Mitral Valve & Tricuspid valve regurgitation: when to see a cardiologist?

Posted by mikkeleo @mikkeleo, Apr 6, 2016

I was just diagnosised with Mitral Valve and tricuspid insufficiency. I have had symptoms of fatigue, heart flutters, lightheadness, and one time passed out. Some discomfort in my left chest side area, sharp. Not all the time. My Dr. Told me this is common and we will recheck in 5 yrs. Im nervous to wait that long. What should i do? I cant stop thinking about this.

Thank you.
Sincerely,
Mikkeleo

I see my doctor every year for an echo and exam. I would suspect you should go that often to see if anything has changed. I would schedule a follow up now (ask your GP for a referral to a cardiologist) and ask the doc how often you should be seen.

Thanks for the help. Because of my diabetes. I see my doctor at least every six months. I will talk to him about the need for an echocardiogram the next time I see him.

anyone here with degenerative mitral valve disease & severe regurgitation have a repair without the surgeon putting an annular ring on?

I just received a copy of my op report after having my surgery a year ago and was very surprised at what I read.

1st of all, My Surgeon said YES, he put an annular ring in my heart however the Op report tells me a different story!

Per the op report, he sewed the ring in, repaired the valve, took me off bypass, restarted my heart and then did a tee test. They said they noticed ring was causing mitral stenosis so they put me back on bypass, stopped my heart again an then removed the ring.

He never told me about any of this and he flat out lied with the answer when he said Yes, I have a ring. I am a bit stunned and don’t understand why he would lie to both my husband and I about it.

Is this common to do a repair without the ring?
**Did your surgeon sew in a ring or not?

I am wondering how long my replacement will last especially if it continues to degenerate. I just changed insurance companies so I have to go see a new cardiologist so I will get a professional answer but just wondering what you all think?

UPDATE Nov 18 : Just got results of my EKG and 1 year echo and it shows that I had a small MI and I am back to having a prolapse with severe regurgitation.

We are thinking that the ring he first sewed on that caused the “Stenosis/restriction” caused a lack of blood flow to part of my heart and caused the death of that tissue. Now I am facing surgery again. Going to see a new cardiologist and will use a different surgeon. Just wondering what your thoughts are?

Hi, @rd4610, and welcome to Mayo Clinic Connect. Glad you joined us. Sounds like you’ve had some frustrating experiences along the way in getting treatment for your degenerative mitral valve disease and regurgitation.

I have moved your post over to this discussion about mitral valve and regurgitation so that you can meet some of the members here who have discussed this topic. I’d also like to introduce you to a few other members who might provide insight from their heart experiences. Please meet @bjanderson @tomonthebeach @carnes @lyndylou @frande @dave2455 @shakuni11 @ch246cf10 @lizm53 @tavrm, and volunteer mentors @hopeful33250 and @predictable. @yoanne and @punkin53 may also have some thoughts for you.

How are you feeling these days?

@rd4610

anyone here with degenerative mitral valve disease & severe regurgitation have a repair without the surgeon putting an annular ring on?

I just received a copy of my op report after having my surgery a year ago and was very surprised at what I read.

1st of all, My Surgeon said YES, he put an annular ring in my heart however the Op report tells me a different story!

Per the op report, he sewed the ring in, repaired the valve, took me off bypass, restarted my heart and then did a tee test. They said they noticed ring was causing mitral stenosis so they put me back on bypass, stopped my heart again an then removed the ring.

He never told me about any of this and he flat out lied with the answer when he said Yes, I have a ring. I am a bit stunned and don’t understand why he would lie to both my husband and I about it.

Is this common to do a repair without the ring?
**Did your surgeon sew in a ring or not?

I am wondering how long my replacement will last especially if it continues to degenerate. I just changed insurance companies so I have to go see a new cardiologist so I will get a professional answer but just wondering what you all think?

UPDATE Nov 18 : Just got results of my EKG and 1 year echo and it shows that I had a small MI and I am back to having a prolapse with severe regurgitation.

We are thinking that the ring he first sewed on that caused the “Stenosis/restriction” caused a lack of blood flow to part of my heart and caused the death of that tissue. Now I am facing surgery again. Going to see a new cardiologist and will use a different surgeon. Just wondering what your thoughts are?

Jump to this post

Hello @rd4610,

Welcome to Connect; I can imagine your frustration, and how upset you must be!

