Living Donor

Posted by fbgibbons672 @fbgibbons672, Sep 11, 2017

I am a match for my sister’s kidney transplant and will be heading to Mayo next month for evaluation. My sister has told everyone she knows about me, even refers to me as her “kidney mama”. I understand she is excited and I am as well, but now I wonder how I will feel if I don’t “pass” and she has to continue her waiting and dialysis. Its a huge responsibility and a huge honor to be able to do this, but…..

@fauneconner

My husband has struggled for years with high BP and it has scarred his kidneys. Now he has to keep his BP higher than normal in order for his kidneys to filter at all. It is a balancing act.

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@fauneconner – I had no idea that was what high bp for a years does. I knew it was bad for your heart but did not know it damaged your kidneys. So sorry to hear this but so glad you are willing to donate to your husband. I think you should feel positive because as long as you are healthy they can always use the paired kidney chain if you are not a match. Best of luck and keep us up to date if you want a cheering section for you and your husband.

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Thank you, Lynn. I will. Three weeks away from Rochester. Hoping for good results and that we can move forward. What is your GFR at this point? My husband’s is around 18.

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@fauneconner

Thank you, Lynn. I will. Three weeks away from Rochester. Hoping for good results and that we can move forward. What is your GFR at this point? My husband’s is around 18.

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@fauneconner – My GFR is 22. I will meet with the transplant team once it is 20 (national standard) which my nephrologist predicts will be in the next year (by the end of 2018). My disease, PKD, has a fairly predictable rate of speed of kidney failure although nothing is set in stone.

Is your husband feeling ok? I assume he is not on dialysis yet? My goal is to avoid dialysis altogether as that is ideal for the most successful kidney transplants. It sounds like you two are being proactive as well.

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Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner , I have been following some of this discussion while traveling. I plan to catch up after I get home and back to routine.
I admire you for being tested as a potential kidney donor for your husband. Myself, I have a liver and kidney from an anonymous deceased donor. There is information about the living kidney donor process on this site. You can find it in the Transplant Pages. If you need the link, I can send it when I get home.
You are in good hands at Mayo!! Great Doctors and Nurses-the Best!!
Rosemary

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner, it sounds like you are traveling to Rochester. If this is so, I encourage you to check out the Gift of Life Transplant House.
My husband and I highly recommend it.
Rosemary

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner – I wouldn’t worry about even 6 months to a year of dialysis impacting the success of a transplant. It is when someone is on dialysis for years on end that the impact is seen. My uncle had dialysis for about a year before his transplant and his lasted 20 years. I was shocked to learn that dialysis only does 10% of what your kidney does which is probably why people don’t feel very well when they must do dialysis (not to mention the time, strain on the heart etc.). You are doing the best you can!

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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Post kidney transplant, my BP is very carefully monitored, too, by my kidney team.

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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Hi @fauneconner Here is the link to the Transplant Page and blog that @rosemarya referred to https://connect.mayoclinic.org/page/transplant/ It has valuable information about being a donor.

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@fauneconner, Welcome to Mayo Connect. I apologize for the late welcome, but I have been out of town and off line. I am a liver/kidney transplant recipient. My donor was an anonymous deceased donor. His final gift, my gift of life, hade my past 8 years possible. I think that what you are doing, by stepping up to be tested as a potential donor for your own dear husband, is an act of love of the highest degree. I want you to know that I will be saying prayers for you and your husband on Oct. 9.
I think that I understand your concern. With transplant, there are many “What ifs” to be dealt with.
I am also extremely happy that you have met and connected with @lcamino. You two have a lot in common.
Rosemary

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@fbgibbons672, I want to extend my hand in a delayed hello, and Welcome to Mayo Connect. I have read the wonderful replies that you have received already. I can only imagine your sister’s excitement, and your own “fear” about the testing results.

It is my belief, that regardless of the testing results, you remain a hero, and a loving sister. I wish for the best possible results for your evaluation. Keep in mind that the whole reason for the testing is for the health of both your sister, and for you.

I want to share the following links with you about living organ donation. You might find some comfort and some similarities between you and the featured stories. You can click to open each one. Let me know if they were helpful for you.
https://connect.mayoclinic.org/newsfeed-post/meet-jolinda-grateful-living-donor-recipient/
https://connect.mayoclinic.org/newsfeed-post/kidney-paired-donation-and-the-mayo-experience/
https://connect.mayoclinic.org/newsfeed-post/meet-scott-brothers-bond-over-kidney-disease-transplant/
Please come back here, and let us know how your Mayo visit goes.
and
Let me know if I can be of help to you or your sister, anytime.
Rosemary

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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Thank you so much for all of this great information! My husband is in need of a kidney transplant and has already been tested and approved for the surgery. Our son is in the process of being tested to be a live donor for my husband. He has passed the blood tests and is scheduled for the final evaluations and tests the week of November 15th. My question is, is there a certain waiting time after all is approved for the surgery to happen? We’d love for surgery to be before the end of the year, but not sure if that is feasible? Any info would be greatly appreciated!

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