Gastroparesis with severe symptoms!

Posted by paarak @paarak, Jul 17, 2011

Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March – which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet – pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn’t move through – then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling – It seems to work by drinking just water /gator aid for at least a day. I just don’t know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn’t seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach – I never seem to have stomach pain – Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition – what are your symtoms and how are you managing? Thanks

But wouldn’t I have had immediate problems if that was the case?

My Nissen came undone all by itself. That’s why I’m having to have another Nissen. The surgeon who is doing the ablations on my Barrett’s said he can’t really do anymore until I get the Nissen redone.

REPLY

I was an architect and Univ. professor… obviously I have no medical training… but there was something that stopped your food passage… Those Nissens slip or drop out of place… The Mayo GI diagnosed my condition in a couple hours… 3 tests… You should ask your GI and surgeon… When they do this stuff laparoscopically.. it takes hours of them there on your chest/ abdomen… What do they say happened to where they put the stomach in your original surgery…?

REPLY

The way they explained my condition.. is that the stomach is positioned so those hairnet network of nerves can pulse to move the food out.. During the Nissen they move the things around… with these instruments… I have never seen a diagram of how the stomach is positioned now… but my Mayo GI doctor …said that if it was undone that would be worse than it is now… so perhaps yours undid itself… and the food was trapped… I should have asked more questions before my Nissen… but I believed the Drs… GI , Surgeon, Primary Care Physician….

REPLY

Ok @ken82 — you’ve given me lots to think about in the next 3 days before my scheduled surgery! Like do I want to go thru with it!!!

My GI doc thinks the Gastroparesis developed because I have type 2 diabetes which can damage nerves. Who knows.

REPLY
@pdilly

Ok @ken82 — you’ve given me lots to think about in the next 3 days before my scheduled surgery! Like do I want to go thru with it!!!

My GI doc thinks the Gastroparesis developed because I have type 2 diabetes which can damage nerves. Who knows.

Jump to this post

Did you get a second opinion from some reputable GI NOT connected with the surgeon?

REPLY

I actually got 2nd and 3rd opinions. My situation was that the surgeon who is doing the ablations for the low grade dysplasia of my Barrett’s esophagus said he couldn’t do anymore until the Nissen was done again because of all the stuff coming up into my esophagus.

So I had the Nissen done 2 days ago — and had my gall bladder removed at the same time. So far, so good!

REPLY

Are you home? Is it partially digested food that comes up in the esophagus? Eat less each meal but eat more often…stay vertical after eating..

REPLY

Yes I’m home — had the laparoscopic surgery Tuesday at.noon and came home Wednesday evening. I can already tell the difference — no partially digested food coming back up and best of all no heartburn!

Thank you for the advice — I do all those things as well as eat very little fiber. I also take my “illegal” drug twice a day! I call it that since it’s not approved by the FDA and I have to get it from Canada! Domperidone.

REPLY

I don't take that… My Radiologist friend in Sweden advised against it.. as my Iowa GI prescribed it . That's one of the reasons I went to Mayo MM

REPLY

Glad things are going well… happy sailing..k

REPLY

Thank you @ken82 — at first I wasn’t going to get the domperidone because it wasn’t FDA approved. But my gastroenterologist wanted me to try it to see if it would help move things along out of my stomach — he didn’t want another monster to form in my belly. (I hate the B word so I call it the monster in my belly!)

My prescription was to take 4 a day but I only take it twice a day — morning and night — because that’s the only time I can remember to take meds! And it has worked very well for me. According to my gastroenterologist it is considered safe in countries all over the world — and is even an over the counter med in many countries.

REPLY
@pdilly

Thank you @ken82 — at first I wasn’t going to get the domperidone because it wasn’t FDA approved. But my gastroenterologist wanted me to try it to see if it would help move things along out of my stomach — he didn’t want another monster to form in my belly. (I hate the B word so I call it the monster in my belly!)

My prescription was to take 4 a day but I only take it twice a day — morning and night — because that’s the only time I can remember to take meds! And it has worked very well for me. According to my gastroenterologist it is considered safe in countries all over the world — and is even an over the counter med in many countries.

Jump to this post

@pdilly Glad you are doing well. I tried Domperidone for a short time. I had a lot of side effects.. which I don't remember what they were now and it did not help. I got it from my local compounding pharmacy. It is probably cheaper getting it from Canada. I cannot remember the cost either. Many think it is illegal in USA.. just not approved.

REPLY
Please sign in or register to post a reply.