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soitis4590
@soitis4590

Posts: 8
Joined: May 25, 2016

Antiphospholipid and Lyme disease

Posted by @soitis4590, Jun 6, 2016

I was diagnosed in with APLS in 2001 after a stroke. I am now trying to manage symptoms from quite disabling late stage Lyme and Bartonella. ( I was treated for Lyme in 1994 and 1999). Is it reasonable to connect the autoimmune disease and tick born illnesses in that time frame?

REPLY

Welcome @soitis4590.
You’re the second person in less than 24 hours to post about antiphospholipid syndrome. @lena999 also wrote about being diagnosed with it 2 years ago.

According to this article by Mayo Clinic http://mayocl.in/1YaYc5X “People with certain infections, including syphilis, HIV infection, hepatitis C and Lyme disease, among others, have a higher incidence of having antiphospholipid antibodies.”

What symptoms of APLS do you have and how are you managing them today?

@colleenyoung

Welcome @soitis4590.
You’re the second person in less than 24 hours to post about antiphospholipid syndrome. @lena999 also wrote about being diagnosed with it 2 years ago.

According to this article by Mayo Clinic http://mayocl.in/1YaYc5X “People with certain infections, including syphilis, HIV infection, hepatitis C and Lyme disease, among others, have a higher incidence of having antiphospholipid antibodies.”

What symptoms of APLS do you have and how are you managing them today?

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Hello,
Thank you for he link!!
I’m not sure what my symptoms would be today from APLS. The stroke certainly left me with some problems which continue today. Because I am on Coumadin (and aspirin is that med really necessary?) there are many repercussions from that. I need the usual bloodwork every 10 days to 4 weeks, I bleed and bruise easily, I can’t take many antibiotics, I restrict my diet some-so as not to have to deal with the vitamin K issue, surgeries which I have needed are complicated by Coumadin. All the usual Coumadin stuff. The major event from APLS was the stroke. And perhaps a second in 2011. I consider it a TIA if that. No testing was done to confirm one and after 48 hours all issues were resolved with no deficits. A new dtroke has not been seen on future MRIs.
My late stage Lyme/bartonella symptoms are the most challenging right now. Is there a discussion group on this website for Lyme?
Why is there little discussion about APLS and stroke? I think a number of people must have it with problems.

Please go to Amazon.com and order the book “Why Can’t I Get Better?” by Dr.
Richard Horowitz – it is an amazing book about Lyme Disease and it
recommends a wide variety of supplements that have made a world of
difference for me. Best wishes..

http://www.amazon.com/Better-Solving-Mystery-Chronic-Disease/dp/1250019400?i
e=UTF8

&keywords=horowitz&qid=1465316268&ref_=sr_1_2&s=books&sr=1-2

@vickiekay

Please go to Amazon.com and order the book “Why Can’t I Get Better?” by Dr.
Richard Horowitz – it is an amazing book about Lyme Disease and it
recommends a wide variety of supplements that have made a world of
difference for me. Best wishes..

http://www.amazon.com/Better-Solving-Mystery-Chronic-Disease/dp/1250019400?i
e=UTF8

&keywords=horowitz&qid=1465316268&ref_=sr_1_2&s=books&sr=1-2

Jump to this post

Thanks for the tip. I actually just purchased the book at the recommendation of a friend. It’s good to hear another finding the book helpful. I’m just beginning this recovery, so everything helps!

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