Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂
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Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.
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I had my first Proleia shot in April and no side effects. My Dr. Said the side effects are rare. Having a problem with my jaw would be very difficult, but not being able to walk would be far worse.
I, too, am interested in treatments for osteoporosis at a younger (50) age; however, postmenopausal. I found Dr. Lani’s Bone Health Guide book helpful. I’m wary of beginning medical treatments (Forteo for 18-24 months and then a bisphosphonate for 5-7 years) based on one BMD scan.
Thank you @arthritichands for your story, if you decided on Prolia, maybe i will not be so fearful and start with this medication too.
Most dr’s and health care people recommend Calcium but I have read a most interesting book called Death by calcium by Thomas E. Levy, Md. and following his advice. Makes so much sense.
I’m currently reading a book called Death By Calcium by Thomas E Levy, Md. It is making a whole lot of sense, if you are interested. I am following what was recommended. Hope this helps.
Hi, I came upon a book called “SaveourBones” Program by Vivian Goldschmidt, and read how these bisphosphonate drugs are not safe, serious side effects from these drugs. I take Vit. D 200mg. plus I try to get my calcium from food, almond milk, yogurt, cheese, green leafy veggies I’m praying this will help me with this osteoporosis.
Great source of knowledge you mention and great exercies
I am also taking Curcumin, specifically Curamed extrastrength and it has helped a lot with pain. Thank you for the Traumeel information. I am waiting to see if I find an alternative to Prolia which my endocrinologist has advised.
I totally ‘get it’. I had broken ribs sneezing, broken clavicle reaching for the phone…The shock….at 35 I fractured my T9 playing volleyball on July 4th. Really I was only raising my arms above my head. After multiple weeks of therapy and little relief of pain and back spasms I saw a spine specialist. He took an X-ray (1st one) and I found out about the fracture (Sept 10). I had my initial DEXA scan with -2.9 spine and -4.7 hips. Premenopausal and no history of osteoporosis. Started on Fosamax daily…worked for a while then tapered off…then 2 years of Forteo (worked wonderfully and wished I could have remained on that for longer but not suggested), then Fosamax weekly….At this time I was diagnosed with Systemic Mastocytosis because of the severe numbers on my scans and spots on skin. I was sent to Mayo and saw 3 doctors, many tests and a bone marrow biopsy (having extra mast cells in bones)…causing more brittleness. My osteoporosis specialist at home gave me a ‘drug holiday’ since I’d been on medication for so long and at a younger age. Plus with the diagnosis at Mayo…I ended up with chemo (Interferon) 3 x a week for 3 years. Then 2 years ago I slipped and broke my pelvis in 5 spots and was told no surgery since I have 90 year old bones. So after 11 weeks began Prolia. I am on the end of my 2nd year. Really was the only thing left for me to use. Hasn’t worked as well as Forteo…but could be age as I’m now 60. I have had NO side effects from any of the medications.
Hi Marty – so hard! What are you doing about it?
Have they checked your blood calcium again , was it still high ? If so , did they test your parathyroid hormone level ?
I agree Kara , Calcium supplements should only be taken if ones serum calcium is low. Long term research shows /We know for a fact that Vitamin D replacement helps slow down or at times prevent progression of osteoporosis
What I have read on the Mayor Clinic Connect website makes me more skeptical than ever about bone-building medications, which are expensive, inconvenient, controversial and perhaps even experimental.
I spent hundreds of dollars each year on Fosamax (even though I got the generic from Canada – since the generic had not been approved by the FDA yet). Fosamax never did what the doctor who first subscribed it said it would do. I’m just lucky I didn’t end up with a broken femur bone after being on it 8 or so years. My bones didn’t stabilize until after I stopped taking Fosamax!
Thank you for that information. I have come to the same conclusion especially reading several different places about Calcium and the classification of drugs like Fosomax. I have been taking the generic of Fosamax, Alendronate, but no more.
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