Dizzy still after my liver transplant

Posted by livertrex @livertrex, Oct 4, 2019

Does anybody else feel light-headed and get very dizzy. I’m having to use a cane pretty wobbly. I had my transplant on August 22nd. Thought this would all go away by now. It’s the same feeling I had before I had my transplant with my old liver. Please respond thanks everybody

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@contentandwell

@rowdyramsey I am sorry that you are having so many difficulties but if they started 3 years after transplant I doubt they are connected to the HE episodes before. If your current doctors will not address these problems and try to find a cause then please change doctors. You deserve better treatment than that.
By the way, I have not seen my hepatologist since my transplant. I think that once you have a new liver there is generally no need to. I know that if I need her or if I have any questions for her that she is there for me but I only sent her a couple of questions one time, through the portal.
JK

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It started right after the transplant but by 3 yrs it had become so much worse! Thanks again for all your responses. You have been very helpful.

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@rowdyramsey, I hope that you will have a positive visit with your doctor. I look forward to hearing from you about how this issue can be addressed. You are always welcome here whether you feel good, or not so good! On Connect you are never alone. Rosemary

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@rosemarya

@rowdyramsey, I hope that you will have a positive visit with your doctor. I look forward to hearing from you about how this issue can be addressed. You are always welcome here whether you feel good, or not so good! On Connect you are never alone. Rosemary

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Has anyone had side effects from entresto that caused severe gastro upset. My husband and I went to Mayo in August and they increased the dose to 200 mg per day along with changing him from Coreg to Metroprolol. After that severe stomach upset. They have tested him for all the "bugs" out there and have treated him with flagyl and Cipro but it has not gone away totally yet.

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@jbilton

Has anyone had side effects from entresto that caused severe gastro upset. My husband and I went to Mayo in August and they increased the dose to 200 mg per day along with changing him from Coreg to Metroprolol. After that severe stomach upset. They have tested him for all the "bugs" out there and have treated him with flagyl and Cipro but it has not gone away totally yet.

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I have no experience with these meds. Before my transplant, I was bothered by nausea. That was 10 years ago, and I honestly do not remember what I might have been treated with.
I am happy to see that there is some improvement and I hope it will continue to improve. Did the doctors give you any idea of how long, or what kind of improvement you might expect?
Oh, I almost forgot to say Welcome! to Connect.
Is he a transplant patient? Is he waiting to qualify or is he on the list?

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@rosemarya

I have no experience with these meds. Before my transplant, I was bothered by nausea. That was 10 years ago, and I honestly do not remember what I might have been treated with.
I am happy to see that there is some improvement and I hope it will continue to improve. Did the doctors give you any idea of how long, or what kind of improvement you might expect?
Oh, I almost forgot to say Welcome! to Connect.
Is he a transplant patient? Is he waiting to qualify or is he on the list?

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He is being evaluated for a heart transplant.

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@jbilton

He is being evaluated for a heart transplant.

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@jbilton, You have caught me in one of my 'not so good' moments! I see that we have met in another transplant discussion – Preparing for a heart transplant. https://connect.mayoclinic.org/discussion/preparing-for-a-heart-transplant/
While waiting for a response here, I think you might generate broader viewing by also posting this question there, too.

The evaluation for a transplant is a strenuous process, isn't it? How are you holding up as caregiver?

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Yes it is. We come back to Mayo again next week for the lung side of things. Hopefully that will go as well as the previous 3 trips down on the heart side.

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