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TabMar
@TabMar

Posts: 2
Joined: Oct 29, 2015

I have been battling with a seizure disorder since I was 2

Posted by @TabMar, Oct 28, 2015

I have been battling with a seizure disorder since I was 2 years old – for 45 years. I had been incorrectly diagnosed throughout most of my life and being born in 1968, there wasn’t enough technology, progression, or knowledge to help me. Where I live, there isn’t any neurologists that treat adults other than one and they don’t appear to care too much. The feeling I get is that I am too old to improve my quality of life. All I know is a limited life of seizures. I want to be seizure free before I die. Can the Mayo Clinic help me please?

REPLY

Hi @TabMar, that is a long time to go incorrectly diagnosed. You are never too old to improve quality of life. Do you have a diagnosis now?

It is very easy to request an appointment at the Mayo Clinic. Go to this page http://www.mayoclinic.org/appointments where you can find phone numbers or, if you prefer, an online form. Let me know if you have any problems getting through.

In the meantime, if you want to talk to others on Connect, you can join the conversations in these groups
Brain and Nerve https://connect.mayoclinic.org/group/brain-and-nerve-diseases
Epilepsy https://connect.mayoclinic.org/group/epilepsy/

In the Epilepsy group, meet @kevinkelley who also recently joined Connect and would like to talk with someone. https://connect.mayoclinic.org/discussion/those-with-epilepsyseizures-have-you-encountered-any-brain-difficulties-because-of-that/

@colleenyoung

Hi @TabMar, that is a long time to go incorrectly diagnosed. You are never too old to improve quality of life. Do you have a diagnosis now?

It is very easy to request an appointment at the Mayo Clinic. Go to this page http://www.mayoclinic.org/appointments where you can find phone numbers or, if you prefer, an online form. Let me know if you have any problems getting through.

In the meantime, if you want to talk to others on Connect, you can join the conversations in these groups
Brain and Nerve https://connect.mayoclinic.org/group/brain-and-nerve-diseases
Epilepsy https://connect.mayoclinic.org/group/epilepsy/

In the Epilepsy group, meet @kevinkelley who also recently joined Connect and would like to talk with someone. https://connect.mayoclinic.org/discussion/those-with-epilepsyseizures-have-you-encountered-any-brain-difficulties-because-of-that/

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Hi. Thank you for the reply and information. Yes – I have a diagnosis now as Temporal Lobe Epilepsy. Once I get all my testing results from my current MD (who isn’t helping me), I will request an appointment with the Mayo Clinic. Thank you again 🙂

You’re welcome @TabMar. I also see that you’ve posted to Emily in the Epilepsy group. Having a diagnosis helps find people who may share similar experiences. See you in the group.
Colleen

@colleenyoung

You’re welcome @TabMar. I also see that you’ve posted to Emily in the Epilepsy group. Having a diagnosis helps find people who may share similar experiences. See you in the group.
Colleen

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Hi TabMar, I too have been very much so, battling with a seizure/epilepsy
disorder for a # of years and with that I have experienced a large, great
many various attempts/methods in the ‘repair… we are nearly the same age,
and the question I had for you is if you have the memory/organize
difficulty that I seem to very much have? Had a seizure this morning, seemed as a
partial grand- mal (is possible?) and today was like starting all over
again…do you experience anything like that? I have a great many things with
my epilepsy disorder that I would gladly share in a more distinctive manor
if wished or needed… let me know, thanks Kevin Kelley

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