Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don’t work properly. Let’s connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I’m Kanaaz (@kanaazpereira), and I’m the moderator of this group. When you post to this group, chances are you’ll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let’s chat. Why not start by introducing yourself?

@ch665296f

It looks as though we have similar issues. I have been diagnosed with apical hypertrophic cardiomyopathy, ventricular tachycardia, and some myocardial bridging. I have just about every test imaginable the last two years, and so far i'm being treated with drugs. I have worn a holter monitor 4 times, the last being a month long. At the present I have had a loop monitor installed to monitor my heart rhythms 24/7. I could have this in place for 3 years. I believe from this monitoring, my team of cardiologist will be able to determine whether or not I will need an ablation. They seem to be covering all the bases before any more invasive action is taken. Personally, I wish the pace would pick up a little. I'm getting pretty tired of being tired.

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I put off having an ablation after my cardiologist first suggested it. I put it off for two or three years after reading a few negatives about it on the internet. When I finally had it done after I was sick and tired of being sick and tired, I kicked myself for having put it off. I felt SO much better. I got my life back.

Liked by lucky1038

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I had an ablation in August and have had no problems since. Am on Lorsatan once a day and Eliquis 2x daily. Previously had afib 2-3x/week. I'm wondering what's holding your doctor back from the ablation. So glad I had it as I worry less and am comfortable that my health is much better.

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Thanks. I go by Catro. My irregulat heartbeat is relatively recent. I noticed it a little over a month ago. Started supplementing with magnesium and it went away for awhile but is back now and magnesium no longer seems to work. Had my blood level checked and it was 7.7 on a 1-15 scale of normal. I have an appointment with my cardiologist Wednesday. He has been following me for a mild aortic valve regurgitation since I had a triple bypass three years ago. Could there be a connection? I hope to find out.

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@catro

Thanks. I go by Catro. My irregulat heartbeat is relatively recent. I noticed it a little over a month ago. Started supplementing with magnesium and it went away for awhile but is back now and magnesium no longer seems to work. Had my blood level checked and it was 7.7 on a 1-15 scale of normal. I have an appointment with my cardiologist Wednesday. He has been following me for a mild aortic valve regurgitation since I had a triple bypass three years ago. Could there be a connection? I hope to find out.

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How do you feel?

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I am a 74 years old female. All along I had very healthy life. Being a professor at university I had hectic life style. Stating at six in morning going till late at night. I started feeling heart pulsating with higher rate around five years ago. But it did not trouble me. (I never had any other symptom ever. Neither at this time not even now which is acsurprise) Then I went for a routine yearly check up and my cardiologist got concerned with my ECG. He asked me to take a number of exams. . Then asked me to take some medicine and come back after two months.i came to USA and had my cataract surgery. I heard the doctor say that the surgery was successful and then I open my eyes in intensive care unit. They said my pulsewent to 200 and I had to be under observation. They gave me metaprolol and relived me after few hours witha warning that I should go to heart specialist as soon as possible. Next week I went to HS and he confirmed it was Afib. He put me on Eliquis and metaprolol and had cardiac procedure with electric shock after a month. For a day I was out of Afib but then it came back. For a year I took these medications. Then changed the HS. The new one after a month told my heart was getting affected so either I go for ablation ( which I did not want ) or take Tikosyn. This medicine will be given in a hospital, I will be admitted and supervised for three days but first dose it self can make my pulse rate out of control leading to death ( though they will not let it happen) I was puzelled. Why should I take a medicineto die. I said no. After rethinkingfor a month I told him I will go for it because I do not want to livewith the fear of stroke. I tool it and it brought me in sinus rhythm. It is since Nov 2018. I am out of Afib thanks to my HS at UCSF and Tikosyn (The generic name is dofetilide ) it costs me $100 .00 pm but it is keeping me out of Afib. I do not know why my other doctor did not try this?

