Current wait times for a cadaveric kidney transplant

Posted by parboy @parboy, Oct 29, 2017

I have searched for the average wait times for a cadaveric kidney at Mayo and haven’t found resources. I’ve been to txmultilisting.com which is very helpful but would like to confirm their data through a separate resource.

Interested in more discussions like this? Go to the Transplants group.

@glengelmd1

I donated my kidney on 3/31/2022 at Mayo as my son needed a transplant . We were not a match so the shared donor program worked for us. I donated at Mayo Mn. and my kidney sent to recipient in NJ. Donor kidney from NJ went to recipient in Boston. Donor kidney from Boston brought to Mayo Mn. for my recipient son. All the above 6 surgeries done on 3/31/2022. I recommend finding a family member or friend who can be a live donor for you. Muchbetter than deceased donor. I am almost 72 and donated my kidney and had no problems

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@glengelmd1 Bless your heart! What a true delight to read the route your son's new kidney took to get to him. And it underscores what can be done these days, to get matches.

How are you and your son feeling these days?
Ginger

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@gingerw

@glengelmd1 Bless your heart! What a true delight to read the route your son's new kidney took to get to him. And it underscores what can be done these days, to get matches.

How are you and your son feeling these days?
Ginger

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My son and I are doing wonderful. Enjoying life and trying to live a healthy life style. I am donating a unit of blood on Thursday.

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@glengelmd1

My son and I are doing wonderful. Enjoying life and trying to live a healthy life style. I am donating a unit of blood on Thursday.

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Ginger, I hope it is ok to ask how her son found a kidney donor. I am stage 5 Polycystic Kidney Disease and am open for new ways, new ideas to find a donor. It is a difficult process. I wish the best for her son and family. Thank you. Blessings, Barbara Bird

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@blbird33

Ginger, I hope it is ok to ask how her son found a kidney donor. I am stage 5 Polycystic Kidney Disease and am open for new ways, new ideas to find a donor. It is a difficult process. I wish the best for her son and family. Thank you. Blessings, Barbara Bird

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@blbird33
Barbara, here is an older discussion about finding a donor: https://connect.mayoclinic.org/discussion/ways-to-advertise/?pg=2#comment-675519

Don't hesitate to get listed at more than one transplant center. My husband did that, and his new kidney came from the second location! Other ideas include talking to your family and friends, letting them know you are searching for someone to "share your spare" for a living donation. Have them speak to their friends and acquaintances. Post on your social media. Wear a T-shirt that you make up, letting everyone who sees you, know you are on the hunt. Wear a button on your shirt with that information. Put a sign on your car.

I am also Stage 5, but am not eligible for transplant.
Ginger

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@blbird33

Ginger, I hope it is ok to ask how her son found a kidney donor. I am stage 5 Polycystic Kidney Disease and am open for new ways, new ideas to find a donor. It is a difficult process. I wish the best for her son and family. Thank you. Blessings, Barbara Bird

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@blbird33 I wish you the very best in finding a donor. If you have not already done so, you could read through our toolkits that give a bit of information about how to go about asking people and finding a living donor. https://connect.mayoclinic.org/blog/transplant/tab/resource-35/#Finding

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I am 6 years out from my kidney transplant. After being wait listed for a kidney in OK I was shocked to find out the wait time for a cadaver kidney was estimated to be 5+ years.

In order to reduce wait time I was listed at 4 different kidney transplant centers and was working on the 5th when I got the call from a transplant center in TX.

My wait time was less than 10 months from listing at the first transplant center to my transplant. My transplant was done less than 3 months after being listed at the transplant center where the transplant was done. My transplantedkidney was also a 100% match.

I would encourage anyone waiting on a kidney to consider multilisting.

This website
txmultilisting.com
Will provide average wait times for every transplant center broken down by blood type and other factors.

The website will provide all the information you need to select multiple transplant centers, get multilisted and decrease your expected wait time.

I would not be alive today if I had not been multi listed.

My first transplant center discouraged multilisting and even threatened to remove me from their wait list if I pursued multilisting.

My advice to everyone waiting on a kidney transplant is to BE YOUR OWN ADVOCATE.

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@frayfl

I am 6 years out from my kidney transplant. After being wait listed for a kidney in OK I was shocked to find out the wait time for a cadaver kidney was estimated to be 5+ years.

In order to reduce wait time I was listed at 4 different kidney transplant centers and was working on the 5th when I got the call from a transplant center in TX.

My wait time was less than 10 months from listing at the first transplant center to my transplant. My transplant was done less than 3 months after being listed at the transplant center where the transplant was done. My transplantedkidney was also a 100% match.

I would encourage anyone waiting on a kidney to consider multilisting.

This website
txmultilisting.com
Will provide average wait times for every transplant center broken down by blood type and other factors.

