Mayo Clinic Connect
Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. 🙂
Liked by Mamacita, Volunteer Mentor, Leonard Holloway
Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.
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Hi @rareeby and @predictable,
We took your question about whether Fosmax and other bisphosphonates can or cannot rebuild bone to a Mayo Clinic pharmacists. This is what she responded:
“Looking specifically at the Fosamax package insert, the drug “is indicated for the treatment of osteoporosis in postmenopausal women. In postmenopausal women, Fosamax increases bone mass and reduces the incidence of fractures, including those of the hip and spine.” Fosamax is also “indicated for treatment to increase bone mass in men with osteoporosis.” The medication inhibits the activity of osteoclasts which are cells responsible for bone resorption. It does not have a direct effect on bone formation, HOWEVER, since resorption and formation are coupled during bone turnover, decreasing the amount of bone resorption allows for the bone to form without being resorbed at a rate faster than it can be built.
I hope this helps.” ~ pharmacist, Mayo Clinic
I also found these articles of interest about treating osteoporosis with medication (in addition to lifestyle changes)
– WebMD http://wb.md/2gVSA1J
– Mayo Clinic http://mayocl.in/XvF3QB
What is written on the Fosamax package insert is the manufacturer’s claim. What the pharmacist said is an interpretation of the claim. In my situation, I was on Fosamax for about 8 years when my doctor (an internist) took me off of it, immediately following a report of broken femor bones (there is now a class action lawsuit over this problem). Three years later (early in 2016) I had a compression fracture of a disc. I then asked my doctor if he would recommend my going back to Fosamax or perhaps Actenol, which my twin brother is on. His response was that he didn’t want me to go either of these because, he wrote in an email, “it might do more harm than good”.
The fact is that there is a lot that doctors do not know about these drugs yet they continue to prescribe them.
Liked by Martin Jensen, Volunteer Mentor, lanadee
Any one of the drugs that interferes with osteoblasts/ and clasts may increase bone MASS, as per DEXA, but not necessarily make it stronger! Exercise and diet is a way we can control it better ourselves or as well as drugs if you must.
Liked by adamsky
My response to Kayelle: Thanks for your insight. This is exactly what I thought after I had spent many hours looking into this. I’d like to know how you arrived at this conclusion and why isn’t the medical profession saying this?
Big Pharma make big money telling normal people they need drugs and have a disease! Like many folk I have a bit of health scare. Before this I took my precious body for granted. I found a fantastic Book and Website. I have never had a more thorough insight into my bones, a so so important structure/organ of our bodies. So much to it, that tampering with it seems a great sin.
save out bones
I’d like to know the name of the website and the book. Thanks.
The book is called SaveOurBones by Vivian Goldschmidt, MA. I bought the book for $67.00 worth every penny. Please take a moment and watch this video where she explains more about the Save Institute
http://saveourbones.com/about/#video. All the best
Liked by kayelle
I came across Vivian Goldschmidt, MA and the Save Our Bones Institute early in my research on osteoporosis meds. A couple of things I don’t understand: Goldschmidt’s opposition to milk (the most natural form of calcium there is) and her disregard to exercise. (How can one build bones without strength-bearing exercises?) I disregarded much of what she says because she is making her living selling her products. Have you been using her projects and do you think they are helping you?
Liked by lanadee
The book is called SaveOurBones by Vivian Goldschmidt, MA. I bought it for $67.00 worth every penny
the website: http://saveourbones.com
Please take amoment and watch this video where she informs more about the Save Insitutue
http://saveourbones.com/about/#video. All the best!
I gave almond a try because its organic. I only walk. Unfortunately presently I’m addressing other medical problems I have that take priority.
Walking is one of the best bone-building activities you can do and if a person is doing only one exercise, that’s the one to do! Give yourself credit for doing this, in spite of your other medical problems.
For sure, I sent you an email. Save our bones. Vivian Goldschmidt…I can not possible praise anyone higher.
I bought her audio book, it talked only of Osteoporosis, it cost 17.00$. I have every weekend exercises to do, fun and balance and fitness and with it comes a thorough explantation of the bones and muscles and nutrients and chemical reactions etc etc, I have never been better informed, if only our kids were taught this way, with practical backed by science … you can buy her book if and programme if you chose, i haven’t, i am busy with the free stuff. She is not like so many others. You would be able to answer your own questions if you took the time to read some of the information on her website (free).
I totally ‘get it’. I had broken ribs sneezing, broken clavicle reaching for the phone…The shock….at 35 I fractured my T9 playing volleyball on July 4th. Really I was only raising my arms above my head. After multiple weeks of therapy and little relief of pain and back spasms I saw a spine specialist. He took an X-ray (1st one) and I found out about the fracture (Sept 10). I had my initial DEXA scan with -2.9 spine and -4.7 hips. Premenopausal and no history of osteoporosis. Started on Fosamax daily…worked for a while then tapered off…then 2 years of Forteo (worked wonderfully and wished I could have remained on that for longer but not suggested), then Fosamax weekly….At this time I was diagnosed with Systemic Mastocytosis because of the severe numbers on my scans and spots on skin. I was sent to Mayo and saw 3 doctors, many tests and a bone marrow biopsy (having extra mast cells in bones)…causing more brittleness. My osteoporosis specialist at home gave me a ‘drug holiday’ since I’d been on medication for so long and at a younger age. Plus with the diagnosis at Mayo…I ended up with chemo (Interferon) 3 x a week for 3 years. Then 2 years ago I slipped and broke my pelvis in 5 spots and was told no surgery since I have 90 year old bones. So after 11 weeks began Prolia. I am on the end of my 2nd year. Really was the only thing left for me to use. Hasn’t worked as well as Forteo…but could be age as I’m now 60. I have had NO side effects from any of the medications.
so sorry for all the complications you have had to endure. I think the side effect many are concerned about is that many of the medications prescribed for osteoporosis make bones more brittle and can actually cause breakage in larger bones. Thanks for sharing 🙂
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