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@kancha

I am a 74 years old female. All along I had very healthy life. Being a professor at university I had hectic life style. Stating at six in morning going till late at night. I started feeling heart pulsating with higher rate around five years ago. But it did not trouble me. (I never had any other symptom ever. Neither at this time not even now which is acsurprise) Then I went for a routine yearly check up and my cardiologist got concerned with my ECG. He asked me to take a number of exams. . Then asked me to take some medicine and come back after two months.i came to USA and had my cataract surgery. I heard the doctor say that the surgery was successful and then I open my eyes in intensive care unit. They said my pulsewent to 200 and I had to be under observation. They gave me metaprolol and relived me after few hours witha warning that I should go to heart specialist as soon as possible. Next week I went to HS and he confirmed it was Afib. He put me on Eliquis and metaprolol and had cardiac procedure with electric shock after a month. For a day I was out of Afib but then it came back. For a year I took these medications. Then changed the HS. The new one after a month told my heart was getting affected so either I go for ablation ( which I did not want ) or take Tikosyn. This medicine will be given in a hospital, I will be admitted and supervised for three days but first dose it self can make my pulse rate out of control leading to death ( though they will not let it happen) I was puzelled. Why should I take a medicineto die. I said no. After rethinkingfor a month I told him I will go for it because I do not want to livewith the fear of stroke. I tool it and it brought me in sinus rhythm. It is since Nov 2018. I am out of Afib thanks to my HS at UCSF and Tikosyn (The generic name is dofetilide ) it costs me $100 .00 pm but it is keeping me out of Afib. I do not know why my other doctor did not try this?

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Sounds like you are ok. Good. Read up on the subject. There are lot's of articles and ideas. There are two ways to handle afib. One is to get the heart back in rhythm, Tikosyn. The other is rate control where the heart may go in and out of afib, but the metaprolol helps keep the heart rate down and that helps you feel better. I've done both. I also have heart valve issues so it's complicated with me. I haven't had any surgery and feel pretty good. I'm 72. Also, Eliquis is an anticoagulant and helps prevent stroke. I'm on both Eliquis and metaprolol. Sounds iike you blasted your way through life and it finally caught up with you. Time to slow down, as boring as it is.
.

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@kancha

I am a 74 years old female. All along I had very healthy life. Being a professor at university I had hectic life style. Stating at six in morning going till late at night. I started feeling heart pulsating with higher rate around five years ago. But it did not trouble me. (I never had any other symptom ever. Neither at this time not even now which is acsurprise) Then I went for a routine yearly check up and my cardiologist got concerned with my ECG. He asked me to take a number of exams. . Then asked me to take some medicine and come back after two months.i came to USA and had my cataract surgery. I heard the doctor say that the surgery was successful and then I open my eyes in intensive care unit. They said my pulsewent to 200 and I had to be under observation. They gave me metaprolol and relived me after few hours witha warning that I should go to heart specialist as soon as possible. Next week I went to HS and he confirmed it was Afib. He put me on Eliquis and metaprolol and had cardiac procedure with electric shock after a month. For a day I was out of Afib but then it came back. For a year I took these medications. Then changed the HS. The new one after a month told my heart was getting affected so either I go for ablation ( which I did not want ) or take Tikosyn. This medicine will be given in a hospital, I will be admitted and supervised for three days but first dose it self can make my pulse rate out of control leading to death ( though they will not let it happen) I was puzelled. Why should I take a medicineto die. I said no. After rethinkingfor a month I told him I will go for it because I do not want to livewith the fear of stroke. I tool it and it brought me in sinus rhythm. It is since Nov 2018. I am out of Afib thanks to my HS at UCSF and Tikosyn (The generic name is dofetilide ) it costs me $100 .00 pm but it is keeping me out of Afib. I do not know why my other doctor did not try this?

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It sounds like you are doing well now. I am 85, I've been taking Tikosyn for 4 years. For the first 2 years I had no return of afib. Now I have it occasionally. One trigger is jumping up too fast in the morning. If it comes back sometimes, see if you can figure out what triggers it. It sounds like you are a hard worker. You might have to slow down a bit as "healthy today" recommends. Good luck!