The website will provide all the information you need to select multiple transplant centers, get multilisted and decrease your expected wait time.

I would not be alive today if I had not been multi listed.

My first transplant center discouraged multilisting and even threatened to remove me from their wait list if I pursued multilisting.

My advice to everyone waiting on a kidney transplant is to BE YOUR OWN ADVOCATE.

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@frayfl Welcome to Mayo Clinic Connect. Your transplant story is inspiring to those who have not considered multi-listing. And, wow! what a quick turnaround for getting your new kidney!

When my husband multi-listed, he had to pay $500 out-of-pocket, as insurance would not cover that. I think it was to get his foot in the door of the additional center. Did you experience that?

Yes, being your own health advocate is important. How are you doing these days?
Ginger

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I was lucky to have great insurance. Once I met my annual deductable of $750 everything was paid at 100%.

I had to pay travel and lodging costs.

Most of the transplant centers were very helpful and were eager to help.

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@frayfl

I was lucky to have great insurance. Once I met my annual deductable of $750 everything was paid at 100%.

I had to pay travel and lodging costs.

Most of the transplant centers were very helpful and were eager to help.

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@frayfl, I want to add my Welcome to Mayo Connect. I also want to say thank you for sharing your experience that will be helpful for others.
Congratulations on 6 years of new life with your transplant. I am 13 years post transplant (liver/kidney) from a deceased donor. I have a relative who will be getting her kidney as part of a chain next week! I can't wait to hear about her experience.
What have you enjoyed doing since the transplant?
I invite you to share a snapshot of hope in: Snapshots of hope: Life on the other side of transplant https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/

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@frayfl

I am 6 years out from my kidney transplant. After being wait listed for a kidney in OK I was shocked to find out the wait time for a cadaver kidney was estimated to be 5+ years.

In order to reduce wait time I was listed at 4 different kidney transplant centers and was working on the 5th when I got the call from a transplant center in TX.

My wait time was less than 10 months from listing at the first transplant center to my transplant. My transplant was done less than 3 months after being listed at the transplant center where the transplant was done. My transplantedkidney was also a 100% match.

I would encourage anyone waiting on a kidney to consider multilisting.

This website
txmultilisting.com
Will provide average wait times for every transplant center broken down by blood type and other factors.

The website will provide all the information you need to select multiple transplant centers, get multilisted and decrease your expected wait time.

I would not be alive today if I had not been multi listed.

My first transplant center discouraged multilisting and even threatened to remove me from their wait list if I pursued multilisting.

My advice to everyone waiting on a kidney transplant is to BE YOUR OWN ADVOCATE.

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So good to hear about multi-listing at several centers. I am in the process of doing this but needed a list of transplant centers to see if I had support near the center to plan on. Do you have to be 1-2 hours away from the center in order to get there in time? Can't they share their testing results so you don't have to travel for a day or so of testing? What states have the shortest wait list and what are the criteria for moving to the front of the list? Thank you again for this website and I will check it out. It took me almost a year to get on the list of UC Davis due to testing requirement changes. Hope to share in the future about me getting a transplant like you. Blessings, BB

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You can find average wait times for all US transplant centers at TXMULTILISTING.COM along with almost every thing you need to know regarding multilisting, including travel time information.

Transplant centers will accept test results from other transplant centers, however each transplant center I contacted required at least one face to face visit and additional testing that can take several days, depending on scheduling.

You should review travel options, I was listed at 2 transplant centers that were 8 + hours from my location via car. For those, I had made arrangements for a private air charter that could leave with a 1 hour notice, expensive and arrangements need to be made in advance. The website also includes contact info for several organizations that can assist in flying you for a transplant with minimal costs.

Your transplant center appears to have an average wait time of over 5 years, as do most in CA.

Every transplant center has their own requirements. After you review possible options, you can contact each center you are considering.

Temporary relocation may also be an option.

This web site helped me to save my life. The worse thing you can do is just sit and wait. After you review the website, please post any additional questions you have to this topic.

Good luck, get started today.
Do not wait until tomorrow.

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@glengelmd1

I donated my kidney on 3/31/2022 at Mayo as my son needed a transplant . We were not a match so the shared donor program worked for us. I donated at Mayo Mn. and my kidney sent to recipient in NJ. Donor kidney from NJ went to recipient in Boston. Donor kidney from Boston brought to Mayo Mn. for my recipient son. All the above 6 surgeries done on 3/31/2022. I recommend finding a family member or friend who can be a live donor for you. Muchbetter than deceased donor. I am almost 72 and donated my kidney and had no problems

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Hello…what a great journey. May I ask..did you experience sensitive skin around your midsection near the incisions? Its like touching a sunburn! Some days worse than others. I donated a kidney 6 weeks ago. I have used an ice pack since surgery but it's so sensitive to clothes linens etc.

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