1. < Transplants

Current wait times for a cadaveric kidney transplant

Posted by parboy @parboy, Oct 29, 2017

I have searched for the average wait times for a cadaveric kidney at Mayo and haven't found resources. I've been to txmultilisting.com which is very helpful but would like to confirm their data through a separate resource.

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jun 28, 2022
In reply to @frayfl "I was lucky to have great insurance. Once I met my annual deductable of $750 everything..." + (show)
@frayfl

I was lucky to have great insurance. Once I met my annual deductable of $750 everything was paid at 100%.

I had to pay travel and lodging costs.

Most of the transplant centers were very helpful and were eager to help.

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@frayfl, I want to add my Welcome to Mayo Connect. I also want to say thank you for sharing your experience that will be helpful for others.
Congratulations on 6 years of new life with your transplant. I am 13 years post transplant (liver/kidney) from a deceased donor. I have a relative who will be getting her kidney as part of a chain next week! I can't wait to hear about her experience.
What have you enjoyed doing since the transplant?
I invite you to share a snapshot of hope in: Snapshots of hope: Life on the other side of transplant https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

REPLY
blbird33 | @blbird33 | Jun 29, 2022
In reply to @frayfl "I am 6 years out from my kidney transplant. After being wait listed for a kidney..." + (show)
@frayfl

I am 6 years out from my kidney transplant. After being wait listed for a kidney in OK I was shocked to find out the wait time for a cadaver kidney was estimated to be 5+ years.

In order to reduce wait time I was listed at 4 different kidney transplant centers and was working on the 5th when I got the call from a transplant center in TX.

My wait time was less than 10 months from listing at the first transplant center to my transplant. My transplant was done less than 3 months after being listed at the transplant center where the transplant was done. My transplantedkidney was also a 100% match.

I would encourage anyone waiting on a kidney to consider multilisting.

This website
txmultilisting.com
Will provide average wait times for every transplant center broken down by blood type and other factors.

The website will provide all the information you need to select multiple transplant centers, get multilisted and decrease your expected wait time.

I would not be alive today if I had not been multi listed.

My first transplant center discouraged multilisting and even threatened to remove me from their wait list if I pursued multilisting.

My advice to everyone waiting on a kidney transplant is to BE YOUR OWN ADVOCATE.

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So good to hear about multi-listing at several centers. I am in the process of doing this but needed a list of transplant centers to see if I had support near the center to plan on. Do you have to be 1-2 hours away from the center in order to get there in time? Can't they share their testing results so you don't have to travel for a day or so of testing? What states have the shortest wait list and what are the criteria for moving to the front of the list? Thank you again for this website and I will check it out. It took me almost a year to get on the list of UC Davis due to testing requirement changes. Hope to share in the future about me getting a transplant like you. Blessings, BB

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Frayaz | @frayfl | Jun 29, 2022

You can find average wait times for all US transplant centers at TXMULTILISTING.COM along with almost every thing you need to know regarding multilisting, including travel time information.

Transplant centers will accept test results from other transplant centers, however each transplant center I contacted required at least one face to face visit and additional testing that can take several days, depending on scheduling.

You should review travel options, I was listed at 2 transplant centers that were 8 + hours from my location via car. For those, I had made arrangements for a private air charter that could leave with a 1 hour notice, expensive and arrangements need to be made in advance. The website also includes contact info for several organizations that can assist in flying you for a transplant with minimal costs.

Your transplant center appears to have an average wait time of over 5 years, as do most in CA.

Every transplant center has their own requirements. After you review possible options, you can contact each center you are considering.

Temporary relocation may also be an option.

This web site helped me to save my life. The worse thing you can do is just sit and wait. After you review the website, please post any additional questions you have to this topic.

Good luck, get started today.
Do not wait until tomorrow.

REPLY
1 reply
kmprisant | @kmprisant | Jul 5, 2022
In reply to @glengelmd1 "I donated my kidney on 3/31/2022 at Mayo as my son needed a transplant . We..." + (show)
@glengelmd1

I donated my kidney on 3/31/2022 at Mayo as my son needed a transplant . We were not a match so the shared donor program worked for us. I donated at Mayo Mn. and my kidney sent to recipient in NJ. Donor kidney from NJ went to recipient in Boston. Donor kidney from Boston brought to Mayo Mn. for my recipient son. All the above 6 surgeries done on 3/31/2022. I recommend finding a family member or friend who can be a live donor for you. Muchbetter than deceased donor. I am almost 72 and donated my kidney and had no problems

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Hello...what a great journey. May I ask..did you experience sensitive skin around your midsection near the incisions? Its like touching a sunburn! Some days worse than others. I donated a kidney 6 weeks ago. I have used an ice pack since surgery but it's so sensitive to clothes linens etc.

