Treating Osteoporosis

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. ­čÖé

@angelas

Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I’m 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?

Jump to this post

thank you Teresa for the valuable information on hydrochorothyazide.

REPLY
@angelas

Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I’m 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?

Jump to this post

I found that I cannot take hydroclorothyazide any more. I took it when I was younger, but tried it 5 yrs ago with Valsartin for blood pressure and it made me very sick. I don’t know why, perhaps age related. So, if you take it be sure to let your doctor know about all side effects you may have. Good luck.

REPLY
@angelas

Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I’m 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?

Jump to this post

thank you gailb for letting me know, I take a water pill diazide so when I saw hydroclorothyazide I was curious to see what it was

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

I have Osteoporosis with Kyphosis. I have had a vertebral plasty for VCF’s. My DexaScan not very good. My Rheumatologist has suggested Forteo. Most of her patients turned down the Forteo because you have to inject yourself each day. I don’t want to be on any medication however, I also don’t want to end up in a wheelchair. I am probably going to go ahead with the Forteo. I know it is the only medication that is supposed to actually Build bone. I tried the pills in the past but developed swelling of my feet and ankles. I need to see a dentist before I start the medication. I will let post how things are going with it once I start.

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

I just want to offer my sympathy. You have had to make a difficult decision. So far my Dex scores are OK,
but there are never any guarantees.
If I may ask, how old are you?

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

I was on Forteo for the 2 recommended years (after having been on Fosamax and the numbers began to drop). I had excellent results with Forteo and would be on it today if it were allowed. After the 2 years I was back on Fosamax to keep what Forteo had built up and because of starting osteoporosis meds young (35)…my dr gave me a drug holiday of 3 years until I fractured my pelvis in 5 areas. I am now on Prolia. I just began my 3rd year of Prolia and will have a DEXA scan in Dec to see the results. My dr has mentioned a possible return to Forteo. I didn’t realize a person could go back on after a period of time. I am fine with it. After extreme osteoporosis I am now osteopenia at 61. (fractures in order: toe, T9, clavicle, rib, pelvis)

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

Thank you. A lot of it is my own fault for not following up the way I should have. As for my age, I am in my early 70’s and pretty active, which is how I want to keep it. Thanks for your concern.

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

Dolan, I amy very, very encourage by your results with Forteo. I haven’t known anyone who has taken it and was leery about starting it. I feel so much better reading your results. Like you, I have had a traumatic pelvic fracture, traumatic arm fracture and a couple of rib fractures. I have a family history and currently have a cousin how has Osteopenia and is on Prolia. I think I will stick with the Forteo!!! Thanks for sharing your results.

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

Thank you. A lot of this is my own fault for not following up the way I should have. As for my age, I am in my early 70’s and quite active, which is how I want to keep it. Thanks for your concern.

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

What are the side effects of Forteo?

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

I had NO side effects and the needle is extremely small so it’s more or less painless to give. I was on Interferon for my systemic mastocytosis so giving myself an injection is no big deal. The brittleness of my bones had always been a puzzle. OLD AGE osteoporosis only…loving dairy products, weight bearing exercise etc. I am the youngest of 4 children. My mother is nearly 97 and in great health. I have 2 older sisters. My mother and one sister are now osteopenia. but being diagnosed in 2005 with my disease at Mayo and finding that my bones(after a bone marrow biopsy) have 35% extra mast cells making them weaker.

REPLY
@mohavegal

Hello, I’m new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don’t know what “family” it’s in. Having horrible pain when lying down.

Jump to this post

The only possible side effects I have seen are the rare jaw bone problems!!! You obviously didn’t have any of those Dolan—–I think that is great!!!

REPLY
Please sign in or register to post a reply.