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Posts: 2
Joined: Sep 05, 2012

Antiphospholipid Antibody Syndrome

Posted by @taogirl2, Sep 5, 2012

Searching for anyone suffering with this debilitating illness. I have been diagnosed since 2003 and suffered many strokes and TIA’s. Looking for some alternative medicine other than aspirin and cumadin to combat future problems. Researching Nattokinase at the moment but wish to know if anyone has heard of this herbal remedy and if it is a possible alternative to the regeme I am currently on.



Posts: 1
Joined: Oct 15, 2012
Posted by @colettehellerud, Oct 15, 2012

My daughter had a cerebral venous sinus thrombosis in May. (Blood clot in back of her head.) We thought she had a migraine that two trips to walk-ins and two to the ER weren’t helping. They found the clot and admitted her to the hospital for twelve days while getting the pain under control, and getting her transitioned from Heparin to Warfarin. They drew blood a twelve days ago and sent it off to Mayo for testing. Her doctor believes she has APS.
What are you currently taking for this, warfarin? How old are you? My daughter’s only 19 years old and since she’s gotten out of the hospital in Fargo, hasn’t had another symptom, but we are constantly wondering and waiting for something to happen.


Posts: 2
Joined: Oct 17, 2012
Posted by @lagata, Oct 17, 2012

I have lived with APS since 1994. I am sorry you find it debilitating, mine isn’t as bad. I have had several DVTs, but nothing above the hips. I have recently been diagnosed with heparin induced thrombosis, and switched from Coumadin after 17 years to lovenox, then Arixtra, now a newer drug, Xarelto. I’m 45, so I just keep hoping for good health.

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