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Gastroparesis with severe symptoms!

Digestive Health | Last Active: Jul 12 3:06pm | Replies (454)

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@fourof5zs

@beanglow, I had to be on a feeding tube for a bit over a year. It was a bit hard to get back to eating food. I had to add foods pretty much one at a time. Starting with blenderized foods and then progressing to the soft cooked vegetables and fruit (nothing raw, no skins of seeds) and tender meats. I have learned to stay away from fibrous food. If I eat broccoli I can eat florets (cooked soft), but not the fibrous stems (even if they are cooked soft). I am able to eat a few roasted nuts and a little peanut butter, but they tend to give the gassy stomach, so the amount is low.. good source of nutrients and fat.

Eating is difficult when you have upper and lower digestive issues. I am down to 120lbs. I eat something every 2-3 hours during my day hours. Last visit to Mayo they said if I cannot at least maintain weight I will probably have to go back on the feeding tube. I went off of it in Oct 2015 and they wanted me to stay at 140lbs. I think I managed to do that for about 4 months. I lost 20 lbs, but managed to get it back up to 135 after a few months. I was up to 138lbs January of last year and this January I was down to 117lbs. I got it back up to 120lbs. There has been a lot of stress over the last couple of years and that makes it harder.

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Replies to "@beanglow, I had to be on a feeding tube for a bit over a year. It..."

Thanks for your reply. When I went to Mayo they didn't think I needed a feeding tube and just told me to stay on Boost. I used to weigh 135 pounds and now I'm down to 101 pounds and keep losing weight. Who was the doctor you saw at Mayo? The doctor that I'm staying in touch with there really hasn't been helping me. I'm trying to get into a doctor at the University of Michigan who is a specialist in Chronic intestinal pseudo-obstruction CIP. I just don't know how much longer I can continue to live like this. It sounds like being on the feeding tube did help you gain some weight back. Did you have the tube through your nose or in your stomach?