Share this:
Jolynn
@ornelasrebecca

Posts: 2
Joined: Jul 06, 2017

Mitral valve prolapse/regurgitation

Posted by @ornelasrebecca, Jul 5, 2017

When at rest or walking a short distance to mail box i notice that i stop inhaling or exhaling until my brain doesn’t get oxygen i grasp for air. Could it be worse regergitation happening. I also cant talk too fast or sing like i used to 30+years ago . I just have to catch my breath.

REPLY

Hello @ornelasrebecca,

Welcome to Connect; I can imagine how worried you must be with such symptoms!

Here’s some information about mitral valve regurgitation from Mayo Clinic: http://mayocl.in/2tTFmZH

There are some additional discussions about mitral valve regurgitation and repair on Connect, where you can meet other members with similar symptoms:

Mitral Valve & Tricuspid valve regurgitation: when to see a cardiologist? http://mayocl.in/2tLbxdB
Mitral valve repair http://mayocl.in/2fSta3p
I was diagnosed with Mitral Valve Regurgitation and Pulmonary Arterial Hypertension http://mayocl.in/2tjvQO5

I’d like to introduce you to @mikkeleo @vdouglas @jannyw @sdann777 @lamborama @cyndiblaw @punkin53 @yoanne @petersen73 @redtri @topaz and @cynaburst; I’m confident that they will share their experiences and help you figure things out.

We look forward to getting to know you, @ornelasrebecca; were you recently diagnosed? Since you mentioned singing, may I ask if you were part of a group or choir?

@kanaazpereira

Hello @ornelasrebecca,

Welcome to Connect; I can imagine how worried you must be with such symptoms!

Here’s some information about mitral valve regurgitation from Mayo Clinic: http://mayocl.in/2tTFmZH

There are some additional discussions about mitral valve regurgitation and repair on Connect, where you can meet other members with similar symptoms:

Mitral Valve & Tricuspid valve regurgitation: when to see a cardiologist? http://mayocl.in/2tLbxdB
Mitral valve repair http://mayocl.in/2fSta3p
I was diagnosed with Mitral Valve Regurgitation and Pulmonary Arterial Hypertension http://mayocl.in/2tjvQO5

I’d like to introduce you to @mikkeleo @vdouglas @jannyw @sdann777 @lamborama @cyndiblaw @punkin53 @yoanne @petersen73 @redtri @topaz and @cynaburst; I’m confident that they will share their experiences and help you figure things out.

We look forward to getting to know you, @ornelasrebecca; were you recently diagnosed? Since you mentioned singing, may I ask if you were part of a group or choir?

Jump to this post

@yoanne, hi @ornelasrebecca,
why do you make a connection between a mitral valve prolapse (leading to mitral regurgation) and your respiratory problems ? did a cardiologist give you this diagnose or did you diagnose it yourself from reading?

I used to sing in a church choir , but not no more. I was diagnosed yesterday after a echo cardiovascular exam say I have pulmonary hypertension and a leaky tricupcid,valve. It’s mild but causes me issues when I walk short distances. I was born premature with a heart prolapse , heart murmur as well. Should I see a cardiovascular surgeon to fix it. I eat healthy and try to exercise in a sit ting position.

Hi @ornelasrebecca,

Thank you so much for the update. Here’s a great informational video by Dr. Frantz, director of the Mayo Pulmonary Hypertension Clinic: https://www.mayoclinic.org/diseases-conditions/pulmonary-hypertension/multimedia/pulmonary-hypertension-overview-video/vid-20112407

I encourage you to view this discussion on pulmonary hypertension in the Lung Health group on Connect: https://connect.mayoclinic.org/discussion/pulminary-hypertension/
It is an incredibly informative group; feel free to read through the posts and tag members to connect with them.

I’d also like to invite Mentors @predictable @hopeful33250 to share their thoughts about your symptoms.
@ornelasrebecca, you seem to be taking all the healthy steps required; have you asked your doctor’s opinion with regard to surgery?

Hello Jolynn @ornelasrebecca

I am sorry to hear that the changes in your health have resulted in so many changes to your lifestyle. Having to give up singing sounds like a major loss for you as it would be for many of us. As Kanaaz mentioned, I would also be interested to know what types of recommendations your doctor has suggested.

We look forward to getting to know you better and supporting you during this journey. On that note, if you don’t mind sharing a bit more about yourself, what is your age and what type of family history is there for lung and/or heart problems?

Teresa

Anyone experience the horrible symptoms associated with MVP, such as an imbalance of the autonomic nervous system?

Hi, @courtneycara19, and welcome to Mayo Clinic Connect. Sounds like the mitral valve prolapse and its symptoms have been tough.

I merged your post with this discussion about mitral valve prolapse so you could meet other members here like @ornelasrebecca and @yoanne, as well as moderator @kanaazpereira.

I also wanted you to meet some others on Connect who may have some thoughts on your mitral valve prolapse and the accompanying autonomic nervous system imbalance, like @windwalker @mikkeleo @jannyw @sdann777 @lamborama @cyndiblaw @punkin53 @yoanne @petersen73 @redtri @topaz and @cynaburst. Hoping you can all meet up here on this thread. @predictable and @hopeful33250 may also have some insights.

How is the autonomic nervous system imbalance manifesting, @courtneycara19?

@courtneycara19

Anyone experience the horrible symptoms associated with MVP, such as an imbalance of the autonomic nervous system?

Jump to this post

@courtneycara19 Hello. I too have MVP. I have had issue with it since I was 21 yrs old. So, it's been 30 yrs now. I don't know if the condition is related, but I have bad lung issues also. The MPV has been annoying at times. It causes fatigue, arrhythmia, and shortness of breath. I was put on heart meds for the SVT (super ventricular tachycardia) that helped a lot. I don't know anything about the 'autonomic' part of your question. Can you tell me more about that condition?

Please login or register to post a reply.