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livertrex (@livertrex)

Dizzy still after my liver transplant

Transplants | Last Active: Oct 9, 2019 | Replies (52)

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@contentandwell

@rowdyramsey I am sorry that you are having so many difficulties but if they started 3 years after transplant I doubt they are connected to the HE episodes before. If your current doctors will not address these problems and try to find a cause then please change doctors. You deserve better treatment than that.
By the way, I have not seen my hepatologist since my transplant. I think that once you have a new liver there is generally no need to. I know that if I need her or if I have any questions for her that she is there for me but I only sent her a couple of questions one time, through the portal.
JK

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Replies to "@rowdyramsey I am sorry that you are having so many difficulties but if they started 3..."

@contentandwell Directly after transplant surgery I was visited by my hepatologist daily. Then weekly, then once a month and now every three months. I still have blood tests done every 2 weeks. I expect when I reach my 1 year mark in late November he will ask to see me every 6 months. I'm not sure when the yearly visits start after that.

It started right after the transplant but by 3 yrs it had become so much worse! Thanks again for all your responses. You have been very helpful.

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