Dizzy still after my liver transplant

Posted by livertrex @livertrex, Oct 4, 2019

Does anybody else feel light-headed and get very dizzy. I’m having to use a cane pretty wobbly. I had my transplant on August 22nd. Thought this would all go away by now. It’s the same feeling I had before I had my transplant with my old liver. Please respond thanks everybody

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@livertrex
Congrats on the transplant!!! How great is life when you can finally set down the burden of waiting for a solid organ transplant! Yay you! I had a kidney transplant but also felt very dizzy post transplant. I guess my body needed time to adjust to being healthy…high class problem, right? It would be worth a call to your team or a maybe portal message. They will absolutely ask you standard questions like, what is you blood pressure running, are you hydrated, are you taking your meds on time, is it all of the time or when going from sitting to standing, etc. The better prepared you are with accurate answers the better the can hone in on your problem. I was able to get back on track with changes in diet and by giving my body time to adjust. Good luck and keep us posted.

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Thanks, I will keep you posted, I will talk to the doctors and be prepared.

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@livertrex I am 9 months post transplant and I get dizzy all the time. If I'm out and about the dizziness starts within 15 mins. I sometimes get dizzy walking up and down my stairs at home. I get dizzy in the shower sometimes too. I just keep hoping that it will pass.

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@gaylea1

@livertrex I am 9 months post transplant and I get dizzy all the time. If I'm out and about the dizziness starts within 15 mins. I sometimes get dizzy walking up and down my stairs at home. I get dizzy in the shower sometimes too. I just keep hoping that it will pass.

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Hope it gets better. I guess this is what has disappointed me the most.

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@livertrex I honestly do not remember if I was dizzy initially, but if I was it didn’t last for long. It does take a while for your body to heal and many of us are surprisingly very fatigued for a long time as our bodies do the hard work of healing and adapting, so I don’t think dizziness for a while is very surprising.
I am now 3 years post transplant and definitely have no dizziness now.
I wish I had kept a journal of the whole journey, from when we first realized I had a serious problem, through the transplant and recovery. I bought a book to bring to the hospital to record everything and I forgot to bring it. Of course I thought I would remember everything and record it afterward but the drugs made the whole time a rather surreal blur.
JK

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@gaylea1

@livertrex I am 9 months post transplant and I get dizzy all the time. If I'm out and about the dizziness starts within 15 mins. I sometimes get dizzy walking up and down my stairs at home. I get dizzy in the shower sometimes too. I just keep hoping that it will pass.

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Just a quick piece of advice, if you are feeling dizzy sit down or get your head low. I am very tall so I've learned over the year's if I feel dizzy or off balance it is best to just sit down, even if it's on the floor. If you do end up passing out it will prevent you from getting seriously injured.

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@jolinda

Just a quick piece of advice, if you are feeling dizzy sit down or get your head low. I am very tall so I've learned over the year's if I feel dizzy or off balance it is best to just sit down, even if it's on the floor. If you do end up passing out it will prevent you from getting seriously injured.

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I'm short, and never thought of that. Thanks, Jolinda!

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@jolinda

Just a quick piece of advice, if you are feeling dizzy sit down or get your head low. I am very tall so I've learned over the year's if I feel dizzy or off balance it is best to just sit down, even if it's on the floor. If you do end up passing out it will prevent you from getting seriously injured.

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@jolinda I too am short and I always find a place to sit when feeling dizzy. Most grocery stores here in London ON have chairs or benches near the doors. I always make sure I know where they are as i tire easily (still) maybe more exercise is what I'm needing. Working on that!

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@gaylea1

@jolinda I too am short and I always find a place to sit when feeling dizzy. Most grocery stores here in London ON have chairs or benches near the doors. I always make sure I know where they are as i tire easily (still) maybe more exercise is what I'm needing. Working on that!

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. I guess the best way to explain my be like getting out of bed in the
morning and bumping into everything because you can't quite get your
balance and everything is kind of moving around you. I know when I ride in
the car with my wife and she's driving everything's going to by me at
hundred miles an hour is frustrating.

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@livertrex

. I guess the best way to explain my be like getting out of bed in the
morning and bumping into everything because you can't quite get your
balance and everything is kind of moving around you. I know when I ride in
the car with my wife and she's driving everything's going to by me at
hundred miles an hour is frustrating.

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I went through the same thing several months ago. It left and came back again, but for a shorter period. I had no idea that it’s happened with other transplant patients. No problems with it for quite awhile. 🤞

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@jolinda

Just a quick piece of advice, if you are feeling dizzy sit down or get your head low. I am very tall so I've learned over the year's if I feel dizzy or off balance it is best to just sit down, even if it's on the floor. If you do end up passing out it will prevent you from getting seriously injured.

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@gaylea1 Great advice from @jolinda, and find it as quickly as you can. I had a Pre-syncope episode and knew I might faint so was heading to the sofa to sit. Before I made it out of the kitchen I went down on the tile floor and ended up with a fractured femur. Turned out it fractured because I now have rather severe osteoporosis which had not been diagnosed. I doubt it would have fractured if not for that but I’m sure I would have been quite sore.
Sometimes in the morning, if I didn’t get enough sleep I am light-headed. When that happens I will not drive even when it means skipping a water aerobics class.
JK

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@contentandwell

@gaylea1 Great advice from @jolinda, and find it as quickly as you can. I had a Pre-syncope episode and knew I might faint so was heading to the sofa to sit. Before I made it out of the kitchen I went down on the tile floor and ended up with a fractured femur. Turned out it fractured because I now have rather severe osteoporosis which had not been diagnosed. I doubt it would have fractured if not for that but I’m sure I would have been quite sore.
Sometimes in the morning, if I didn’t get enough sleep I am light-headed. When that happens I will not drive even when it means skipping a water aerobics class.
JK

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@contentandwell that is terrible! I hope you have healed. I've taken one tumble while walking around the block. I went down backward (luckily on a grassy area) and banged my head and my tailbone. My backside hurt for about 3 months. After that experience I've been very cautious.

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@gaylea1

@contentandwell that is terrible! I hope you have healed. I've taken one tumble while walking around the block. I went down backward (luckily on a grassy area) and banged my head and my tailbone. My backside hurt for about 3 months. After that experience I've been very cautious.

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@gaylea1 I am still limping and have not yet been able to return to my health club. It will be three months on the 21st. I believe if you have osteoporosis it takes longer to heal too, and the catch here is that lack of exercise makes osteoporosis progress more.
JK

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@contentandwell

@gaylea1 I am still limping and have not yet been able to return to my health club. It will be three months on the 21st. I believe if you have osteoporosis it takes longer to heal too, and the catch here is that lack of exercise makes osteoporosis progress more.
JK

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@contentandwell I believe the femur is a very strong b9ne and that healing a break is timely and painful. Hugs to you dear friend. The exercises for osteo are limiting.

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@gaylea1

@contentandwell I believe the femur is a very strong b9ne and that healing a break is timely and painful. Hugs to you dear friend. The exercises for osteo are limiting.

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@gaylea1 Thanks. They told me about three months but I think it’s going to take longer than that. I am generally pretty quick at healing so I thought I would be with this too but so far it doesn’t seem that way.
JK

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