Mayo Clinic Connect
Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. 🙂
Liked by Mamacita, Volunteer Mentor, Chris Trout, Volunteer Mentor, Leonard, parrotqueen
@heritage1955. You are very young to have low bone density. Have you had your serum ( blood ) Calcium checked ? One disease which can cause bone loss at a young age is Hyperparathyroidism , not to be confused with the thyroid.
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Believe it or not i was diagnosed the osteo at age 19 later i had several other drs that blew me off because i was to young to have it finaly at age 36 the cause was found it is caused by having pbc if i had known earlier it could have prevented alot of issues that i have now
Liked by Colleen Young, Connect Director
U may want to see if there is any underlining cause for it i was diagnosed at age 19 drs blew me off at 36 was diagnosed with pbc once it was being treated then the rest was easier to treat
Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I’m 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?
I went that exact route six years ago (-3 ) and now have a compression fracture! I know what you mean about wanting to avoid the meds, but not sure there is a better alternative. You do not want a fracture!! I’m on my 5th month of healing with very limited activity!
Liked by Colleen Young, Connect Director, susandockter, GailBL, Volunteer Mentor, gfournier
Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.
I am trying Atelvia delayed release tablets. Been on it for one year and have not had any bad side affects.
Waiting for results on new bone scan to see if numbers stayed the same or better. It is taken after breakfast
with 4and one half ounces cold water. Stay upright for 30 minutes. This is better than others that you take on an empty
stomach and then stay upright for 30 minutes. One of my Doctors has lowered my Calcium, said it might get too
much in my blood and that would be bad. Anyone please comment Thanks
Liked by Sarah Pillsbury
Welcome to Connect @blythe.
Thank you for sharing your experience with Atelvia (risedronate). Please keep us posted on the results on the bone scan.
I thought you and the others sharing on this thread might be interested in this article by Kurt A. Kennel, M.D., a specialist in endocrinology at Mayo Clinic in Rochester, Minnesota. In this article, he answers common questions about osteoporosis treatment and describes how osteoporosis medications work. http://www.mayoclinic.org/diseases-conditions/osteoporosis/in-depth/osteoporosis-treatment/art-20046869?pg=1
Are you concerned about lowering your calcium intake?
The link to the article does not seem to work. Any suggestions? Thanks!
Try this link @jensdreamb http://mayocl.in/22J3TbO
I, too, am interested in treatments for osteoporosis at a younger (50) age; however, postmenopausal. I found Dr. Lani’s Bone Health Guide book helpful. I’m wary of beginning medical treatments (Forteo for 18-24 months and then a bisphosphonate for 5-7 years) based on one BMD scan.
I was diagnosed with osteopenia when I was in my mid-thirty’s. After a lot of work ups, including thyroid. The one thing they found was that my kidney’s were excreting a large amount of calcium. I did have a kidney stone – calcium oxylate type – prior to this diagnosis. I was put on hydrochorothiazide to help retain more calcium and that seemed to help. I had always been active and became even more so with having physical labor in my job, walking a lot and hiking. I sloughed off on this a bit as I got older, much to my regret. I was taking Boniva for a while, then got lazy. I am now 60 and have had 3 Reclast infusions ( one/year), and am taking Alendronate now to maintain the bone density that I gained. If you can tolerate the medications, I would encourage you to include them in a plan of weight bearing exercise. Taking drugs is always a tough call, especially when we get so much conflicting information about their efficacy and the potential side effects. I also sought second & third opinions to help me make my decision.
If there are better medications out there, I would appreciate hearing about them from others in this thread. Good luck @angelas!
Liked by GailBL, Volunteer Mentor
My Doctor thought I was getting enough from food and that any more was not good for my heart. Also my Vit D was high.
I get blood tests every 6 months to keep an eye on everything.
I am a senior and was diagnosed with osteoporosis many years ago – I have broken my both wrists for a total of 6 times. I take Actonel once a week and I do weight bearing exercise twice a week. It has never got worse – I think doing weights is very important.
Liked by charlena
So happy to hear from you and what you said, made me feel better. I was told I can only be on altevia for 3 years
What do I do then, good article someone sent that it stays in the bone even after stopping it. I like the delayed
release because you take it after breakfast and then stay upright for 30 minutes.
So Happy to read your post. I have a Fiend who is on Reclast has been for 2 years. So you did gain bone density
and have a way to keep what you gained. I will pas this on to her. Now I will hope that Altevia does it for me and
then after my 3 years I can do something to keep it. thanks again blythe
I just pulled out the few records I have, & in 2009-2010 my T-score was-2.6 for my left hip. At that time I was using Miacalcin Nasal Spray as analternative to Fosamax, etc. I continued using it until 2013 when Istarted the Reclast infusions. My 2015 bone density was -2.5 in the lefthip. My spine bone density was up to -1.4. So, the increase in my lefthip was moderate, but headed in the right direction. The increase in myspine BMD was more dramatic. I don’t have my previous spinal readings, butmy internist was quite pleased with the increase. I will start Prolia inDecember or January. I hope you & your friend have positive results withyour treatments. I have recently increased my vitamin D dose to 4000 I.U.a day. (1000 I.U. in my Calcium Citrate + D tablets plus 3x1000I.U.capsules). If I exercised regularly, I would probably see better results.
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