I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?
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Sorry to hear about your having to pay the price for several months! Most vegetables have sugar in them in some amount; the trick is to eat the lowest sugar ones possible. Tomatoes are technically a fruit, as are olives (never would have guessed that one!). Corn is a high sugar vegetable; the source of corn syrup, right?
RECLAST ALERT! More info on the Reclast infusion I had. If you have g.i. issues, DON'T get it! I finally had everything mostly under control after 17 years, and was actually sleeping lying down flat in the bed, etc. Now all food bothers my stomach, even that which used to be ok. I'm back on Prilosec and taking the maximum ashthma meds. I know it's the Reclast and not something else because I only change one variable at a time and getting the Reclast infusion was what I changed. I've also gotten a boatload of other quality of life threatening symptoms which I've never had before including labored breathing with exercise. Some non g.i. issues I already had were made worse by the Reclast. My primary doctor says to never get the infusion again, and even to not use any form of bisphosphonates of any kind such as pills. To see the list of about 118 possible side effects of ReclastI, go to the Mayo Clinic web site, select Patient Care…, then Drugs and Supplement A-Z, and then Zoledronic Acid (intravenous route). There are about 5 pages, the first being Descriptions, then Before Using (scroll down to Other Medical Problems and you will find stomach absorption problems), with the last screen being Side Effects. I only got 1/2 dose; wonder what hell I'd be going through it I'd gotten the full dose. The 1/2 dose should last 6 months; I'm 3 months into it and finally starting to feel little bit better the last day or so. I think it is because I've upped the amount of water I am drinking, to 11-12 8 oz glasses/day. Mayo says to drink 11 1/2 cups per day. I don't think this would include beverages with caffeine. That's it for now.
I have been an IBS sufferer for many years and over the last 3 to 4 years had become worse. That's when I found out about LOW FODMAP diet. Having adopted it, am much much better over the last 2 years. Fructose intolerance could be associated with other intolerances like Lactose and Sorbitol. Hope you got these tested and eliminated. Fructose is found in many fruits — Mangoes are the worst; jack fruit, very ripe bananas are others. I use an ANDROID app called "FODMAP" from Monash Univ, Australia — who pioneered this diet. They have tested a large number of food sources and provide details of lactose, fructose, sorbitol content in different food items. You might find this useful to find the low FRUCTOSE foods.
As mentioned in many clinical articles on IBS — there is high variability on individual tolerances for specific foods. Hence the advise on necessity to find out our own tolerance levels for many of those in the grey zone. I find that I do not tolerate most of those marked RED in the FODMAP app — which means my problem is similar to many others. I tolerate Tomatoes and carrots well – even in large quantities — but raw Cucumber and green pepper in small quantities only. The FODMAP app indicates the average levels with tolerable quantities suggested based on their testing. Green pepper is suggested in small quantities only. Yellow and Red varieties are better tolerated than the popular green. All the best in your quest to quieten you guts !!
Sorry to hear you are suffering so much from the use of Reclast. The medicine can be harsh on your stomach will explains the use of Prilosec. I think asthma might be a disconnected issue.
The following are my recommendations;
1) Try Lutomerase (xylose isomerase) to take care of fructose intolerance.
2) Take probiotics everyday. It helps to fill your gut with good bacteria and eliminate the bad bacteria that feed on fructose and give you IBS.
3) Take infused ginger water prior to eating. It helps IBS and digestion.
4) Take digestive enzyme containing Betaine HCl to breakdown and emulsify the food.
5) Take turmeric pills (curcumin) for digestion and inflammation.
6) Either see a Chinese or Indian Herbalist as in lot of instances like this naturopath has worked wonders and I strongly believe in it.
7) Do water aerobics and weight bearing exercises.
I hope you start feeling better.
Thanks for your suggestions. Many of the symptoms move around a lot, and right now g.i. issues are almost normal. Still get out of breath with exercise, though, especially weight bearing exercise. I had to go to the E.R. several weeks ago because hadn't been able to catch my breath for 2 days, and all of the tests were normal. So, since the problem started after getting the Reclast infusion, I think that is the cause. Two and one-half months to go!
The bottom line here if something bothers your stomach don't eat it! Trying to take supplements and medication so we can eat the foods that don't agree with us only causes further problems and side effects. There is very little I can tolerate but if I avoid those foods I feel better. In N Dakota for the summer and relatives love high carb foods, it's been very hard for me to stay on my diet because often there is nothing I can eat, ie potatoes, corn on the cob, macaroni salads ect and people get offended if I don't try their "dishes". I'm best to stick to proteins and some vegetables, they think i'm nuts but a lot of them are ill also but don't realize it's the foods.
@lelia
It helps with small amounts of sugar, like in potato chips, nuts, and drugs/supplements with problem "inactive" ingredients. I get it from bulk supplements.com. I don't eat many nuts because but occasionally a few are ok. Good luck. Maybe the disolute mentioned three posts up would help. I haven't tried it yet.