Living Donor

Posted by fbgibbons672 @fbgibbons672, Sep 11, 2017

I am a match for my sister’s kidney transplant and will be heading to Mayo next month for evaluation. My sister has told everyone she knows about me, even refers to me as her “kidney mama”. I understand she is excited and I am as well, but now I wonder how I will feel if I don’t “pass” and she has to continue her waiting and dialysis. Its a huge responsibility and a huge honor to be able to do this, but…..

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner , I have been following some of this discussion while traveling. I plan to catch up after I get home and back to routine.
I admire you for being tested as a potential kidney donor for your husband. Myself, I have a liver and kidney from an anonymous deceased donor. There is information about the living kidney donor process on this site. You can find it in the Transplant Pages. If you need the link, I can send it when I get home.
You are in good hands at Mayo!! Great Doctors and Nurses-the Best!!
Rosemary

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner, it sounds like you are traveling to Rochester. If this is so, I encourage you to check out the Gift of Life Transplant House.
My husband and I highly recommend it.
Rosemary

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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@fauneconner – I wouldn’t worry about even 6 months to a year of dialysis impacting the success of a transplant. It is when someone is on dialysis for years on end that the impact is seen. My uncle had dialysis for about a year before his transplant and his lasted 20 years. I was shocked to learn that dialysis only does 10% of what your kidney does which is probably why people don’t feel very well when they must do dialysis (not to mention the time, strain on the heart etc.). You are doing the best you can!

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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Post kidney transplant, my BP is very carefully monitored, too, by my kidney team.

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@fauneconner

Lynn, he has had one dialysis treatment in the hospital when he got in trouble with his BP too low. We are trying to avoid that as well. He gets weekly lab work and the results are sent to his recipient nurse at Mayo so they can monitor him. Once his dropped below 20 they contacted me and asked me to come for further evaluation as a donor. So far I have just had preliminary blood work in June since I knew we were the same blood type.

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Hi @fauneconner Here is the link to the Transplant Page and blog that @rosemarya referred to https://connect.mayoclinic.org/page/transplant/ It has valuable information about being a donor.

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@fauneconner, Welcome to Mayo Connect. I apologize for the late welcome, but I have been out of town and off line. I am a liver/kidney transplant recipient. My donor was an anonymous deceased donor. His final gift, my gift of life, hade my past 8 years possible. I think that what you are doing, by stepping up to be tested as a potential donor for your own dear husband, is an act of love of the highest degree. I want you to know that I will be saying prayers for you and your husband on Oct. 9.
I think that I understand your concern. With transplant, there are many “What ifs” to be dealt with.
I am also extremely happy that you have met and connected with @lcamino. You two have a lot in common.
Rosemary

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@fbgibbons672, I want to extend my hand in a delayed hello, and Welcome to Mayo Connect. I have read the wonderful replies that you have received already. I can only imagine your sister’s excitement, and your own “fear” about the testing results.

It is my belief, that regardless of the testing results, you remain a hero, and a loving sister. I wish for the best possible results for your evaluation. Keep in mind that the whole reason for the testing is for the health of both your sister, and for you.

I want to share the following links with you about living organ donation. You might find some comfort and some similarities between you and the featured stories. You can click to open each one. Let me know if they were helpful for you.
https://connect.mayoclinic.org/newsfeed-post/meet-jolinda-grateful-living-donor-recipient/
https://connect.mayoclinic.org/newsfeed-post/kidney-paired-donation-and-the-mayo-experience/
https://connect.mayoclinic.org/newsfeed-post/meet-scott-brothers-bond-over-kidney-disease-transplant/

Please come back here, and let us know how your Mayo visit goes.
and
Let me know if I can be of help to you or your sister, anytime.
Rosemary

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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Thank you so much for all of this great information! My husband is in need of a kidney transplant and has already been tested and approved for the surgery. Our son is in the process of being tested to be a live donor for my husband. He has passed the blood tests and is scheduled for the final evaluations and tests the week of November 15th. My question is, is there a certain waiting time after all is approved for the surgery to happen? We’d love for surgery to be before the end of the year, but not sure if that is feasible? Any info would be greatly appreciated!

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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I think they told me if you have an approved living donor the surgery can be scheduled fairly soon depending on their surgery schedule. Maybe a month or so?? I am still completing a few more tests at home that the committee wanted me to do so my timeline has been slower. I spend the week of Oct 9 in Rochester doing all my donor testing. Now waiting on chest CT, pulmonary function test and a pulmonary consult based on old sarcodosis scars they saw on my chest xray. They are very thorough.

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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Thanks for your reply! That is very encouraging news and I’m sure we’ll know more in a few weeks when my son actually has his appointments with the donor transplant team. We’re all just very anxious for this surgery to happen with the hopes of a better life for my husband! Good luck on your continued journey!

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@fauneconner, I want to personally say thank you for responding to @grammyx4 with your first hand information.
I hope that your testing and results will be positive.
Rosemary

Liked by IWantToBelieve

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@grammyx4, I want to extend a welcome to you for entering this Living Donor discussion. I am happy that you have already met one of our members, and have received a firsthand account of what she is experiencing.

Have you had the opportunity to view the Mayo Clinic Living Donor Page? You will find information about living kidney donation. There is a toolkit for the recipient and for the donor, as well as other resources.
https://connect.mayoclinic.org/page/transplant/tab/resource-35/

I understand your desire to get this surgery behind you. Regardless of the timeline that works for you, I pray that everything works out for your husband and son. You have got to be proud of your son for making this decision to help your husband. He already qualifies as a hero by my definition.
Rosemary

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@grammyx4 that’s wonderful that progress is being made so quickly for your husband. You are fortunate to have such a loving son that he wants to do this for his father. I hope things will work out positively for him to be a donor.
JK

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@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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