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Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March - which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet - pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn't move through - then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling - It seems to work by drinking just water /gator aid for at least a day. I just don't know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn't seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach - I never seem to have stomach pain - Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition - what are your symtoms and how are you managing? Thanks
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I take ondansetron odt it helps with nausea.
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1 ReactionYes I am 52 years old and had to leave work a year ago. I have mild gastroparesis with severe unrelenting nausea and pain. I just started Marinol, but my gastroenterologist hadn't really used the drug , but wrote 2.5 mg twice a day. Not enough. 5mg gets rid of nausea, but I still have this unwell feeling in my stomach. I have had a hiatal hernia with reflux since I was 22, but I've done well with PPi. I started developing nausea around 2007 plus I was developing lower extremity neuropathy. Zofran worked good for several years, but no longer effective . The first of December I went into a severe nauseated state that doesn't let up. I do NOT vomit. I can't live like this . I was to afraid of Reglan
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1 ReactionI have gastroparesis too and sometimes I use an oil by Doterra called Stomach ease and it works great for nausea. I get it online or at a health food store. Just a thought, Robin
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2 ReactionsI have osteoporosis which has gotten worse over the last five years. Two years ago I noticed when I ate to much, such as Thanksgiving dinner about an hour later I would have a pain above my left eye, pain in my left collar bone and indigestion. This was very infrequent. Since April I now have GERD which causes hoarseness, mucus and clearing of my throat. I have been going to a gastroenterologist the last two months and mentioned I thought my vagus nerve was causing this. He said no and gave me medication for GERD. This has not helped. I have read all the information on gastropareses and know this is what I have. How can I convince him?
I have given up trying to explain that I have Crohn's, GERD, diabetes, and a lot of pain. If my family had arthritis I had the same problem I am told. All was false diagnosis. I've been telling different doctors that I was cured in 1960, but because it was not drugs that couldn't be correct. Now I learned all about GERD, diabetes, Crohn's, and memory all controlled by the same source. My treatment in 1960 by an Italian Doctor was shots of: Methionine, B-12, and vitamin K. A two week treatment and I avoided surgery to remove part of my inflamed intestines do to severe pain. Last year from a neck pain I solved all my problems. I noticed eating bread and sugar increased my pain but eating vegetables decreased the pain. I changed my diet per a friend suggestion and the following happened. I was able to stop all my bodies pain including neck, hands, lower back, and knees area intermittent pain. Also by it self GERD stopped. I had it for over 50 years but I knew from the Italian treatment it stopped for 3 years. My diagnosis is the liver since Methionine cleanse the Free Radicals of the liver and I am sure it does other things. I located some liver supplement pills but it helped until I ate the wrong food again. Now I have GERD completely under control and so my intestines and memory. Also my diabetes reversed to normal. I removed bread and any flour products, removed all carbohydrates, soft drinks or any thing with preservatives. I make fresh smoothie drinks fruits and raw vegetables and it controls all my pain within one hour. I eat what I shouldn't and get the pain activated and Neuropathy, but vegetables specially raw vegetables is better than any drug medicines. Why doctors keep it secret? The Internet is full of good information about what I am talking, but no one wants to hear specially when they hear about that bread is the source of many diseases. Sugar also. My neck pain have been my trainer and learning even to pay attention to fresh fruit sugars. So far so good since after many blood test and Ct Scan I was told by my doctor that I figured out there is no medication for me. I also lowered my blood pressure to normal and healed all my ulcers that was on my esophagus from acid stomach. I wished I knew all of these 50 years ago and not suffer from GERD like I did. Try what I am saying it will cure you in few days. I hope it will help you.
Hello @2thnkpztv,
Welcome to Connect; I'm sorry that you are experiencing these symptoms, but also glad to know that you are being an advocate for your health. You will notice that I moved your discussion to this group within Digestive Health, as I thought you might like to connect with others living with gastroparesis.
I'm also tagging @gingerlyn, @clemlaa, @citygirlannie, @margieg, @sherry8034, @katmandoo, and @faycarole, with the hope that they can share their experiences with you; @mrsdeecee, do you have any suggestions for @2thnkpztv with regards to the hoarseness due to GERD?
Here is some information about treating gastroparesis from Mayo Clinic http://mayocl.in/2gc3xYu.
@2thnkpztv, have you considered getting a second opinion? Since the medication is not working, how are you managing your symptoms?
Have you gotten any answers I am dealing with this exact issue now I know this is an old thread , hoping for some help.
What is your health problem?
I started about 6 month ago with severe bloating ,GERD type symptoms , pain in the upper abdomen, vomiting, nausea feeling full rapidly .After being told I had Gerd alone and medication not helping , also being told it was stress my gasto did more tests and it came back as Mild Gastro-paresis but my symptoms are severe .
Thank you. Yes mine is very severe but if I watch what I eat the pacemaker works great.