Want to discuss prolapse bladder or any kind of prolapse

Posted by Tanglefoot @tanglefoot, Aug 2, 2015

I am looking to discuss prolapse bladder or any kind of prolapse that other ladies have experienced as well. I would also like to comment on incontinence as well. There is a lot to talk about when it comes to prolapse bladder etc and it seems to be a silent epidemic among women. If there are others out there like me, lets talk about it and I have some solutions. I am surviving prolapse bladder without surgery and I have been living with it for over ten years. I wear a support garment that is light and easy weight and fits right under my existing underwear. Don't know what you are doing or wearing, but I would like to hear from you. Thanks.
Tanglefoot

***NOTE FROM THE COMMUNITY DIRECTOR***

February, 2017.

Thanks to a Connect member, it was brought to our attention that @tanglefoot may have a vested interest in promoting the support garment "hideaway" mentioned in this discussion. Further investigation revealed that @tanglefoot is the designer and inventor of this product, and that she routinely posts on discussion forums using pseudonyms. Posting solicitations or advertisements of any kind violates Mayo Clinic Connect's Terms of Use. We have decided to leave @tanglefoot's past messages as to not interrupt the flow of conversation, but she will no longer be able to post to the community.

Colleen Young

Community Director, Mayo Clinic Connect

Interested in more discussions like this? Go to the Women's Health Support Group.

Yes @gardeningjunkie, you and I must both have interesting backyards as I hauled what we figured out was over 18000 pounds of rocks in one weekend alone to build some pathways and seating in my backyard. Not to mention I had been doing things like this for years. I also have another hernia (hiatal hernia) which I have had dating back to at least the early 2000s (at least that is when it was first detected). My urogynecologist asked me if I had any other hernias since I had no children. Women who have experienced childbirth are more prone to prolapse so they say. He said either I had tissue that tended to be somewhat elastic or easily weakened, or I had overdone the heavy lifting over time or both. Early on, I was just wanting to know the cause of my prolapse as it seemed to happen overnight and I discovered it while showering..

And everyone, please, ask questions of your doctors. Do not treat them like they should not be questioned. They should welcome patients who want to understand their conditions.

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thanks to the all the women who answered my text. all of the advice was sound and to the point. the problem is me. I have a severe anxiety disorder especially when it is body related. that is why I am thinking I don't know if I can go through it or not. I tend to panic at most bodily disorders and discomfort. I think this will be very traumatic for me. I am seeing my dr. on the 25th of march and surgery is scheduled for april 2nd. so I will have to discuss it further with him and ask all my questions at that time. will keep u posted. believe me, I am not shy about asking questions.

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@contentandwell

@sulli The main products that I am aware of are various medications that help with urinary incontinence. There is a device that is not widely available, I believe that's for fecal incontinence. For urinary incontinence, there is a device called a "sling". I knew one woman who said it was a Godsend, but others who don't feel it helped much.
I'm not sure what you mean by a "pushy experience". Could you please elaborate a bit?
Thanks.

@coralbells1 I too recently had pelvic floor physical therapy. referred by a urogynecologist at a major teaching hospital. It definitely did help, but I have not seen as much improvement as you have. I can now "hold it" better than I used to, but I still wake up numerous times a night for bathroom calls. I have fewer problems during the day, particularly "latch key incontinence", a specific type of urge incontinence.

@mslw I believe it's always a good idea to get a second opinion with someone outside of where you received the first opinion. Good advice for this and for anything where you want a second opinion.

@baxtersmom Your surgery was Sacrocolpopexy for prolapse. Am I correct in thinking that your prolapse was more than typical incontinence? I'm just trying to figure out my potential options, if I do proceed further. Thanks.
Also, I thought I was spelling your name correctly but for some reason it was not picked up by the system as it usually is.
JK

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I forgot to mention I asked for that procedure because I am older and do not intend to have any sexual activities in the future and it is supposed to be the easiest of the fixes. ggm I think it is know as a vaginectomy.

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@ggm43

thanks to the all the women who answered my text. all of the advice was sound and to the point. the problem is me. I have a severe anxiety disorder especially when it is body related. that is why I am thinking I don't know if I can go through it or not. I tend to panic at most bodily disorders and discomfort. I think this will be very traumatic for me. I am seeing my dr. on the 25th of march and surgery is scheduled for april 2nd. so I will have to discuss it further with him and ask all my questions at that time. will keep u posted. believe me, I am not shy about asking questions.

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Hi, @ggm43 - glad to hear the members in this discussion have been helpful to you.

I also wanted to point out you might check out the discussions in the Connect Depression & Anxiety group https://connect.mayoclinic.org/group/depression-anxiety/

Best of luck as you meet with your doctor and move toward surgery. I trust your doctor will walk with you through any trepidation and anxiety symptoms and provide any needed medical attention to that in this process.

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@mslw

Thank you for so much good information and advice!
I will look at WholeWoman.com and be mindful of what you wrote re: surgery if (when?) my prolapse is worse.
...think we also have some orthopedic problems in common, i.e., scoliosis and ankle issues, so I will read your posts on those subjects too.

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Hi, @mslw - you may also want to check out the Connect Bones, Joints & Muscles group https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/

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@sulli

I’m new just tonight but I would think that if there are products that would make a difference to our situations, it would be great to know that. I dont mind as long as it isn’t a pushy experience.

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Hello, @sulli - I wanted to add my welcome to Mayo Clinic Connect. Sounds understandable you are looking for what might make a difference in your situation. Wondering if you might share a little more background on yours? Do you have a bladder or other prolapse?

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@lisalucier

Hello, @sulli - I wanted to add my welcome to Mayo Clinic Connect. Sounds understandable you are looking for what might make a difference in your situation. Wondering if you might share a little more background on yours? Do you have a bladder or other prolapse?

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I have a vaginal vault prolapse. i'm age 76 and scheduled for surgery april 2, which i'm going to cancel due to severe anxiety disorder.
the procedure to be obliterative which is closing the vaginal canal. do u know of others who have had this and some who still live with the prolapse?? I do kegels everyday but I am stage 3/4. thanks for a reply. ggm

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@lisalucier

Hello, @sulli - I wanted to add my welcome to Mayo Clinic Connect. Sounds understandable you are looking for what might make a difference in your situation. Wondering if you might share a little more background on yours? Do you have a bladder or other prolapse?

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I am looking for anyone who has had previous prolapse surgery with complications of nerve damage where stitch was put!

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@pizon

Hello and thank you for asking I am 7 weeks out of the removal of the 2 eroded stiches I am better but I still feel as if I am sitting on a ball some days are worse then others I have just started back to stretching and kegals.....I wish I never had the surgery it has left me with nerve issues and pain all on the left side of my hip/pelvic area....I did 2 yrs of p/t which helped before the surgery I no longer have pelvic floor muscle spasms...the dr.'s say within 3 to 6 months I should be 80% pain free...I go to Dr. Marvel the nerve specialists in Dec so I guess time will tell .... I am just trying to live with it...all the nerve pain meds they give me make me very groggy the next day that I can't function and the inns. co will not approve lyrica so I am using herbs that take the edge off and cbd oil dose help me to sleep ... so yes I am better but still not right I guess time will tell...if you can live with your prolapse I suggest not to have the surgery

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I also have nerve damage due to nerve entrapment, hard to live with, but no one wants problem patient with previous surgery!

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@barbnelson23

I also have nerve damage due to nerve entrapment, hard to live with, but no one wants problem patient with previous surgery!

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barbnelson. haven't had surgery yet. can u explain what u mean by nerve entrapment and what kind of surgery did u have?

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