Finding Joy in the T

Posted by georgescraftjr @georgescraftjr, 5 days ago

In the forum for cancer support, someone posted discussion, "What Gives You Joy?" If people dealing with cancer can find joy, so can we caregivers of someone who has dementia.

I would love to know what gives you joy, and I want to share what gave me joy this morning.

Before I tell you about this morning's moment of joy, I realize that taking care of someone with dementia can reduce us to a demented version of our former selves: It gets tiresome answering the same questions; scheduling doctor appointments; refilling medications; washing soiled laundry right after putting on fresh linen or clothings, etc., over and over again. This is especially true when the person for whom we are caring are verbally abusive or otherwise unpleasant.

It's Sunday, and I'm enjoying my cup of coffee and listening to KDFC.
For those who are Christians, I know you are making a "joyful noise."
And for those of you who are not Christians, try to be of good cheer:

"...oh the towering feeling
Just to know somehow [he/she is] near
The overpowering feeling
That any second [he/she] may suddenly appear." --Frederick Loewe (music) and Alan Jay Lerner

Find your "Sunday in the Park":
https://www.allmusicals.com/lyrics/sundayintheparkwithgeorge/sunday.htm


Blessings,
George's Wife

P.S. I found this forum because "Someone left the cake out in the rain" and "I [didn't] think that I [could] take it" "‘Cause it took so long to bake it." -- Richard Harris

Gone are the days when George physically kissed me--and "the world stood still"; but thanks to this forum (my imaginary "high and windy hill"), you fellow caregivers "touched my silent heart and taught it how to sing." Because of your inspiration, I am even more certain that:

"Love is nature's way of giving, a reason to be living
The golden crown that makes a man a king." -- Sammy Fain and Paul Francis Webster

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for ocdogmom @ocdogmom

Thank you all for sharing and caring. This site has saved my sanity and given me the support I know that I need to keep on keepin' on. I truly believe that God will provide what I need when I need it.

Jump to this post

@ocdogmom

You were one of the first members I contacted personally, and I continue to be in awe of your devotion to providing the best care possible for your husband comfortable. I am thankful for your posts, and inspired by your ability to help so many of us individually and as a group.

Through the high bar you set, you have raised dementia caregiving to "glorious quest" albeit a "journey we did not choose":

REPLY
Profile picture for georgescraftjr @georgescraftjr

@ocdogmom

You were one of the first members I contacted personally, and I continue to be in awe of your devotion to providing the best care possible for your husband comfortable. I am thankful for your posts, and inspired by your ability to help so many of us individually and as a group.

Through the high bar you set, you have raised dementia caregiving to "glorious quest" albeit a "journey we did not choose":

Jump to this post

@georgescraftjr

Sorry for my sloppy post.

REPLY
Profile picture for ktcosmos @ktcosmos

I seem to stand alone in this after browsing the replies, but tender love songs only remind me of what is lost.
Consequently when I’m alone in the car I just blast my favorite non-love songs.
Joy is a few moments to spend with grandkids and or on my hobbies (too numerous to list). Instead of mourning the loss of time for those activities I’m trying to train myself to live with a a smattering, like two rows of knitting or a few minutes of gardening and breathe deeply while doing those things. Maybe while listening to a little Otis Redding, Aretha or AC/DC.

Jump to this post

@ktcosmos at Otis Redding, "These Arms of Mine" - what a wonderful memory to wake up to, Best, Karla

REPLY
Please sign in or register to post a reply.