@saucy

As it ferments in my upper intestine it starts to cause gases and pushes up the acid, I've had surgery so it no longer gets into my esophagus but burns in my upper stomach.

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Undigested food fermenting in the small intestine is probably small intestinal bacterial overgrowth (SIBO). Have you been diagnosed with that?

@lelia

Sounds like you have fm; could get a second opinion.

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i have it for sure, no doubts!! My point is tests are not always accurate!

Was just responding to other comments!

@lelia

Undigested food fermenting in the small intestine is probably small intestinal bacterial overgrowth (SIBO). Have you been diagnosed with that?

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I had some when they did my scope at Mayo but fruit and some fibers also ferment when I can't digest them properly. The next day after cutting out fruit was finally off my meds I had been on for 20 years.

@lelia

Sounds like you have fm; could get a second opinion.

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There are lots of good books on the subject also, Plant Paradox by Dr Gundry is excellent.

@lelia

No need to apologize! Welcome! Definitely you can have a delayed reaction! Especially in the case of fructans (chains of fructose) but also with fructose. For me if delayed it is usually 8 hours or so, so I eat iffy things in the morning. I find a reaction depends partly on how much fructose/fructans is already in my system. If I have closely followed the diet for three of more days I can usually get away with eating something I couldn't if I'd eaten something I shouldn't have the day before. It is very difficult to find a pattern; it took me about 10 years. Why don't you try the diet I've listed in this fm discussion section? I think it is on about page 5. Fructose is in tons of stuff. You may need a _no_ fructose diet; that's the case with me for the most part. I can't even digest artificial sugars. Best of luck.

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Thank you! I will take a look at the diet. That's crazy that a reaction can happen so long after eating something bad.

I just found out I have sucrose intolerance. Every time I ate I had severe gas and distended abdominal. I want to know how anyone can afford Sucraid?

@sue6408

I just found out I have sucrose intolerance. Every time I ate I had severe gas and distended abdominal. I want to know how anyone can afford Sucraid?

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I've never heard of sucrose intolerance. Will have to to some research. Since sucrose is a combination of fructose and glucose, have you been tested for fructose malabsorption? I have fm and cannot tolerate sucrose or glucose.

@sue6408

I just found out I have sucrose intolerance. Every time I ate I had severe gas and distended abdominal. I want to know how anyone can afford Sucraid?

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It's a fructose intolerance or malabsorption, never heard of Sucraid but best things is to cut all all fructose, fruits, sugars ect

How is this problem diagnosed and what kind of symptoms do people have?

@saucy

i have it for sure, no doubts!! My point is tests are not always accurate!

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I think that is so true. A lot of tests with "numerical values", like lab tests, are based on statistical averages for what is "normal", but there are always people who fall outside of the 'norm". "Old school" docs say you always have to listen to the patient, not just rely on the test results. I think now often docs rely too much on the tests and numbers.. for example, maybe your colon or stomach emptying isn't "slow" per the official numbers, but maybe it's slow (or fast) enough to be causing trouble for you as an individual if you have symptoms related to that. So you treat the symptoms.

@elle1233

How is this problem diagnosed and what kind of symptoms do people have?

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It's a breath test but I had it done before I had the Linx surgery and it was negative. The best way is the elimination diet. I was still on PPI's after surgery and once I cut out fructose with in a day I was off meds. Now if I have any I react to it. It's in everything, on whole foods diet, cook everything myself so I know what's in it.

@saucy

It's a breath test but I had it done before I had the Linx surgery and it was negative. The best way is the elimination diet. I was still on PPI's after surgery and once I cut out fructose with in a day I was off meds. Now if I have any I react to it. It's in everything, on whole foods diet, cook everything myself so I know what's in it.

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TY! So, it was that dramatic, cutting out fructose and you felt better? What kind of symptoms were you having?
Yes high fructose corn syrup is in so many things! I've been trying to cut it out for general health reasons, and it's amazing what it's in. I've never tried no fructose for any length of time. Basically you are cutting out fruit and things with high fructose corn syrup?

I have some documented problems but still at a loss for what is driving my problems, and as far as diet, I have no idea what to do – it seems eating in general bothers me, but if I could at least know more specifically what does and doesn't bother me, that would help.

@mrsrlp

I have dealt with lymphatic colitis for 40 years. I am 76 now and have just been treated for H-pylori 4 months ago. My breath test has shown Fructose Malabsorption rather then SIBO. Not sure I am glad for this diagnosis. The SIBO I could treat with antibiotics and not as strict a diet. I see my doctor this week and then a dietitian to learn how to eat very different from what I have been eating with the colitis. One diet seems to hinder the other. I feel to old to change my ways but something else to learn now. I was never a real sweet eater until I found out I can't have it. LOL There are so many things I have to throw out and I plan to have one cupboard just for me. My DH can eat anything and I make sweets for him all the time, what an adjustment. Sorry if I sound a little down or pessimistic about this, I know over time I will adjust. I have been reading some of your posts and am encouraged by them. I will return with my journey after Wednesday.

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Where did you go to get the Fructose Malabsorption diagnosed and to see a dietician who understood and could help you know what to eat. I had SIBO diagnosed at Mayo, but the Doc I see, who is a fellow, doesn't appear to understand it, nor be interested in treating it, and I thought I was seeing a "special GI dietcician" who could help me, but she hadn't even heard of these problems. Very disappointing. So, I'm looking for a center that deals with SIBO. Johns Hopkins has what looks like a good SIBO specialty program, was wondering if there might be something closer to the midwest. 🙂

@saucy

I agree, I can't eat any fruit including cucumbers, peppers, tomatoes, ect which are also fruits!! There are many foods on the FODMAP diet I can't tolerate

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So, if you eliminate all of these things and feel better, do you assume you have fructose malabsorption (or I would assume at least intolerance? How long do you do the elimination to be sure it is the problem? If I could find a good GI dietitian/nutritionist, I'd ask! I often find patients are excellent sources of information!