First, here’s some information about mitral valve repair from Mayo Clinic: https://www.mayoclinic.org/tests-procedures/annuloplasty/gnc-20302476
Doctors at Mayo Clinic perform the most current procedures for mitral valve repair; you can also read about Mayo Clinic’s approach, here: https://www.mayoclinic.org/tests-procedures/mitral-valve-repair-mitral-valve-replacement/details/mayo-clinic-approach/orc-20301779

There are several discussions happening on Connect about Mitral Valve prolapse and repair which you may wish to view:
– Mitral valve prolapse/regurgitation https://connect.mayoclinic.org/discussion/mitroh-valve-prolapse-regergitation/
– Mitral Valve & Tricuspid valve regurgitation: when to see a cardiologist? https://connect.mayoclinic.org/discussion/i-was-just-diagnosised-with-mitral-valve-and-tricuspid-insufficiency-i-have/
– Mitral valve repair https://connect.mayoclinic.org/discussion/i-just-joined-the-mayo-clinic-connect-and-want-to-say-hello-i/

I’d also like to introduce you to a few members in these discussion; please meet @grandmajan @mikkeleo @jannyw @sdann777 @lamborama @yoanne @petersen73 @topaz @frande and Mentor @vdouglas. I’m confident they will join in with their insights and share their experiences to help you figure things out.

@rd4610, have you asked the surgeon for an explanation? You mentioned having an MI; did you have any symptoms? We/re glad you’ve joined Connect and look forward to getting to know you better.

Hello I’m a new member here. I’m diagnosed with abnormal mitral valve anterior leaflet. large leaflet.they say heart works normal.I don’t have mitral valve prolapse and regurgitation. But I need to do echocardiogram every 3-5 years. I’m worried!! Anyone heard of this condition

Hello @bruloi and welcome to Mayo Connect. We are glad that you posted your concerns regarding your abnormal mitral valve anterior leaflet. I can understand your concern. Any problems with the heart seems especially daunting, doesn’t it?

The fact that you are fold that your heart works “normal” sounds good. Also that you only need an echocardiogram every 3-5 years also sounds encouraging.

If you feel comfortable sharing a bit more, would you mind telling us what led to this diagnosis? Was it during a routine screening or were you having symptoms? Did your doctor explain how this abnormality came about (i.e., was it genetic or a result of an illness or infection)? Are there others in your family with similar problems?

I would also like to invite others into this conversation. Please meet @bjanderson @tomonthebeach @carnes @lyndylou @frande @dave2455 @shakuni11 @ch246cf10 @lizm53 @tavrm, and volunteer mentor @predictable. These Members may also have some thoughts for you.

We look forward to getting to know you and supporting you during this time of learning and investigating. Most of us have found that the more knowledge we have about a health problem, the better we can cope with it. Please also remember that getting a second opinion. is always in your best interests where you feel a concern.

Teresa

I was diagnosed with abnormal mitral valve prominent anterior leaflet. with no mitral valve prolapse and no regurgitation. is this dangerous ?

Hi @bruloi,

Thank you for sharing your concerns in this discussion about mitral valve disorders. You will notice that I moved your earlier messages to this group as well; I did this so that the members in this group, who are following this discussion will be informed about your posts, and will hopefully return to share their insights.
In the meantime here is some information from Mayo Clinic, about mitral valve disorders, that you may wish to read:
https://www.mayoclinic.org/diseases-conditions/mitral-valve-disease/symptoms-causes/syc-20355107

@bruloi

I was diagnosed with abnormal mitral valve prominent anterior leaflet. with no mitral valve prolapse and no regurgitation. is this dangerous ?

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Hello @bruloi ,

I would like to add my welcome to Mayo Connect and I also thank you for sharing with the group. It certainly does cause a lot of worry and anxiety when a doctor tells you that something is not right with your heart, or any part of your body for that matter.

I have been living with Mitral Valve Prolapse for about 51 years, diagnosed about 40 yrs ago. My valve leaflets fold backward occasionally. This is found on my Grandmothers side of my family and in my case I believe it is a, genetic defect of connective tissue.

My symptoms are many but an irregular heart rhythm is the most bothersome. Worry and anxiety are my two biggest struggles as they only make my symptoms worse.

As a patient have been told by my cardiologist that Mitral Valve Prolapse is quite common. The severity can vary as well as the symptoms. With Mitral Valve Prolapse or MVP, as some refer to it, the valve leaflets can thicken over time.

You do not have prolapsing (folding) of the valve, on the last echo, no regurgitation (leakage), no enlargement or thickening other than a small amount affecting one of the leaflets. Your cardiologist is watching this as it should be.

With the information you have provided and based upon my experience as a patient, I would think you should have a cautious degree of concern but not worry. Follow the directives of your cardiologist and go on with life unless there is a reason to worry. I’m going to say it is no more dangerous than crossing a street or driving an automobile. These are my views based upon my experience.

How are you doing? I hope you are doing well and managing the anxiety. Best wishes to you.

Von @vdouglas

@bruloi

I was diagnosed with abnormal mitral valve prominent anterior leaflet. with no mitral valve prolapse and no regurgitation. is this dangerous ?

