Mayo Clinic Connect
Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. 🙂
Liked by Mamacita, Volunteer Mentor, Leonard Holloway
Most dr’s and health care people recommend Calcium but I have read a most interesting book called Death by calcium by Thomas E. Levy, Md. and following his advice. Makes so much sense.
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I agree Kara , Calcium supplements should only be taken if ones serum calcium is low. Long term research shows /We know for a fact that Vitamin D replacement helps slow down or at times prevent progression of osteoporosis
Liked by Gail, Alumna Mentor
What I have read on the Mayor Clinic Connect website makes me more skeptical than ever about bone-building medications, which are expensive, inconvenient, controversial and perhaps even experimental.
I spent hundreds of dollars each year on Fosamax (even though I got the generic from Canada – since the generic had not been approved by the FDA yet). Fosamax never did what the doctor who first subscribed it said it would do. I’m just lucky I didn’t end up with a broken femur bone after being on it 8 or so years. My bones didn’t stabilize until after I stopped taking Fosamax!
Liked by lanadee
Thank you for that information. I have come to the same conclusion especially reading several different places about Calcium and the classification of drugs like Fosomax. I have been taking the generic of Fosamax, Alendronate, but no more.
After having a compression fracture of a spinal disc last January, my doctor wanted me to on Fortea. I would mean daily injections for 2 years and an out-of-pocket cost of more than $6000 over the two years. He was not happy when I said “no”. I am considering Prolia which is covered by Medicare (injections by a doctor every 6 months for 2 years) but at the end of that time, one has to go on a bisphosonate (Fosamax is in that class) or any bone density increase from Prolia is (I read) quickly lost. I really don’t know what to do.
Forteo was great for me. Built up bone mass that I didn’t have. Even the reps for the rx were impressed with my results and used them as an example. I would still be on if I could. I’ve never been told of the 2 yr limit on Prolia. I will have my 2nd shot for 2016 in Dec. and I have not been told that. I will have to ask my doctor at Mayo. Forteo was covered by my insurance.
Do you know what your density was before and after 2 years on Forteo – i.e., the percentage of improvement as a result of your treatment?
I’d have to go back in my medical records…
The injection itself is not painful as it is sub cutaneous only.
I had taken fosamax and other drugs for years and finally did the Forteo for two years. I was very happy to have some gain. The doctor I had gave me another fosamax type drug to help maintain what I had gained. He moved to another state and his replacement immediately took me off any osteoporosis drugs because I had been on them so long. After several months I went to an Endocronologist because I kept feeling an internal nudge to do so. I have lost a lot of what I had gained and am now at a scary -4. She highly recommended Prolia which I am going to start as soon as possible. I do have a tooth to be extracted and may have to wait a bit after that. I would definitely try the Forteo. I had no reations to it at all.
I have been doing a lot of research about drugs for osteoporosis and I would add this to the other information I have. It would be very helpful as not everyone has had good results from these drugs – or at least enough to compensate for the trouble and expense.
Donna, this is very helpful. Thank you so much.
I finally got a chance to quickly go thru my massive binder of medical records….Sept 1998 (back -3.8)(hip -1.7)….on Fosamax the first time…Aug 2004 after Forteo (neck .842) (spine(.760). back on 70 mg Fosamax in 2006 with an increased 3.3% right hip, 2.2% left hip and 10% spine. Both hips considered normal with slight osteopenia. 3rd year of Prolia will be complete Dec 2016.
Dolan – Was it the Forteo or Foxamax that gave you 10% improvement in the spine?
Forteo. It built up the bone mass I didn’t have. After the 2 years I went back to Fosamax 70 mg to sustain it.
Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I’m 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?
I’m taking Forteo. My last DEXA was -2.5 – I’ve had no problems with the drug. I also take 2,000 units Vitamin D a day on my doctor’s recommendation. Good luck to you.
Liked by gfournier
Thanks for your reply. I am curious as to your out-of-pocket costs. I found out that with my insurance, it would cost me a total of $6,000 over the 2-year program – at the least. The company reports that the price goes up three times a year so it would be even more.
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