for many years. As I got older though it didn't work as well, I workout pretty hard & even 20 years ago would be building muscle with this routine, so now thats why im trying DAA. Thank you for replying I wish you well
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2 ReactionsThank you for responding and sharing.
Pursuing counseling and bought a gym membership solely for winter and treadmill. It’s a beginning. I like the protein powder idea.
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3 ReactionsThank you. I look forward to learning more what others may be doing to relieve their Neuropathy symptoms. I generally have no pain as yet, but do experience numbness in both feet and some in my hands/finger tips. I have type 2 diabetes which is responsible for my neuropathy. I would love to get some level of relief in my feet.
Kevin
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5 ReactionsWhat brand Creatine are you using? I work out daily and seems I have reached a plateau in weight and if I skip a few days seems I lose muscle mass. Being 68 I assume age has something to do with it, but looking for options to enhance my workouts and building muscle.
Thanks
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3 ReactionsHave you checked with loma linda University? Or any other neuropathy clinic? I have not for my neuropathy I am on intermediate dose gabapentin.
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2 ReactionsI just joined this conversation. I have been diagnosed with peripheral sensory neuropathy, small fiber neuropathy, and pudendal neuralgia. I have pain every day. I am interested in learning how others are dealing with the chronic pain.
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5 ReactionsMy name is Michael and I agree. I've had idiopathic peripheral neuropathy for around 15 years (I'm 73 now). It's mostly in my right foot. I'm pretty sure mine was caused by decreased blood flow to my lower legs. I also have atherosclerosis which has forced me to have stents and finally a quadruple bypass in 2018. A vascular surgeon has performed a couple of operations trying to open up some of the blockages in my arteries in my right leg with poor results. And I have Inflammatory Bowel Disease. Nice combination, huh?
Exercise helps. I try to do a mile every other day on my treadmill and some Pilates work other days. My Dr. has given me an Rx for a topical cream that my compounding pharmacy makes that helps. It has this long name: Gaba/Keta/Clon/Amit/Lido 10/10/0.2/2/5% Active. I usually rub it on in the morning and it lasts for a few hours. I also find a TENS machine helps a little - I use it almost every evening. And some devices that squeeze and release both my calves (I'm hoping that increases the blood flow).
Other than that, I feel fine!
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5 ReactionsHave had gabapentin? I have feet and leg nerve pain. At first a hot bath would let me get to sleep,now I have had to have gabapentin to sleep.
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2 ReactionsIhad badsideeffectsandIhav enopainwithmyneuropahty
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4 Reactions