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livertrex (@livertrex)

Dizzy still after my liver transplant

Transplants | Last Active: Oct 9, 2019 | Replies (52)

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@rowdyramsey

Thank you very much. I had the same things happen after transplant. Like,I began to get better at everything. Somewhere around 3 yrs post,my body started to rapidly deteriorate. My mind,my body started to betray me. I believe I have perm. damage to my brain from the 2yrs. of HE..Best of luck to u.

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Replies to "Thank you very much. I had the same things happen after transplant. Like,I began to get..."

@rowdyramsey I am sorry that you are having so many difficulties but if they started 3 years after transplant I doubt they are connected to the HE episodes before. If your current doctors will not address these problems and try to find a cause then please change doctors. You deserve better treatment than that.
By the way, I have not seen my hepatologist since my transplant. I think that once you have a new liver there is generally no need to. I know that if I need her or if I have any questions for her that she is there for me but I only sent her a couple of questions one time, through the portal.
JK

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