Jump to this post

Thank you for the advice @vdouglass. I’m doing good.

@hopeful33250

Hello @bruloi and welcome to Mayo Connect. We are glad that you posted your concerns regarding your abnormal mitral valve anterior leaflet. I can understand your concern. Any problems with the heart seems especially daunting, doesn’t it?

The fact that you are fold that your heart works “normal” sounds good. Also that you only need an echocardiogram every 3-5 years also sounds encouraging.

If you feel comfortable sharing a bit more, would you mind telling us what led to this diagnosis? Was it during a routine screening or were you having symptoms? Did your doctor explain how this abnormality came about (i.e., was it genetic or a result of an illness or infection)? Are there others in your family with similar problems?

I would also like to invite others into this conversation. Please meet @bjanderson @tomonthebeach @carnes @lyndylou @frande @dave2455 @shakuni11 @ch246cf10 @lizm53 @tavrm, and volunteer mentor @predictable. These Members may also have some thoughts for you.

We look forward to getting to know you and supporting you during this time of learning and investigating. Most of us have found that the more knowledge we have about a health problem, the better we can cope with it. Please also remember that getting a second opinion. is always in your best interests where you feel a concern.

Teresa

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Hello @hopeful33250. I was having some fast heartbeats, I did lots of ekg and they all came back normal. Doctors didn’t even wanted to schedule me an echocardiogram because they said everything looks normal. But than I said i was told I have mitral valve prolapse 10 years ago.told them I did another echocardiogram in 2015and showed no sign of prolapse.So than finally they scheduled me an echo.after the echo they said i have a larger and smaller leaflet, not normal. but that’s how the leaflets are shaped. they said doesn’t show prolapse or regurgitation.And heart works normally

@hopeful33250

Hello @bruloi and welcome to Mayo Connect. We are glad that you posted your concerns regarding your abnormal mitral valve anterior leaflet. I can understand your concern. Any problems with the heart seems especially daunting, doesn’t it?

The fact that you are fold that your heart works “normal” sounds good. Also that you only need an echocardiogram every 3-5 years also sounds encouraging.

If you feel comfortable sharing a bit more, would you mind telling us what led to this diagnosis? Was it during a routine screening or were you having symptoms? Did your doctor explain how this abnormality came about (i.e., was it genetic or a result of an illness or infection)? Are there others in your family with similar problems?

I would also like to invite others into this conversation. Please meet @bjanderson @tomonthebeach @carnes @lyndylou @frande @dave2455 @shakuni11 @ch246cf10 @lizm53 @tavrm, and volunteer mentor @predictable. These Members may also have some thoughts for you.

We look forward to getting to know you and supporting you during this time of learning and investigating. Most of us have found that the more knowledge we have about a health problem, the better we can cope with it. Please also remember that getting a second opinion. is always in your best interests where you feel a concern.

Teresa

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I don’t have any family history of this.

@hopeful33250

Hello @bruloi and welcome to Mayo Connect. We are glad that you posted your concerns regarding your abnormal mitral valve anterior leaflet. I can understand your concern. Any problems with the heart seems especially daunting, doesn’t it?

The fact that you are fold that your heart works “normal” sounds good. Also that you only need an echocardiogram every 3-5 years also sounds encouraging.

If you feel comfortable sharing a bit more, would you mind telling us what led to this diagnosis? Was it during a routine screening or were you having symptoms? Did your doctor explain how this abnormality came about (i.e., was it genetic or a result of an illness or infection)? Are there others in your family with similar problems?

I would also like to invite others into this conversation. Please meet @bjanderson @tomonthebeach @carnes @lyndylou @frande @dave2455 @shakuni11 @ch246cf10 @lizm53 @tavrm, and volunteer mentor @predictable. These Members may also have some thoughts for you.

We look forward to getting to know you and supporting you during this time of learning and investigating. Most of us have found that the more knowledge we have about a health problem, the better we can cope with it. Please also remember that getting a second opinion. is always in your best interests where you feel a concern.

Teresa

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@bruloi After reading your various posts I was wondering if you have ever consulted with a Structural Heart Specialist. These are cardiologists with specific training in valve disorders and other structural matters pertaining to the heart. You will probably find them at a large medical center (such as a medical school or a larger medical research center such as a Mayo facility). Perhaps a consult with one of these doctors would help you to know that you are on the right track with both follow up as well as treatment.

Do you live near a medical school or a large medical research center? Are you taking any meds for the rapid heartbeat?

Teresa

@bruloi

I was diagnosed with abnormal mitral valve prominent anterior leaflet. with no mitral valve prolapse and no regurgitation. is this dangerous ?

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@bruloi ,
That is good to hear that you are doing well. How did you discover that you had a fast heartbeat? Is that what led to your original diagnosis of MVP?
Von

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