I'd like to start a discussion on fructose malabsorption, how to control it, what to eat and not eat, etc. . Is anybody interested?
Liked by Mamacita, Alumna Mentor, Leonard, grachelg, graceandpeace
@gut health, @jackiem95, @pjss48, @redhead63, @sarcomasurvivor, @gracheig. I called Mayo and they sent me the 20 page FODMAP Eating Plan and the Fructose Malabsorption Eating Plan since I am a patient. It quickly became apparent that neither would be that helpful for me. I couldn't eat a large part of the stuff in the FODMAP elimination phase so there would be no point in reintroducing the suggested foods. Also can't eat a lot on the fm plan. So, I saw a nutritionist locally yesterday about whether what I am eating so far is good in terms of nutrition, etc., and she said it was. That is nice to know. Am still trying to introduce some new foods, though, and it is helpful to know how long to wait between experiments, which the Mayo plans tell you. The FM eating plan had a couple sentences near the end that said something very true: "Changing what you eat and drink may not be easy at first. Think of these changes as a new lifestyle, rather than just diet changes. Make these changes part of your daily routine for the best chance of feeling better." That is the point I had come to because there had been no other choice. I had gotten so I had pretty much forgotten about the diet changes and restrictions until I started this discussion on Mayo Clinic Connect. Then it all came back big time. But, I wanted to share what I had learned to make it easier for others. If nothing else, know that it is possible to get to the new lifestyle phase! It may not seem like it, especially at first, and it will take some time. Don't give up. And thank you all for your input.
@jackiem95, @guthealth, @baponline, @pjss48, @redhead63, @sarcomasurvivor, @gracheig. Just discovered a delicious truly no sugar bacon that went down fine! It is made by a company called Pedersen. There are 2 varieties. 1. Uncured No Sugar Buckin Bacon (pork, hickory smoked). 2) Uncured no sugar hickory smoked turkey bacon. Health food stores may carry these, but not here. Here they carry a Pedersen no sugar pork bacon that does contain the added natural sugars citrus extracts and pomegranate extract. You can order the bacon by calling the Simple Grocer 1-325-451-7545. (Simple Grocer is the distribution center for Pedersen products.) The bacon is shipped frozen in dry ice. The Buckin bacon is lower fat than the usual bacon, which is a good thing. It is probably the best bacon I've ever had.
Hi Mayo Clinic Connect community,
About 2 years ago, I started having excessive gas and to a lesser extent increased belching. I have no other gastrointestinal issues – no bloating, diaheraa, or constipation – but the gas is really bad to the point that I’ve spent the last year restricting my diet and avoiding dating out of embarrassment.
Right now, I’ve found that the gas is reduced if I restrict my diet to plain Greek yogurt, avocados, lean meats, white rice, soy sauce, plain bagel, and cream cheese. That’s not a long list and not a sustainable diet, I know. I’ve noticed increased gas when I eat eggs, oatmeal, sugary muffins and cookies with high fructose corn syrup.
I was diagnosed with some type of sucrose intolerance when I was 10 years old. My symptoms then were vomiting and stomach pain. It was so long ago there may have been symptoms I don’t remember. Either way restricting/eliminating sucrose from my diet eased my symptoms. My doctor thought I would grow out of it and 2 years later I was able to eat sucrose without those nasty symptoms. But with this new digestive issue, I wonder if sugar malabsorption is an issue.
I’m seeing a GI doctor about this next week Has anyone else had excessive gas as your only symptom? Did you get a diagnosis?
Thanks!
I have been having acid reflux for over a year and have recently been diagnosed with fructose malabsorption. Trying to stick to a food plan. Always feeling the reflux and heartburn. On omeprazole 20 mg. There are no fruits I can eat between the 2 conditions and this is upsetting. I do not eat or drink wine, coffee, carbonated drinks, garlic, onions, pepper, chocolate , vinegar, all citrus, all fruits, mint, tea, tomatoes… and yet I still feel sick almost after every meal. I also get migraines on occasion. Any advice on what I can still do to feel good!
Hi everyone,
You may notice that I combined your messages with this existing discussion on fructose malabsorption. I did this as I thought it would be beneficial for you to connect or reconnect with members who are discussing much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
If you have a mild case of fructose malabsorption the main symptom could be excessive gas, I think. I have an extreme case, and before it was diagnosed I had so much gas I had "explosive" belching. Also had other symptoms as well, many of which could be related to the gas like GERD, bloating, etc. Good thing you are going to a GI doctor.
I'm so sorry you're still having problems. What you don't eat sound so familiar! I posted a diet and recipes further up the pages in fructose malabsorption, and also info re sugars in drugs and supplements. Omeprazole has sugar in it; that probably isn't helping It's possible you might also have lactose intolerance and small intestinal bacterial overgrowth. After over 13 years I finally got to a point where I am stable with the fm, so started this fm discussion to help others in the same predicament. Hopefully you can find some answers and get it under control!
Liked by harmonyln
I have been diagnosed with fm and lactose intolerance and acid reflux . I no longer have bacterial overgrowth. I do not have gas. My symptoms were constant heart burn and bloating. Yes now see a nutritionist and started a Low FODMAP diet with the elimination of foods for fm and reflux. I have also been taken off gluten. There is not much that I can eat. And only drink water. I have eliminated my vitamins and pro biotic since they all have some form of sugars not allowed. Would love to find a probiotic, calcium and multi vitamin I can take. My menu is basically salmon, chicken, quinoa, brown rice all gluten free.. oatmeal, hard boil eggs, carrots and cucumbers, lettuce. I tried a half slice of Muenster cheese in an omelette and had severe diarrhea. I was a cheeses addict before this all started. So I will try it again at some point maybe a quarter of a slice and maybe fat free. I tried tuna in oil and felt terrible after. So no oil for me. Will try in water soon.
Nutritionist is very helpful. Also doing stress management excercises. I have not touched a fruit in about a year. Trying to feel good for more than 5-6 days.
Low FODMAP diet has a lot of sugar in it, even the "maintenance" dose before you start reintroducing more FODMAPS. I can't eat any FODMAP foods to speak of. Brown rice hulls have chains of fructose in them called fructans, so you might want to switch to white rice. Carrots, cucumber and lettuce have sugars in them. Most vegetables do have sugar in them. If you read through this entire fm discussion entry you may get some ideas of what to take/eat. For example, I tell the brands of the drugs and supplements (including calcium) I take that may work for you as well. Again, good luck!
Hello, I am the mom of a 13 yr old boy with fructose malabsorption. He was finally diagnosed at Mayo 1st week of June 2018. He finally became pain free once we eliminated fructans, although I did not realize there are fructans in potato skins! Regarding L-alanine, how much do you take per body weight? do you need to take it on an empty stomach before you eat food? We have had no help in re-introducing foods. Dieticians repeatedy tell us "everyone is different, you just have to try." When my son has even 3 bites of a food, he reacts 6 hrs later and is laid up with abdominal pain, weakness and severe constipation for 5-6 days. As a mom, it is very sad to see my son curled up for so long and he is missing school. Do you have any suggestions on how to choose foods to re-introduce and how to decrease the likelihood of a reaction? Thank you!!
Liked by jeanneschnepper
@grachelg
Oh and I don’t have any symptoms of IBS no diarreah, constipation, gas just horrible heart burn and headaches and feeling overall sick. Lately getting laryngitis from it too.