Liked by healthytoday

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I have had pacemaker for. 6 yrs. first 4 were filled with arrhythmia and afib. Then I started to look for cause. Drs never told me about triggers in fact dr told me that ok to have a glass of wine in evEnding and coffee in morning. When I started investigation I found that any amount of alcohol would set me off later at night stopped wine and coffee ,only decaf now. Found several other things also like working too long in heat. Now avoid my triggers and my afib and aarythm happen less than one. Percent of the tlme according to my pacemaker dr. And they look at my latitudes machine At least once a week and sometimes every night ( latitudes in s as n internet connection machine that reads my pacemaker whenever they want to, and I don’t even know it’s going on.

Liked by healthytoday

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Hi there, I'm joining for information about treatments, docs, etc for my 76 y.o. husband. Three years ago he began having arrythmia problems-sometimes aflutter, sometimes afib, and in spite of medication, cardioversion, and catheter ablation, the condition is persistent. I live in No. AZ and our cardiology options aren't great, so we have to drive to Phoenix for care. He has an appt with someone at Mayo this week because we feel the experts at Mayo will help us better than what we've gotten so far. BTW, my husband and I are both active (hiking, gym, yoga, running etc.) -and he's in great health otherwise. I'm glad this group is here.

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@noazyogi

Hi there, I'm joining for information about treatments, docs, etc for my 76 y.o. husband. Three years ago he began having arrythmia problems-sometimes aflutter, sometimes afib, and in spite of medication, cardioversion, and catheter ablation, the condition is persistent. I live in No. AZ and our cardiology options aren't great, so we have to drive to Phoenix for care. He has an appt with someone at Mayo this week because we feel the experts at Mayo will help us better than what we've gotten so far. BTW, my husband and I are both active (hiking, gym, yoga, running etc.) -and he's in great health otherwise. I'm glad this group is here.

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Mayo Clinic treated me 3+ years ago when I was in heart failure. They are great. There are two types of treatments with afib. One is getting the heart back in sinus rhythm. This is done with cardioversion, ablation, and meds. None of them work all the time or for only awhile. I had three cardioversions, none sticked. This is due to my hearts enlargement and heart valve issues I then was downloaded with Tikasen which kept my heart in rhythm for one year. That no longer worked, so I went to the second type of treatment.

That's heart rate control. I was put on metotropal (sp), this is a blood pressure med, surpresses the heart rate. It is working for me. All meds have side effects, some better than others. You can look up these issues on the computer; Mayo Clinic has paragraphs you can read online on most medical issues. Best of luck, if it makes you feel any better, afib is very common. The biggest problem with it that it can cause strokes, so an anticoagulant is prescribed, such as Eliquis. It's an expressive medicine, but does a good job.

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Does,anyone take metropolol and diltizem at the same time?

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That sounds dangerous. Best to look on the web for interactions between the both of them.

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@dsisko

I had an ablation in August and have had no problems since. Am on Lorsatan once a day and Eliquis 2x daily. Previously had afib 2-3x/week. I'm wondering what's holding your doctor back from the ablation. So glad I had it as I worry less and am comfortable that my health is much better.

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Was yours for PVCs or Afibs? mine was for PVCs and the electrophysist who performed it came into the exam room before seeing me with a disgusted look o his face when the PA he uses could not get me to stop wanting those PVCs. His words were, "Alright, I'll do the ablation. I know exactly where it is, but you'll need to stay overnight and you'll need to lie flat for 5 hours afterward."
I never saw him prior to the procedure, saw the anthologist and the rest of the staff, but not him.

Have not had many PVCs since, just occasionally, but they are no longer damaging my heart. AND even MAYO clinic admits PVCs are heart damaging.

Liked by healthytoday

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@1943

Does,anyone take metropolol and diltizem at the same time?

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I do. I take 100mg of Metoprolol every day. I take Diltiazem when I have an episode of afib. I take it every 4 hours until back in sinus rhythm

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@1943

Does,anyone take metropolol and diltizem at the same time?

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My medical chart says to never prescribe diltiazem and metoprolol together for me. It was during a time when I was having side effects from various meds to control my arrythmia. The metoprolol was still in my system . The diltiazem set off an irregular heart beat that freaked me out. Anyway in the end, I stayed on metoprolol and no more problems. I imagine each individual case may be different.

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