Connect
Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March – which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet – pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn’t move through – then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling – It seems to work by drinking just water /gator aid for at least a day. I just don’t know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn’t seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach – I never seem to have stomach pain – Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition – what are your symtoms and how are you managing? Thanks
Like
Helpful
HugInterested in more discussions like this? Go to the Digestive Health Support Group.
What does CIP stand for?
-
Like -
Helpful -
Hug
1 Reaction@mayorocks I did a lot of research about the monster in my belly. Read an article about success getting rid of them by blasting them with Coca-Cola! Seriously! No docs in my area would do that though.
So without my doc’s blessing, I started drinking a couple of cokes a day on an empty stomach. (Not supposed to drink cokes when you have Barrett’s.) When I had my 2nd RFA 10 months later, the doc said the monster was gone.
Now I’m not going to say that I got rid of it by drinking cokes because I’m sure that the extremely low fiber diet and taking domperidone had a lot to do with it!
-
Like -
Helpful -
Hug
1 ReactionVERY interesting. It would be worth trying your route to avoid surgery. I read somewhere that the endoscopic equipment can sometimes chop them up so they go through, probably much smaller than yours I guess. Or possibly it has a suction to vacumn, up the pieces it chops. I am just guessing. I am not sure much gets through me since even liquids are slowed.
I know coke has been said by someone to be very corrosive and that you can pour it on battery cables attachments in car to bubble off corrosion. Don't know if its just the carbonation or what but I did that once. If I end up having one I will write again to see where you read it etc.
did you have side effects, good effects or what with domperidone? I have thought about trying to get on it as I sure don't like this diet or the prognosis for improvement on average.
-
Like -
Helpful -
Hug
2 ReactionsNo bad side effects at all with domperidone. I have to get it from Canada because the FDA has not approved it. And I think it must be helping me. Of course I’m sure the extremely low fiber diet helps too.
By the way the domperidone cost me $80 for 200 10mg tablets. I’m supposed to take them 4 times a day but I only take it twice a day — before breakfast and at bedtime.
So that’s a 100 day supply for me.
Domperidone was a Godsend for me for a couple years but now its not very effective. Does still keep my all liquid diet down.
-
Like -
Helpful -
Hug
1 ReactionI did that in the beginning as well.
-
Like -
Helpful -
Hug
1 ReactionCIP stands for chronic intestinal pseudo-obstruction. It is a rare potentially disabling disorder characterized by abnormalities affecting involuntary coordinated muscular contractions of the gastrointestinal tract.
-
Like -
Helpful -
Hug
1 ReactionI don't know if my doctor will put me on domperidone but if he does, can I get the address in Canada where you order yours from?
-
Like -
Helpful -
Hug
1 Reaction@beanglow I did not do well with domperidone.. I cannot remember which side effects I had now. I have them written down somewhere. I got my prescription filled at a local compounding pharmacy. I live in Albany, GA. I just got a couple of weeks worth or so to see if it helped and I could tolerate it. It did not help me nor could I tolerate. I cannot remember pricing.
-
Like -
Helpful -
Hug
1 Reaction