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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 7 hours ago | Replies (5991)

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@ga33

I saw your email today and decided to join the group immediately. I have extensive experience in self help groups and know as time passes this group will be very important to me. Briefly, I am 80 years of age and diagnosed, like John, with bilateral idiopathic neuropathy with symptoms extending well beyond medical treatment. I am not diabetic. While I think I should live in the moment each day I cannot stop worrying about what the future holds in store for me. Thank you all for being here for me and more from me later

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Replies to "I saw your email today and decided to join the group immediately. I have extensive experience..."

I understand,I am 73 and have diabetic neuropath
I take gabapentin and think and pray about the future and how it will be here in this life. I hope that there may be a medical treatment or discovery soon. I am ok on my medication I pray it will improve or at least stay as it is.

Hi @ga33, Welcome to Connect. Glad you found this discussion. It does help to live one day at a time and enjoy it the best you can. What helps me is to stay as active as I can and learn something new everyday...sometimes that something new is something I relearned 🙃

Do you have pain with your neuropathy or is it mostly numbness like mine?

Hi I'm new here as well and I find it really helpful to converse with people that have similar problems. Everyone here seems really nice and helpful. It's a safe place and who knows maybe one of us will find a cure and share it here first lol. you never know. But people know stuff and their therapies could be helpful to you. I've found listening to Youtube, binaural beats for nerve regeneration to be helpful. Anyways welcome and keep living in the present moment and have hope.