Lilbit Update

Posted by Errol, Volunteer Mentor @duvie, Apr 7, 2018

Hello Everyone,
For the past week she has been having soreness of her upper gums. She has Nystatin prescribed to her last year after being discharged which shortly after developed a burning mouth considered to be caused by antibiotics given to her during her stay. This past week she started using the Nystatin again and even though it seemed to help for some strange that Drs have not figured out yet, her head started burning as she described, like on fire

Early Friday morning was when she started mentioning her head burning. As she tried to sleep she would moan and eventually let out a yell, then want help to sit up. This went on for over an hour. Realizing it might be helpful to sleep on an incline and not having a hospital bed which she refused, I suggested possibly pulling a recliner into the bedroom. She agreed and went to sleep occasionally getting up to potty, I slept across the foot of the bed to be close enough to hear her if she needed help. She woke up fairly normal not complaining about her head. Still swishing the Nystatin periodically.
Getting into the evening hours and not being able to eat hardly anything including soft scrambled eggs started complaining about her burning mouth and head again. This time family was there and her moans and yells began to become frequent talked her into going to the hospital.

By the time the ambulance came she could hardly stand and slapping the side of the gurney mattress. They whisked her away to the hospital.
I arrived about 30 minutes later and wasn't much better since they hadn't given her anything for pain or anxiety yet,

They did a Cat scan but we haven't heard of anything showing up along with x-rays. I had left to go get a small fan at the house to keep her cool. When I returned I find they decided to place her on a ventilator and asked the family to wait in the waiting room. Later a nurse came and said the Dr wanted to speak to only a couple of us. The Dr informed us she had been diagnosed with heart failure and renal failure and was sedated.
Early Sat morning they moved to ICU. She is being given Amiodarone to help her heart but which is not good for the lungs, along with hydration fluids.
I just was informed that she also has a sepsis infection. Her lungs are in bad shape and respiratory therapist informed us that Lilbit may not be coming off the vent this time.

Sorry for the long detailed report but I felt maybe some of you may be able to give some information or suggestions on certain aspects of what she is going through or things I could discuss with nurses as well as Drs. Any help would be greatly appreiiated.

Liked by juani

@duvie Errol, It's been crazy busy for me last few days. I want you to know that even though I've been silent and will be silent for the next several days, that you and Lilbit have my prayers.
Rosemary

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Hi Errol @duvie
Ready for another cup of coffee? Thinking of you and Lilbit.

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Hi Errol @duvie, I'm also with Colleen and others that are thinking of you and Lilbit…and wishing we could have a cup of coffee together.

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Hi Errol @duvie I'd like to add my sentiments to what Colleen, John and Rosemary have said. I wish you well during this difficult time.

Teresa

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My sister keeps me busy but I do keep up with your posts and pray for you and Lilbit daily.

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Hello Everyone, Sorry but I been putting it off. Lilbit passed away due to Drs with very little hope. Kept telling family she was not strong enough for dialysis.
Weak heart, lungs, and liver trouble. It's been hard on everyone. Daughter had the say-so and she decided to let her pass without pain.

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I'm so sorry to read this. I will keep your family and Lilbit in my prayers. Wishing you comfort and peace.

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Dear @duvie, my thoughts have been with you and your family. I can imagine that the decisions you had to face were very hard. I'm glad that she passed without pain and surrounded by those who love her. I wrap you with a virtual embrace and wish it could take some of your pain away. I know it doesn't but I hope it helps in some way.

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So sorry for your heart. Praying as you transition to life without her.

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@duvie

Hello Everyone, Sorry but I been putting it off. Lilbit passed away due to Drs with very little hope. Kept telling family she was not strong enough for dialysis.
Weak heart, lungs, and liver trouble. It's been hard on everyone. Daughter had the say-so and she decided to let her pass without pain.

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I am very sorry to read of your loss Errol @duvie I am sorry for your loss and hope for good memories and peace for you and your family.

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@duvie

Hello Everyone, Sorry but I been putting it off. Lilbit passed away due to Drs with very little hope. Kept telling family she was not strong enough for dialysis.
Weak heart, lungs, and liver trouble. It's been hard on everyone. Daughter had the say-so and she decided to let her pass without pain.

Jump to this post

@duvie Errol

I am so sorry for this loss, Errol. I know that you invested a lot of time, energy and most of all your caring into Lilbit's well being and you accomplished this task well. There is no doubt that Lilbit was aware of your kind support and help to her.

Be at peace and know that you were a concerned caregiver for someone who was facing a very difficult struggle.

Teresa

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@duvie

Hello Everyone, Sorry but I been putting it off. Lilbit passed away due to Drs with very little hope. Kept telling family she was not strong enough for dialysis.
Weak heart, lungs, and liver trouble. It's been hard on everyone. Daughter had the say-so and she decided to let her pass without pain.

Jump to this post

Hello Errol @duvie, I am sorry for the heaviness you feel with the loss of Lilbit. I'm also hoping you can use the good memories you have had with Lilbit to help you through this difficult time. My thoughts and prayers along with all of us here are with you and your family.

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@duvie

Hello Everyone, Sorry but I been putting it off. Lilbit passed away due to Drs with very little hope. Kept telling family she was not strong enough for dialysis.
Weak heart, lungs, and liver trouble. It's been hard on everyone. Daughter had the say-so and she decided to let her pass without pain.

Jump to this post

@duvie I'm so sorry. Prayers going up for comfort and strength for you and your family.

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@duvie

Hello Everyone, Sorry but I been putting it off. Lilbit passed away due to Drs with very little hope. Kept telling family she was not strong enough for dialysis.
Weak heart, lungs, and liver trouble. It's been hard on everyone. Daughter had the say-so and she decided to let her pass without pain.

Jump to this post

@duvie, I send my condolences to you and to all of Lilbit's loved ones during this difficult time.
Prayers for peace and for comfort to all of you.
Rosemary

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@duvie Dear Errol, I'm so very sorry for your loss. I hope you can gain strength that she passed without pain. Prayers go out to you and the entire family.

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