Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don’t work properly. Let’s connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I’m Kanaaz (@kanaazpereira), and I’m the moderator of this group. When you post to this group, chances are you’ll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let’s chat. Why not start by introducing yourself?

I had A fib and an ablation . After 6 months, and issues with blood thinners, and no afib, I am off blood thinners and have a link implanted in my chest to monitor the a fib. Working well!

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@sal70

I had A fib and an ablation . After 6 months, and issues with blood thinners, and no afib, I am off blood thinners and have a link implanted in my chest to monitor the a fib. Working well!

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Excellent. I have not
Heard,that you can have
Anything inserted in
Chest for A fib.
Success101

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@success101

Excellent. I have not
Heard,that you can have
Anything inserted in
Chest for A fib.
Success101

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This is what I have: electrophysiology docs at Univ of Colorado Anchutz use it. Medtronic Model 24960 monitors the link device in the chest.

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@elizabeth1941

Hi my name is Beth. I was diagnosed with afib September 2018. I am 78 years old. Recently my doctor said I need to have ablation. Would like to hear from anyone my age who has had an ablation

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I had one two months ago and am doing extremely well. I experienced a few short lived reoccurrences but they appear to here stopped. My Dr told me that it takes three months for the heart to totally heal from the procedure. I am very happy with the results!

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@balsaro

I had one two months ago and am doing extremely well. I experienced a few short lived reoccurrences but they appear to here stopped. My Dr told me that it takes three months for the heart to totally heal from the procedure. I am very happy with the results!

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Terrific results!

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@elegantgem

I definitely have high heart rhythms. I was hospitalized for beats over 200 recently. My doctor is constantly telling me not to let this stop me from exercising. My condition is not considered life threatening. But whenever I exercise my heart is ok until I stop and about 5 minutes later my heart is racing. I usually wait it out but do have 30 mg of dil tiazem if I need it. Does anyone know of a good exercise book that is gentle on the body? I do walk but it does give me issues. I am gaining weight but I hardly eat. My doctor isn't for an ablation since she feels there are risks for me.

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You might check out "Silver Sneakers". Our local gym offers classes in it. It is for "seniors". Much of it is done seated. I am sure that there are videos that you can watch on YouTube, or purchase.

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Wanting to learn as much as possible about afib.the dos & do nots
Any tips?

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@saddleup

Wanting to learn as much as possible about afib.the dos & do nots
Any tips?

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Hello @saddleup,

Welcome to Connect. I moved your message and combined it with this discussion as I thought it would be beneficial for you to connect with the many members who are talking about Afib.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Would you be able to share a few more details? Have you been diagnosed with Afib? If so, how are you managing it? I look forward to hearing from you.

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@kanaazpereira

Hello @saddleup,

Welcome to Connect. I moved your message and combined it with this discussion as I thought it would be beneficial for you to connect with the many members who are talking about Afib.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Would you be able to share a few more details? Have you been diagnosed with Afib? If so, how are you managing it? I look forward to hearing from you.

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I have had asymtomatic AFIB for about 6 years and woulld appreciate being included on the AFIB. discussion.

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Hello @gamesjr,

By posting in this discussion in the Heart Rhythm Conditions group, you are already participating in the conversation about Afib. I’m certain @yorlik @1943 @phoenix1647 @jlbyrd975 @racerjon @sal70 @balsaro @hazelnut @2752 and others will return to share some of their experiences.
How are you managing the Afib, @gamesjr?

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@kanaazpereira

Hello @gamesjr,

By posting in this discussion in the Heart Rhythm Conditions group, you are already participating in the conversation about Afib. I’m certain @yorlik @1943 @phoenix1647 @jlbyrd975 @racerjon @sal70 @balsaro @hazelnut @2752 and others will return to share some of their experiences.
How are you managing the Afib, @gamesjr?

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I take Eqquis Blood Thinner twice a day and control my high blood pressure with Losartan and Lasix diuretic (exact mg I forget) And other than AFIB being a possible cause of daytime tiredness and lack of energy, No problems experienced due to my AFIB. I am 85 years old in pretty good health, with day time tiredness being my main complaint.

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I'm 47yo male, and I've had two DVT/PE's, in 2015, and 2018. I have a clotting disorder Factor V Leiden, and now on blood thinners for life.

I recently went on a trip to Vegas, and on all of my flights, I experienced some minor dizziness where I felt like I wasn't getting enough oxygen. I had my Samsung phone which has an O2 monitor on it and tried it. I took multiple readings and it was between 85%-90% most of the flights. My normal on the ground is around 95% maximum. In my Hematologist office yesterday I was at 94%.

Yesterday I had D-Dimer test which was negative/low. I'm also having an Arterial Blood-Gas test and Echo Stress Test done. They said if those are negative, the next step would be a "VQ Scan".

I know that airplane flights can cause people to have lower oxygen levels, but I'm wondering what is normal on flights? Does everyone drop into the 80%'s? Is a VQ scan safer then CT scan? I want to limit radiation exposure and I've already had multiple CT scans in the past, but not a follow up scan after my last PE. They just put me on blood thinners and sent me home after the last one.

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I definitely have high heart rhythms. I was hospitalized for beats over 200 recently. My doctor is constantly telling me not to let this stop me from exercising. My condition is not considered life threatening. But whenever I exercise my heart is ok until I stop and about 5 minutes later my heart is racing. I usually wait it out but do have 30 mg of dil tiazem if I need it. Does anyone know of a good exercise book that is gentle on the body? I do walk but it does give me issues. I am gaining weight but I hardly eat. My doctor isn't for an ablation since she feels there are risks for me.

REPLY
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