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Doctor Checkup Tests/Anti-inflammatories

Posted by neffscott @neffscott, 3 days ago

Hello. I'm new to this group. I'm in year 4 of living with long-covid. I think we can all attest to how debilitating this disease is. I have not been employed since getting long-covid.

What we know currently about long-covid is that it's an inflammatory disease that's underpinned by microvascular dysfunction (source: Emma Wall, Senior Clinical Research Fellow at the Francis Crick Institute).

I have been taking supplements for symptom control and immune symptom support. I also try my best to stick to an anti-inflammatory diet, which is a challenge.

I have my yearly follow-up with my primary physician soon.

My question to the group is, are there any tests you've done to address inflammation levels in the body? Cellular or liver tests?

Is anyone taking anti-inflammatories such as Colchicine/rivaroxaban/H1-2 blockade, Metformin, Methylprednisolone or Monteleukast?

Thank you.
In solidarity, Scott

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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onpainsufferer | @onpainsufferer | 1 day ago
In reply to @vostie "I have had great luck with low dose naltrexone for inflammation. It is supposed to work..." + (show)
Profile picture for vostie @vostie

I have had great luck with low dose naltrexone for inflammation. It is supposed to work by modulating the immune system. For me 6 years into long covid, it took my pain levels down about 50% after 6 months. I have now been on it over 1 year and have less pain and more energy...not back to pre covid levels but I can now walk about a mile a day. I still have to pace myself or I will crash and still take an afternoon lie down to refresh/rest and go to bed early after dinner but most of the day, every day, I can do things again.

It does take several months to work up to a dose that works on naltrexone so give yourself time if you try it. It can give you insomnia or make you sleepy so I had to vary the time of day I took it as higher doses affected me differently but at 4.5 mg in the morning, it is working for me.

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@vostie have you had any other symptoms from LDN. My insomnia was bad before LDN due to severe migraine and occipital nerve pain, so even with vivid dreams I’m not sleeping worse. But I find the morning to midday (take LDN at night) nausea and dizziness really bad most days. I’m only 2.5 months into and doctor’s still slowly increasing dosage.

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vostie | @vostie | 1 day ago
In reply to @onpainsufferer "@vostie have you had any other symptoms from LDN. My insomnia was bad before LDN due..." + (show)
Profile picture for onpainsufferer @onpainsufferer

@vostie have you had any other symptoms from LDN. My insomnia was bad before LDN due to severe migraine and occipital nerve pain, so even with vivid dreams I’m not sleeping worse. But I find the morning to midday (take LDN at night) nausea and dizziness really bad most days. I’m only 2.5 months into and doctor’s still slowly increasing dosage.

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@onpainsufferer after about two weeks, I moved my LDN from evening to morning and that stopped the insomnia. Some people in the long Covid support group have had more side effects than I have. I never had nausea or dizziness with LDN. Some people notice the effect of the opioid receptor opening 2 to 4 hours after they take LDN and they tell me they feel it as anxiety. But that shouldn’t be causing side effects in the morning if you’re taking it in the evening.

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joanland | @joanland | 1 day ago
In reply to @djg3012 "I am in year 4 also. Is Metformin supposed to help?" + (show)
Profile picture for djg3012 @djg3012

I am in year 4 also. Is Metformin supposed to help?

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@djg3012
Metformin, prescribed off label for Long Covid, has helped me. What does it do? I don't know, but it increases my feeling of well-being. I started at 500 mg/day with food and am now on 500 mg bid with food, so I take a 500 mg tab with bkfst and another 500mg tab with lunch. The addition of the second 500 mg dose is because my A1C was creeping up.

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