Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

hello, my name is Nancy and my osteopenia went to osteoperosis in lower spine and hips and although I did not have a scan of my neck, I suspect issues there as well. My endocrinologist is working with me to find a drug plan I can afford and doesn't affect my heart and we have currently landed on Tymlos and I am waiting to change to an insurance company that covers some of the cost. Still, it will end up costing about $3k per year which is a lot and will mean sacrificing travel for the next few years. Is there anyone who has taken this drug with success? I don't mind the sacrifice if there's a real improvement. Thanks you for any advice you might have on this drug.

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@nancy69

hello, my name is Nancy and my osteopenia went to osteoperosis in lower spine and hips and although I did not have a scan of my neck, I suspect issues there as well. My endocrinologist is working with me to find a drug plan I can afford and doesn't affect my heart and we have currently landed on Tymlos and I am waiting to change to an insurance company that covers some of the cost. Still, it will end up costing about $3k per year which is a lot and will mean sacrificing travel for the next few years. Is there anyone who has taken this drug with success? I don't mind the sacrifice if there's a real improvement. Thanks you for any advice you might have on this drug.

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I had a 20% gain in my spine, going from -3.3 to -2.5, which is now borderline. I had a9% increase in hip which is more than expected.

I am sensitive to meds so started Tymlos at a low dose and ramped up so my body could get used to it. The pen has "clicks" that adjust the dose. I did 6-7 clicks most of the time and the full dose is 8. I still did very well.

The company, Radius, has a patient assistance program. There is a fairly generous income requirement. You can call Together with Tymlos for advice.

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@windyshores

I had a 20% gain in my spine, going from -3.3 to -2.5, which is now borderline. I had a9% increase in hip which is more than expected.

I am sensitive to meds so started Tymlos at a low dose and ramped up so my body could get used to it. The pen has "clicks" that adjust the dose. I did 6-7 clicks most of the time and the full dose is 8. I still did very well.

The company, Radius, has a patient assistance program. There is a fairly generous income requirement. You can call Together with Tymlos for advice.

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thank you so much for taking the time to reply. I will check out Together.

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@nancy69

thank you so much for taking the time to reply. I will check out Together.

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Together with Tymlos seems to be discontinued. The website has nurse educators only. So you have to go to the Radius Assist on the Radius site directly.

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