REPLY
2 replies
glengelmd1 | @glengelmd1 | Jul 6, 2022
In reply to @kmprisant "Hello...what a great journey. May I ask..did you experience sensitive skin around your midsection near the..." + (show)
@kmprisant

Hello...what a great journey. May I ask..did you experience sensitive skin around your midsection near the incisions? Its like touching a sunburn! Some days worse than others. I donated a kidney 6 weeks ago. I have used an ice pack since surgery but it's so sensitive to clothes linens etc.

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I had same symptoms. Went away gradually after about 2-3 weeks for me. Can take tyelenol for pain. Take Percocet only for severe pain. Topically can apply lidocaine gel or cortisone cream.

REPLY
Frayaz | @frayfl | Jul 8, 2022
In reply to @kmprisant "Hello...what a great journey. May I ask..did you experience sensitive skin around your midsection near the..." + (show)
@kmprisant

Hello...what a great journey. May I ask..did you experience sensitive skin around your midsection near the incisions? Its like touching a sunburn! Some days worse than others. I donated a kidney 6 weeks ago. I have used an ice pack since surgery but it's so sensitive to clothes linens etc.

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No just numbness

REPLY
1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jul 8, 2022
In reply to @frayfl "No just numbness" + (show)
@frayfl

No just numbness

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Me, too. I had numbness. My transplant was 13 years ago. The numbness is still there, but it is now is my normal because se I got used to it and forgot about it until I read this post!
@kmprisant, Welcome to Connect!
I had a liver and a kidney transplant. What organ did you get? When was your transplant?

REPLY
1 reply
Frayaz | @frayfl | Jul 8, 2022

Deceased doner kidney 2015
100% match

REPLY
jackie421blfdgurl | @jackie421blfdgurl | Jul 9, 2022
In reply to @rosemarya "Me, too. I had numbness. My transplant was 13 years ago. The numbness is still there,..." + (show)
@rosemarya

Me, too. I had numbness. My transplant was 13 years ago. The numbness is still there, but it is now is my normal because se I got used to it and forgot about it until I read this post!
@kmprisant, Welcome to Connect!
I had a liver and a kidney transplant. What organ did you get? When was your transplant?

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@,Rosemayra n @frayfi
My stomach at incision from liver transplant is all numb.like You .I just accept it..but it is weird!

REPLY
blbird33 | @blbird33 | Jul 9, 2022
In reply to @frayfl "You can find average wait times for all US transplant centers at TXMULTILISTING.COM along with almost..." + (show)
@frayfl

You can find average wait times for all US transplant centers at TXMULTILISTING.COM along with almost every thing you need to know regarding multilisting, including travel time information.

Transplant centers will accept test results from other transplant centers, however each transplant center I contacted required at least one face to face visit and additional testing that can take several days, depending on scheduling.

You should review travel options, I was listed at 2 transplant centers that were 8 + hours from my location via car. For those, I had made arrangements for a private air charter that could leave with a 1 hour notice, expensive and arrangements need to be made in advance. The website also includes contact info for several organizations that can assist in flying you for a transplant with minimal costs.

Your transplant center appears to have an average wait time of over 5 years, as do most in CA.

Every transplant center has their own requirements. After you review possible options, you can contact each center you are considering.

Temporary relocation may also be an option.

This web site helped me to save my life. The worse thing you can do is just sit and wait. After you review the website, please post any additional questions you have to this topic.

Good luck, get started today.
Do not wait until tomorrow.

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Frayfl, thank you for this info. I looked at the site you mentioned, TXMULTILISTING.COM, and they do have a lot of info. I clicked on a Center and it took me to someone asking if I need help with the whole process and applications. Can I trust this person as not a scam? Has anyone you know used their process from this website to apply to centers? Also, did you try working with Angel Flights West, for me, to use if called by a Center to get there as soon as possible for a transplant? I really do not have local support near a transplant center in these other states, other than Phoenix. I have just sent a referral to Mayo from my doctor so will see how long it takes to process and what next steps are. Thank you for this email thread of information. BB

REPLY
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