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Life after being a caregiver

Posted by angelicajoy21 @angelicajoy21, Apr 26 7:31am

As i read some of the post i can certainly relate to the frustration, anxiety, guilt, etc... I was a caregiver for my husband who had pancreatic cancer and lived for only 9 months. What makes me upset is people telling me how i should act/feel. I have secluded myself from them, because i didn't want to hear it. People often think they are helping but, i would rather they say nothing. I will never be the same my life is in total turmoil. Being a caregiver was the hardest job i ever had to do, and i would do it all again, through all the mood changes, anger, every time i did something he didn't like i would tell him im sorry and he would say sorry is not good enough. My children kept telling me that's not dad, he doesn't realize what he is saying. I pray often and rely on my faith but my heart is broken and who knows if it will ever heal. Thanks for listening.

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sillyblone | @sillyblone | 22 hours ago
In reply to @healthme "@sillyblone So very sorry for your loss. Prayers for you and your family. God will bring..." + (show)
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@sillyblone
So very sorry for your loss.
Prayers for you and your family. God will bring you comfort, guidance, strength and a peace to help you through it all ❤️

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@healthme Yes, I totally agree. I keep getting up thinking what was I going to make my spouse for breakfast. Reality sets in and then the tears.

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sillyblone | @sillyblone | 22 hours ago
In reply to @angelicajoy21 "@sillyblone I feel your pain deeply. I don't have any answers or suggestions. I pray all..." + (show)
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@sillyblone
I feel your pain deeply. I don't have any answers or suggestions. I pray all day and when i cant sleep im praying.
I will pray for you.

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@angelicajoy21 Thank you sweetheart. My world is so different and I am still lost for words!

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pml | @pml | 20 hours ago
In reply to @sillyblone "Hello to all the Caregivers. I have lost the love of my life to Parkinsons. He..." + (show)
Profile picture for sillyblone @sillyblone

Hello to all the Caregivers. I have lost the love of my life to Parkinsons. He transitioned this past Sunday! He fought hard. My family is devastated. I have hardly slept or have been able hardly do anything at all. Please, pray that I will be able to get myself together and do what needs to be done. Thank you Mayo Connect and all the wonderful comments and encouraging words through the years that I have been on this site as well as the Parkinsons site. Hold your love ones close and let them know frequently how much you love them. Hugs to all !!!🫂💞

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@sillyblone
I'm so sorry to hear of your loss. I know the terrible devastating feeling of such a loss. My husband died of lung cancer in 2024. You are never prepared for it. But we have to remember that our loved ones are now up in Heaven and we will eventually in God's time be reunited with them. This keeps me going from day to day. I've enjoyed your helpful contributions on this site. It was a pleasure to read them. Put everything in God's hands. He will be there for you at this time. He was for me when my husband died and God still is there for me. I will say a prayer for you also.
I wish you the best.
PML

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sillyblone | @sillyblone | 19 hours ago
In reply to @pml "@sillyblone I'm so sorry to hear of your loss. I know the terrible devastating feeling of..." + (show)
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@sillyblone
I'm so sorry to hear of your loss. I know the terrible devastating feeling of such a loss. My husband died of lung cancer in 2024. You are never prepared for it. But we have to remember that our loved ones are now up in Heaven and we will eventually in God's time be reunited with them. This keeps me going from day to day. I've enjoyed your helpful contributions on this site. It was a pleasure to read them. Put everything in God's hands. He will be there for you at this time. He was for me when my husband died and God still is there for me. I will say a prayer for you also.
I wish you the best.
PML

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@pml Thank u. You hit the nail on the head. Once my heart and head get together it can only get better. 🙂💜🫂

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