Mayo Clinic Connect
Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. 🙂
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Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.
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My dr wants me to try Prolia as well. Haven’t started yet because I had to get some dental first. Have you started it? My only concern is the necrosis of the jaw. Not sure what to do.
I have not tried any of the bisphosphonates…too scary for me. At one time my endocronologist asked if
i needed dental work, that was a clue to me not to try these meds.
My rheumatologist advised me to take Atelvia, but i’m so afraid to start. He mentioned to get calcium from
food rather than tablets. You mentioned you have not had any bad side effects, thats encouraging for me
to hear. I might have to go back and see him to get a script for Atelvia.
Liked by Sarah Pillsbury
Good decision, @caress. The FDA reports that Fosmax and other bisphosphonates don’t rebuild bone, but only prevent it from degrading. Another therapy is indicated, and a second opinion may be needed to find it.
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@caress and all, if you’re looking for a physician to treat osteoporosis — or give you a second opinion on your treatment plan — consider the recommendation of the National Institute of Arthritis and Musculoskeletal and Skin Diseases, a division of the National Institutes of Health. Their web page should be helpful in your search: http://www.niams.nih.gov/Health_Info/Bone/Osteoporosis/find_doctor.asp.
Liked by John, Volunteer Mentor, Teresa, Volunteer Mentor, ColoradoAbbey, Gail, Alumna Mentor ... see all
Has your Dr. Talked about a different class of drugs? If the normal ones bother a patient there are other kinds of drugs people can take, like Proleia. Don’t give up unless your Dr. Recommends you do. Your ability to walk is on the line.
I had my first Proleia shot in April and no side effects. My Dr. Said the side effects are rare. Having a problem with my jaw would be very difficult, but not being able to walk would be far worse.
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I, too, am interested in treatments for osteoporosis at a younger (50) age; however, postmenopausal. I found Dr. Lani’s Bone Health Guide book helpful. I’m wary of beginning medical treatments (Forteo for 18-24 months and then a bisphosphonate for 5-7 years) based on one BMD scan.
Thank you @arthritichands for your story, if you decided on Prolia, maybe i will not be so fearful and start with this medication too.
Most dr’s and health care people recommend Calcium but I have read a most interesting book called Death by calcium by Thomas E. Levy, Md. and following his advice. Makes so much sense.
I’m currently reading a book called Death By Calcium by Thomas E Levy, Md. It is making a whole lot of sense, if you are interested. I am following what was recommended. Hope this helps.
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Hi, I came upon a book called “SaveourBones” Program by Vivian Goldschmidt, and read how these bisphosphonate drugs are not safe, serious side effects from these drugs. I take Vit. D 200mg. plus I try to get my calcium from food, almond milk, yogurt, cheese, green leafy veggies I’m praying this will help me with this osteoporosis.
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Great source of knowledge you mention and great exercies
I am also taking Curcumin, specifically Curamed extrastrength and it has helped a lot with pain. Thank you for the Traumeel information. I am waiting to see if I find an alternative to Prolia which my endocrinologist has advised.
I totally ‘get it’. I had broken ribs sneezing, broken clavicle reaching for the phone…The shock….at 35 I fractured my T9 playing volleyball on July 4th. Really I was only raising my arms above my head. After multiple weeks of therapy and little relief of pain and back spasms I saw a spine specialist. He took an X-ray (1st one) and I found out about the fracture (Sept 10). I had my initial DEXA scan with -2.9 spine and -4.7 hips. Premenopausal and no history of osteoporosis. Started on Fosamax daily…worked for a while then tapered off…then 2 years of Forteo (worked wonderfully and wished I could have remained on that for longer but not suggested), then Fosamax weekly….At this time I was diagnosed with Systemic Mastocytosis because of the severe numbers on my scans and spots on skin. I was sent to Mayo and saw 3 doctors, many tests and a bone marrow biopsy (having extra mast cells in bones)…causing more brittleness. My osteoporosis specialist at home gave me a ‘drug holiday’ since I’d been on medication for so long and at a younger age. Plus with the diagnosis at Mayo…I ended up with chemo (Interferon) 3 x a week for 3 years. Then 2 years ago I slipped and broke my pelvis in 5 spots and was told no surgery since I have 90 year old bones. So after 11 weeks began Prolia. I am on the end of my 2nd year. Really was the only thing left for me to use. Hasn’t worked as well as Forteo…but could be age as I’m now 60. I have had NO side effects from any of the medications.
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Hi Marty – so hard! What are you doing about it?
Have they checked your blood calcium again , was it still high ? If so , did they test your parathyroid hormone level ?
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