Living Donor

Posted by fbgibbons672 @fbgibbons672, Sep 11, 2017

I am a match for my sister’s kidney transplant and will be heading to Mayo next month for evaluation. My sister has told everyone she knows about me, even refers to me as her “kidney mama”. I understand she is excited and I am as well, but now I wonder how I will feel if I don’t “pass” and she has to continue her waiting and dialysis. Its a huge responsibility and a huge honor to be able to do this, but…..

@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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Am about to be a donor and I was in Mayo clinic last month and have done all test , but they emailed me that there is some other test I need to do so I have to be in Mayo again, but I told them am having tough time coming over there again .
Then they told to get a local health provider and fax their number to them so they will order the test I will do to them .but am finding it hard to get a local health provider because I don’t have one right now .What. will i do??

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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@uchimaobi, Did you receive any contact information when you left Mayo last month? I would suggest that you give them a call about this problem. That is what I would do.
Do you have a family member, or a trusted friend nearby who might assist you with this?
Let me know what you find out.
Rosemary

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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Yes, I have the Nurse co-coordinator. Contact of kidney transplant and she told me if I get # fax number of the local health provider,, I should send it to her

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I am completing what I hope is the last of the testing here Monday. They will then send the results to Mayo. It was just easier to have these follow up tests done locally than travel back to Rochester. I don’t know for sure when I will have an answer but I am sure my living donor nurse will let me know when the committee meets and goes over my file. Our Bible Study Fellowship lesson this weekj was entitled “Cope with Hope” and that is what I am doing.

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Thank you so much for the “cope with hope” statement! Our son is headed to the Mayo next week to complete what we hope are the final tests to determine if he will be approved as my husbands living donor. We will keep everyone up to date of how things progress as they happen. In the meantime we will also “cope with hope!”

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@fauneconner

I am completing what I hope is the last of the testing here Monday. They will then send the results to Mayo. It was just easier to have these follow up tests done locally than travel back to Rochester. I don’t know for sure when I will have an answer but I am sure my living donor nurse will let me know when the committee meets and goes over my file. Our Bible Study Fellowship lesson this weekj was entitled “Cope with Hope” and that is what I am doing.

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@fauneconner – Cope and hope. Keep your faith and pray and God will do the rest.

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@grammyx4

Thank you so much for the “cope with hope” statement! Our son is headed to the Mayo next week to complete what we hope are the final tests to determine if he will be approved as my husbands living donor. We will keep everyone up to date of how things progress as they happen. In the meantime we will also “cope with hope!”

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@grammyx4, Sending prayers to accompany your son next week.
Thank you for keeping us updated. I did not ask because I did not want to intrude on your privacy if you were not comfortable to share.
Hugs,
Rosemary

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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@uchimaobi most hospitals keep a registry of the doctors accepting patients and can refer you. I think that would be a good first step.
JK

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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Thank I will check it out this week. Am in Baltimore do you anyone I can contact.

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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@uchimaobi I have no idea who to contact in Baltimore but I don’t think you can wrong if you contact Johns Hopkins.
JK

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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Thank I will be tomorrow

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@fbgibbons672, @lcamino, @fauneconner, @grammyx4, @uchimaobi, @hopeful33250, @contentandwell,

I would like to send you a personal note of “Thanks” on this week of the Thanksgiving Holiday – for promoting Living Organ Donation. You are especially in my thoughts today, because 9 years ago on this day, my name was added to the list of patients on the organ transplant waiting list. I assure you that organ donation is ‘A Gift of Life’.
I hope that you and your loved ones will be able to continue to make progress in a healing direction.

Thank you for allowing us to be a part of your journey.
Rosemary

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