Thanks for your reply. When I went to Mayo they didn't think I needed a feeding tube and just told me to stay on Boost. I used to weigh 135 pounds and now I'm down to 101 pounds and keep losing weight. Who was the doctor you saw at Mayo? The doctor that I'm staying in touch with there really hasn't been helping me. I'm trying to get into a doctor at the University of Michigan who is a specialist in Chronic intestinal pseudo-obstruction CIP. I just don't know how much longer I can continue to live like this. It sounds like being on the feeding tube did help you gain some weight back. Did you have the tube through your nose or in your stomach?
I go to the Mayo Clinic in Jacksonville. I initially went there for surgery… I had 3 there. I think first surgeon was a Dr Smith, but he left and then Dr Bowers did the last two.. gastric bypass to fix a stubborn paraesophageal hiatal hernia. I had complications from that surgery (just my body and not surgeon's fault) and the last surgery in 2015 had to be an open surgery to repair the damage from the complications. It was Dr Smith that had me see one of the gi drs there that prescribed the med for gastroparesis cannot remember his name. It was to rule out if the gastroparesis was causing my pain and weight loss. The problem was where a surgeon in my hometown had placed mesh to fix the hernia. I now see a NP, Lois Hemminger who is under the guidance of Dr Dawn Francis.
I had the feeding tube in what they call the remnant stomach. In gastric bypass the stomach is divided… the other portion where real food goes is called a pouch. It is about the size of an extra large egg. So I can only eat about a cup of food at a time. Because the sphincter does not work correctly all the time the food can stack up into my esophagus. That is one reason I may have to go to a feeding tube again. There are a couple of surgeries that can help.. but things will have to get worse before they are considered.