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Doctor Checkup Tests/Anti-inflammatories
Hello. I'm new to this group. I'm in year 4 of living with long-covid. I think we can all attest to how debilitating this disease is. I have not been employed since getting long-covid.
What we know currently about long-covid is that it's an inflammatory disease that's underpinned by microvascular dysfunction (source: Emma Wall, Senior Clinical Research Fellow at the Francis Crick Institute).
I have been taking supplements for symptom control and immune symptom support. I also try my best to stick to an anti-inflammatory diet, which is a challenge.
I have my yearly follow-up with my primary physician soon.
My question to the group is, are there any tests you've done to address inflammation levels in the body? Cellular or liver tests?
Is anyone taking anti-inflammatories such as Colchicine/rivaroxaban/H1-2 blockade, Metformin, Methylprednisolone or Monteleukast?
Thank you.
In solidarity, Scott
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I am in year 4 also. Is Metformin supposed to help?
@djg3012 there is a recent study out of Brazil showing it didn’t help in a randomized placebo comparison that also included Fluvoxamine which did show some benefits. Seems like more helpful to prevent LC than treat from what I’ve seen in literature. Others may have different experiences though.
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2 ReactionsWish I could have gotten the vaccine in time-I had 3 days to get in a clinic--too late !!
@gojuli Thanks for the info.
I´ve been on metformin 500 mg-day for the last year. It has increased my feeling of well being. My neurologist prescribed it off label.
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1 Reaction@djg3012 wouldn't have mattered.The vaccine can't stop the virus from infecting the host.It supposedly helps lower the symptoms.Maybe it does,maybe it doesn't(in some people).No more shots for me though.Last one was like two years ago.Not that it matters now.
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3 ReactionsHi, I'm new to this forum however I'm glad to be here. I've got Covid twice, both times I had been current with the vaccine also. The last time was two years ago. Last fall, I started having "gout-like" symptons. Got on Colchicine and the gout subsided after a month or so. I was having pain in different area's, shoulder, wrist, thumb, ankle. sciatica. When it subsides in one area, it moves onto another. I've been through testing for all different autoimmune illness and nothing conclusive. For the most part, I take Motrin and it works but how long can I take that. I'm now going to go on an infusion drug to see if this can help. Its been crazy
After I got Covid, I noticed that I had minor dizzyness and some muscular pains. Still have them to this day. I'm going to talk to my doctor and see if maybe this could be attributed to having Covid.
@neffscott I tried a combo H1-H2 antihistamine for about a month, twice in the past year. I also tried the Celebrex/Valoacylvir combo for about two months. I think both regimens helped move the needle one notch toward feeling better but neither were a cure. One measure of inflammation is erythrocyte sedimentation rate (ESR) blood test, but mine was normal. My primary doctor agrees I have long Covid but doesn't know what to do about it. She is happy to prescribe things for me to try if they seem reasonable, so I keep looking and reading.
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4 Reactions@h2998sc I have been thinking about that!
I have had great luck with low dose naltrexone for inflammation. It is supposed to work by modulating the immune system. For me 6 years into long covid, it took my pain levels down about 50% after 6 months. I have now been on it over 1 year and have less pain and more energy...not back to pre covid levels but I can now walk about a mile a day. I still have to pace myself or I will crash and still take an afternoon lie down to refresh/rest and go to bed early after dinner but most of the day, every day, I can do things again.
It does take several months to work up to a dose that works on naltrexone so give yourself time if you try it. It can give you insomnia or make you sleepy so I had to vary the time of day I took it as higher doses affected me differently but at 4.5 mg in the morning, it is working for me.