I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?
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Hi – How is disolut working out for you? We ordered 6 more boxes from Ebay. I usually like to stock pile them since I don't know when they will stop making it. We had the problem with Fructozym where we ordered for 4 years and then they stopped making it. We haven't had the need to provide anything for Fructans since the disolut is helping. I am researching to see if there is a way to revert this problem.
There are 2 enzymes called Glut-2 and Glut-5 that seem to play an important role in this process and improper functioning of these can cause the problem. Hopefully, there is a way to fix it.
Hi Lelia, I haven't been on the site for the 3 weeks I was at Mayo. So many tests and consultations. I do have a diagnosis of (CIP) which I did not realize is a rare potentially disabling gastrointestinal disorder characterized by abnormalities affecting involuntary coordinated muscular contractions (a process called peristalsis) of the gastrointestinal (GI) tract. One cause could be Mixed Connective Tissue Disorder or numerous other things. It can go into Cachexia which is a physical wasting syndrome characterized by loss of weight and muscle mass. I was hoping for better news. The doctor has me on a plan which is not working very well. I will be talking with him again on the 30th.Thanks again for all your help and support. Elaine
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Another recipe, for breaded baked chicken. I used Trader Joe's frozen chicken pieces, thawed, because there are no bones, and Cream of Rice (raw) for the breading. Mix the cream of rice with a little salt and pepper and whatever herb you want. I used sage and thyme. Did the chicken pieces in a beaten egg and then in the breading mixture. Place on a greased baking dish and bake at 350 degrees for 30-40 minutes until chicken is done. This comes out with a bit of a crunch and is quite tasty.
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Thanks for the encouragement. I need it right now. Hopefully, things will get better in time. I've been doing more research on CIP but there is not a lot about diet. The nutrition people said one thing but the doctor said the opposite so it's hard to know what to do. I have a lot of questions for him when I do get to talk to him again. I will keep you posted. Elaine
@lelia
So sorry you have FM and SIBO and lactose intolerance. I do too. I listed what I eat, along with a few recipes, on p. 5 of the fm discussion. Regarding glucose tablets, I tried them once before I knew to check out the inactive ingredients, and they didn't agree. Should try to find some again. All I know is right now all sugars of any kind are bothersome. It is hard to have much energy when you can't eat sugar, right? Anyway, if you read through this entire discussion, you might find something that will help. It took me over 15 years to get to the point where I am "stable," so I put down everything I learned in these discussion pages to spare others from having to start from scratch like I did. Good luck.