Diagnosis today and feel paralyzed but need to be there for my hubby..

Posted by cindee60 @cindee60, Tue, Nov 12 5:44pm

We are in Canada and just left appt where we were told brushings from my husbands bile duct near intestine are high probability of pre cancerous cells but the surgeon felt there’s a good chance it’s cancer. He says he feels the area of the cancer is removable and treatable. I understand this is bad but can anyone offer any stories of hope…? I need to be strong for my husband . Thank-you

Hello @cindy60,
I am not familiar with your husbands potential diagnosis, but want to let you know that I learned first hand there is always room for a lot of hope.

Not panicking and jumping to conclusions is very difficult but is something you should strive for.

Some advice that I received after being diagnosed was to not rely a lot on the information on the intranet.
My Doctor advised that most diagnosis usually impact people in different ways, as a result the information would not likely be accurate in my circumstance. I found this to be true and was thankful we followed her advise.

Does your clinic offer support services such as social, dietary and physical activity programs that you can utilize should you require them?

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@grandpabob

Hello @cindy60,
I am not familiar with your husbands potential diagnosis, but want to let you know that I learned first hand there is always room for a lot of hope.

Not panicking and jumping to conclusions is very difficult but is something you should strive for.

Some advice that I received after being diagnosed was to not rely a lot on the information on the intranet.
My Doctor advised that most diagnosis usually impact people in different ways, as a result the information would not likely be accurate in my circumstance. I found this to be true and was thankful we followed her advise.

Does your clinic offer support services such as social, dietary and physical activity programs that you can utilize should you require them?

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Thank you for your reply. At this stage we have been told that the surgeon feels that this is 100% treatable so I guess I have to hang on to that for now. apparently is very rare and limited resources where we live feel very alone as this

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@cindee60

Thank you for your reply. At this stage we have been told that the surgeon feels that this is 100% treatable so I guess I have to hang on to that for now. apparently is very rare and limited resources where we live feel very alone as this

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Absolutely, believe that the initial treatments are going to work as they are designed.

As much as you can, try to do things that you both enjoy that will take your minds of what is going on medically, at least for some moments every day.

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@grandpabob

Absolutely, believe that the initial treatments are going to work as they are designed.

As much as you can, try to do things that you both enjoy that will take your minds of what is going on medically, at least for some moments every day.

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Bob do you mind if I ask what type of cancer you faced and when you were diagnosed? And what is the best thing that I can do to be there for my husband?

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Hi cindee60
I was diagnosed with Large B cell lymphoma.

The support that worked for me, may not be right for everyone.

What helped me was insuring that I stayed involved in day to day routines. This was especially important on down days coming out of treatments.
We have always been an active couple so keeping up with exercise became a great way to support me. There were many days where laying in bed would have been good enough for me but thankfully, that was not allowed too often. So those little pushes from time to time were good.
Insuring my dietary needs were met offered a lot of support, as eating was difficult at times.

Immediate Family engagement was also very important to me, thankfully our family was fully engaged in helping me get better as well. (Though for the most part from a distance as out children all are from away- I have a new appreciation for the telephone and face time)

And, very important was having someone close by to hold tight when it was really needed. I think this helped both of us.
Oh yes, coming along to all the appointments and insuring we “heard correctly” was most helpful.

There are a lot of things that can offer physical, emotional and physical support, i hope some of these will work for you folks.
There is probably no wrong way to support as long as it is viewed in the same way by all parties. (That is a bit of a mechanical statement however!)

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@grandpabob

Hi cindee60
I was diagnosed with Large B cell lymphoma.

The support that worked for me, may not be right for everyone.

What helped me was insuring that I stayed involved in day to day routines. This was especially important on down days coming out of treatments.
We have always been an active couple so keeping up with exercise became a great way to support me. There were many days where laying in bed would have been good enough for me but thankfully, that was not allowed too often. So those little pushes from time to time were good.
Insuring my dietary needs were met offered a lot of support, as eating was difficult at times.

Immediate Family engagement was also very important to me, thankfully our family was fully engaged in helping me get better as well. (Though for the most part from a distance as out children all are from away- I have a new appreciation for the telephone and face time)

And, very important was having someone close by to hold tight when it was really needed. I think this helped both of us.
Oh yes, coming along to all the appointments and insuring we “heard correctly” was most helpful.

There are a lot of things that can offer physical, emotional and physical support, i hope some of these will work for you folks.
There is probably no wrong way to support as long as it is viewed in the same way by all parties. (That is a bit of a mechanical statement however!)

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Thank you so much for your words of wisdom. I can tell from reading your message you are a very kind man.

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I'm glad that the doctor feels that this is treatable, @cindee60. That is something to be grateful for. Has a treatment plan be laid out for you yet?

How is your husband doing with this new information?

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My family member got intestinal tumor in 2010 and had two surgeries and targeted therapy. Now she is still working. I hope you can stick to the treatment and actively treat it.

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@hopeful33250

I'm glad that the doctor feels that this is treatable, @cindee60. That is something to be grateful for. Has a treatment plan be laid out for you yet?

How is your husband doing with this new information?

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Repeat CT scan and colonoscopy Husband had colonoscopy a few years ago so dr is not overly concerned with this but would address it during surgery. So far surgery to remove the affected area in the bile duct near small intestine.

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@zxh6101

My family member got intestinal tumor in 2010 and had two surgeries and targeted therapy. Now she is still working. I hope you can stick to the treatment and actively treat it.

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When you say still working you mean your family member is doing well?

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@zxh6101

My family member got intestinal tumor in 2010 and had two surgeries and targeted therapy. Now she is still working. I hope you can stick to the treatment and actively treat it.

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Welcome to Connect, @zxh6101. Your post offers hope to others.

@cindee60 how are you and your husband doing?

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Hi cindee60

Just checking on how things are going.

Are you feeling less panicked?

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@cindee60

When you say still working you mean your family member is doing well?

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@cindee60 We’ve not heard from you in awhile—is everything going OK? We’re concerned. Becky

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@grandpabob

Hi cindee60

Just checking on how things are going.

Are you feeling less panicked?

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Hi Bob not doing good just found out we are facing pancreatic cancer and a Whipple procedure soon so scared

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@cindee60

Hi Bob not doing good just found out we are facing pancreatic cancer and a Whipple procedure soon so scared

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@cindee60 I’m sure you both are scared with the diagnosis and treatment. Just remember, we’re all here for you if you need to scream, complain, talk, or just blow off steam. Remember, try to be positive. Becky

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