Living Donor

Posted by fbgibbons672 @fbgibbons672, Sep 11, 2017

I am a match for my sister’s kidney transplant and will be heading to Mayo next month for evaluation. My sister has told everyone she knows about me, even refers to me as her “kidney mama”. I understand she is excited and I am as well, but now I wonder how I will feel if I don’t “pass” and she has to continue her waiting and dialysis. Its a huge responsibility and a huge honor to be able to do this, but…..

@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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I think they told me if you have an approved living donor the surgery can be scheduled fairly soon depending on their surgery schedule. Maybe a month or so?? I am still completing a few more tests at home that the committee wanted me to do so my timeline has been slower. I spend the week of Oct 9 in Rochester doing all my donor testing. Now waiting on chest CT, pulmonary function test and a pulmonary consult based on old sarcodosis scars they saw on my chest xray. They are very thorough.

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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Thanks for your reply! That is very encouraging news and I’m sure we’ll know more in a few weeks when my son actually has his appointments with the donor transplant team. We’re all just very anxious for this surgery to happen with the hopes of a better life for my husband! Good luck on your continued journey!

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@fauneconner, I want to personally say thank you for responding to @grammyx4 with your first hand information.
I hope that your testing and results will be positive.
Rosemary

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@grammyx4, I want to extend a welcome to you for entering this Living Donor discussion. I am happy that you have already met one of our members, and have received a firsthand account of what she is experiencing.

Have you had the opportunity to view the Mayo Clinic Living Donor Page? You will find information about living kidney donation. There is a toolkit for the recipient and for the donor, as well as other resources.
https://connect.mayoclinic.org/page/transplant/tab/resource-35/
I understand your desire to get this surgery behind you. Regardless of the timeline that works for you, I pray that everything works out for your husband and son. You have got to be proud of your son for making this decision to help your husband. He already qualifies as a hero by my definition.
Rosemary

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@fauneconner

I know what you are feeling. I am scheduled to go to Mayo in Rochester the week of Oct 9 for testing. I am hoping to be a donor for my husband and have all these fears about not passing. We are the same blood type so that is a plus. Just have to leave it in God’s hands and the capable people at Mayo.

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@grammyx4 that’s wonderful that progress is being made so quickly for your husband. You are fortunate to have such a loving son that he wants to do this for his father. I hope things will work out positively for him to be a donor.
JK

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@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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@fauneconner, I want to drop in and say ‘”Hi”. I am thinking of you and your husband. I pray that he is doing okay, And I pray that you are getting through the testing process in comfortable manner.
Rosemary

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@grammyx4, Sending you prayers. I hope all works out for you and your family.
Rosemary

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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Being a living donor is the best someone can do earth and am happy to be among them. It make me feel fulfil but there is some test I was asked to do , but am finding it hard to get a local health provider

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Hi, Rosemary. Thanks for asking and for your prayers. We are hanging in right now. I complete what I hope is the last of my testing this coming Monday. I am having a chest CT and a pulmonary function test, plus some more blood work I think. Then hopefully I will know if I qualify as a donor or not. My husband’s GFR has been relatively stable so that buys us time to get everything lined up.

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@rosemarya

@fbgibbons672, I want you to know that I am thinking about you and your sister. I hope that both of you are doing okay. I also hope that you have gained some support by reading what others are saying as they are going through their own unique journey with kidney donation for a loved one.

Do you have any questions for us? If you are comfortable doing so, do you have any information that you would like to share with any of our other donor patients?
Hugs,
Rosemary

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@uchimaobi, Welcome. We are happy that you have joined our discussion about Living Kidney Donation. Your opening statement is beautiful! If you have read the other entries, I think you have already met some others who are looking into the possibility.

@uchimaobi, I would like to ask you a couple questions so we can better carry on a conversation. Is that all right?
Are you already a donor, or are you looking for a way to get started on the process?

What are some questions that you would like to ask?

Rosemary

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@fauneconner

Hi, Rosemary. Thanks for asking and for your prayers. We are hanging in right now. I complete what I hope is the last of my testing this coming Monday. I am having a chest CT and a pulmonary function test, plus some more blood work I think. Then hopefully I will know if I qualify as a donor or not. My husband’s GFR has been relatively stable so that buys us time to get everything lined up.

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@fauneconner, I am so happy that your husband’s condition is relatively stable. That also makes it easier (is that possible?) for you during this already stressful situation.
I hope that your tests provide the answers that you desire. Your choice of words, “Hanging in” are a perfect description. I needed both a liver and a kidney, and I clearly understand the “hanging in” state of mind.
Is the transplant center doing the tests? Did you get any indication of how long until you will know anything about qualifying?
Rosemary

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